The day I stopped being weak

Tired person running

You never know how strong you are until being strong is the only option you have. How true is this? You lose a parent, a brother or sister, or someone else you dearly loved and yet, time goes on. Time has to go on. For your family, for yourself. Years later you realise you went […]

Read More

MS, Inc.

Perhaps losing my only sibling over a decade ago recreated the perspective on life I once held. It poured resilience into a mind that required to be strengthened for the many years ahead. Hope became the antidote to being tired of always being sick and tired.

Read More

United

What do you think about this Tuesday thought, “Life has too many twists and turns?” When MS is your sidekick, you certainly understand the concept of the ‘before-MS’ and ‘since-MS’ time in your life. In that brief moment between both, life as you once knew it had all but disappeared. Many wondered how to bridge […]

Read More

200 days

“To many, life with MS can seem like a book where letters have been replaced by numbers or where the cover can be too hard or too soft for its content. Because of this, I don’t want them to see what MS can turn into. I refuse to show them that there is no cure, I refuse to give them a reason to give up on me. In my view, it is very much a case of the illness being mine, but the tragedy theirs if I let them.”

Read More

Fake it ’til you make it!

“Your conscious mind gives your unconscious the task to change your outlook on life, and it is slowly being bent into thinking you’re a champion within your own league.
The beauty is this: the brain in fact doesn’t really know the difference between your mind’s visualisation and reality. And therein lies the power, not the slightly negative connotation of wanting-to-be/do-something, but the positivity of having or being it already. If need be, fake it ’til you make it!”

Read More

Multiple Sclerosis: The First F____ed Fortnight

Originally posted on Republic of Emma:
The early days are the most ‘challenging’ as in it is like a dirty dangerous whirlwind where emotions, words and all sense of self goes whizzing around. The day I walked into Mullingar Accident and Emergency room, I was wearing my jeans and a t-shirt that had seen better…

Read More

The miseducation of…

“Ergo, the benefits of having MS is that I met my other, weaker self, and I learned how to be strong and wise before my own eyes, and at the speed of light. Even E.T. couldn’t follow me on his BMX bike. He tried, the little fella, but lost my phone number. Go figure.”

Read More

Resilience

“Most of all, though, I had once again come to the realisation that I unfortunately need more sleep than the average, healthy person. At this stage so, I must start considering my continuous fights against tiredness and “forgetfulness” about needing a lot of sleep, as a pure character flaw.

Perhaps I should also consider this forgetfulness a deliberate act of personal terrorism because who doesn’t like being busy? Who doesn’t like being able to get up in the morning and continue to work and stay awake for the next 12+ hours without falling asleep after 2 hours?”

Read More

Strength = choice

An invisible illness isn’t a choice. My visible hope is. ©Willeke Van Eeckhoutte and Ireland, MS and Me, 2011-2014. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to […]

Read More

A powerful letter to my MS

“I thought you were just another Monday morning case when you walked in,” my consultant said, followed by lots of apologies and the promise that I would be very well taken care of.”

Read More

MS: lesson in minimalism

Can I let you in on a little secret? It’s something meaningful and I’d like to share it with you. Before getting all philanthropic and philosophical, having multiple sclerosis is not a nice thing. Or a happy thing. Not when you’ve just been diagnosed. It’s a long road to acceptance. In between hearing ‘You have […]

Read More

Finding Her Here, by Jayne Relaford Brown

“I am becoming the woman I’ve wanted, grey at the temples, soft body, delighted, cracked up by life with a laugh that’s known bitter but, past it, got better, knows she’s a survivor- that whatever comes, she can outlast it.

Read More

Letting go

Life seems like a joke, out to get you when you least expect it. People disappear from your life, but it’s not until after they’re gone that you realise how much you liked being around them. Or, you understand what being truly happy means because you’ve known absolute sadness. Or you start appreciating silence because […]

Read More

What MS feels like in your mind

What multiple sclerosis feels like on a mental level? How does it affect your mind? These are questions a lot of people wonder about: those with MS, wondering how others feel with the illness they share. Or people without MS, like your family, your friends, just curious how you are really feeling. And then there […]

Read More

I’m a rock chick babe and you better know it!

I am a rock chick babe and you better know it. With this statement I came home from my weekly shopping, having browsed through the sales in an already low-cost shop. Makes you feel good knowing you didn’t break the bank doing so. Right now, though, that is not what is on my mind. I […]

Read More

I’m a rock chick babe and you better know it!

I am a rock chick babe and you better know it! With this statement I came home from my weekly shopping, having browsed through the sales in an already low-cost shop. Makes you feel good knowing you didn’t break the bank doing so.  Right now, though that is not what is on my mind. I […]

Read More