• Fake it ’til you make it!

    “Your conscious mind gives your unconscious the task to change your outlook on life, and it is slowly being bent into thinking you’re a champion within your own league, Superman/Superwoman if need be, tights absolutely optional.
    The beauty is this: the brain in fact doesn’t really know the difference between your mind’s visualisation and reality. And therein lies the power, not the slightly negative connotation of wanting-to-be/do-something, but the positivity of having or being it already. If need be, fake it ’til you make it!” Continue reading

  • That thing people call ‘summer’

    “It’s just another one of those very paradoxical facts of life: as a person with MS, you lack vitamin D. The only way to get good vitamin D into your body is to spend time in the sun. If heat sensitivity is part of your long list of MS symptoms, though, you can’t sit outdoors in the sun because your other MS symptoms get worse. Result? You choose to stay out of the sun, and therefore continue to lack vitamin D.” Continue reading

  • Hope cures old wounds

    “The illness is mine, but the tragedy theirs,” when asked how my family feels about my condition. When I entered the MS academy, I read the small print and knew it wouldn’t be a 365-day holiday. However, I tolerate MS. There’s no resentment or blame, no more heartache, guilt or doubt. I find solace in seeing science produce more and better research results and medication. Clinical trials are moving forward at a pace that will eventually lead to an easier life with an illness that is as fickle as MS.”
    Continue reading

  • I’m an ex and I’m lovin’ it!

    “I used to be a lot of things. Busy. Book addict. Ireland lover. Passionate. College student… and perhaps a tad crazy also. But then friends started saying that I was “slowly turning into a blonde”. Physical discrimination on the basis of hair colour aside, I felt they had a point.
    Concentration skills went from hero to zero. Walking from the couch to the fridge a massive undertaking. In tears in front of the staircase after work because I had to sleep for an hour before being able to scale its height.” Continue reading

WordPress Menu issues again

On the day that judging for the Ireland Blog Awards starts, WordPress‘s menus are scrambled again and are missing half of the whole menu.

Again chasing WordPress… so not fun!

Apologies to anyone looking for specific posts, am trying hard getting them back asap.

Up until 2am again fixing a large runaway menu on my blog. Need your help so. If/when you find broken links, menu issues or anything else that looks dodgy, can you please send me a private message on billie@irelandms.com?

Judging for the Blog Awards Ireland competition starts today… Argh! Not again!

Thanks.

___________________________________________________________________________________________________

About Billie ThumbnailAbout Willeke

Neurologically challenged by MS and personally by her will to succeed, Willeke is a disability awareness advocate seeking to improve neurological/MS services in Ireland. By highlighting difficult issues that come with such a diagnosis, she hopes her tenacity can bring some dignity to people most in need of a modern, inclusive healthcare system that looks after every aspect of life.

© Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2015. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

Positive MS News: July 2015

Image reseach methods

Because of the summer holidays, less positive news has filtered through. Either way, enjoy, and hopefully more next month!

Research

  1. Gene Regulating Treatment Response in Multiple Sclerosis Identified
  2. New Study Evaluates The Role of MRI in Monitoring MS Progression Multiple Sclerosis
  3. Nano-Drugs in Liposomes Could Treat Multiple Sclerosis
  4. Altered Immune Cells in Relapsing Remitting Multiple Sclerosis Patients Cause Reduced Immune Capacity
  5. MS Study Uses Findings on Quality of Life Issues To Develop New Confidence-Building Intervention
  6. Nutra Pharma Working on Pediatric MS Treatment Based on Venom Multiple Sclerosis News Today
  7. Identifying MS Gene Mutations Could Make Personalized Treatment Possible Multiple Sclerosis …
  8. Brain Scan To Detect Multiple Sclerosis, Other Brain Abnormalities
  9. Why medical research matters
  10. New MS Study Shows TYSABRI Improves Cognitive Impairment
  11. AB Science announces successful non futility test for masitinib in progressive forms of multiple …
  12. Study Evaluates Gilenya’s Impact on Central Autonomic … – Multiple Sclerosis News Today
  13. Women and men’s immune system genes operate differently, Stanford study shows

Continue reading

Use it or lose it!

Life with MS?

“60% blood to keep the phlebotomy department satisfied, 10% sweat, and 0% tears.”

When I’m told that 30% is missing, I agree.

“30% is memory loss, which rather proves a point.” Continue reading

Older, and dafter too!

25596wallfAnother year older today, and another year dafter too.

Kookier.

Most definitely away with the faeries.

Never one to take myself too seriously unless needed, I am taking my new number in my stride. Having family and friends I love and who in return, seem to like me enough to give me a place in their own busy lives, is all I need to know.

Asked how I ended up in Dublin, celebrating my birthday in Ireland for a 13th consecutive year, is a recurring question. The answer? The bonkers idea since age 15ish, that life in Ireland was ‘it’, a dream so titanic in size I was afraid it might never work out. Continue reading

Positive MS News: June 2015

brain-animation-

There’s only one topic in the Highlight! part of the good news list this month. In my view, more private firms should be involved in clinical research, sponsorships of medical institutions etc. In essence, it’s in everyone’s best interests, i.e. everyone’s health, theirs included.

What’s your view on this? Answer below! Continue reading

Multiple Sclerosis: The First F____ed Fortnight

Willeke:

A very beautifully written post by my friend Emma, who goes over her first few hours and days after her MS diagnosis.

“There’s no doubt, it has been raw, it has been ugly with cursing and swearing, lost relationships dodgy decisions. But I everyday I make peace with myself, I give thanks that I have another moment to live. Because there were times when I didn’t see any hope. I was soaked in blood, sweat and the tears of a thousand years.” (Republic of Emma)

Continue reading below…

Originally posted on Republic of Emma:

The early days are the most ‘challenging’ as in it is like a dirty dangerous whirlwind where emotions, words and all sense of self goes whizzing around. The day I walked into Mullingar Accident and Emergency room, I was wearing my jeans and a t-shirt that had seen better days. Two weeks later, not only was that t-shirt gone, the Emma who walked into A&E had disappeared, stepped into a bizarre place of chronic illness and dis-ease.

Daring-Greatly2

Multiple sclerosis- multiple scars? I had brain damage? Those fifteen seconds, when those words went from the consultant’s mouth to my ears, a little part of me died… I picked up the pieces of my broken heart but I still think of old Emma sitting on the edge of the hospital bed and the new Emma, getting up and stumbling, in a post-traumatic shock way, into a new life, a new way of…

View original 272 more words

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