Willeke is a disability awareness advocate and originator of Ireland, Multiple Sclerosis & Me. She actively writes for other people’s blogs as well as for the MS Society of Ireland blog, and in doing so, raise awareness about life with multiple sclerosis at home and abroad. Connect with her on Twitter and Facebook. Also check her new blog Kick-Ass Ireland.
©WVE and Ireland, Multiple Sclerosis & Me, 2011-2015. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.
Imagine this… You are chronically ill, but every time you have a physical setback, your body can heal itself without input from your GP, neurologists, hospitals…
Our mind has the power to heal heartache and/or to show strength in times of need, yet our bodies lack that magnificent paradox. The answer lies in how we look at our emotions; are they your friend, or foe? And how do you view your physical body?
After some feeble attempts trying to write a few paragraphs the past few weeks, I was sent back to the drawing board after each occasion. Not good enough. Already done this. Needs more research. Too tired. Continue reading
(Republished on request on November 15th, 2015 in memory of those who lost their lives in the latest Paris attacks)
Like many other people this week, I was horrified by the barbaric Charlie Hebdo massacre. Twelve people were killed in the Paris office of the weekly newspaper, a strongly anti-racist and left-wing satirical paper, sometimes publishing controversial Muhammad cartoons. It’s been on my mind since, and I’m not finding any answers to why and how people can mindlessly and effortlessly kill others for holding a different belief system. Continue reading
You’ve probably been there before.
You say to yourself… “I will absolutely, unequivocally, no-doubt-about-it stay under the duvet to get rid of a bad ear infection, facial pain, unrelentless fatigue and a bout of the flu.”
Sometimes you also think, “I suppose everyone has a point when they say I have to listen to my body a little bit more.” Continue reading
It was a busy month. ECTRIMS (European Committee for Treatment and Research in Multiple Sclerosis Congress; October 7 – 10, 2015 in Barcelona) came and went, with insight and data offered on existing and new therapies. Continue reading
Thirteen years ago today I moved to Ireland. A teenage dream turned reality.
Little did I know that 2,5 years later, my life would be transformed in a way I had never imagined. Still, there are no regrets, and where anger could have resided, none is left for two chronic illnesses that could easily have been my downfall.
Not one to dwell on issues past, I never allowed myself to live in Oscar Wilde’s famous gutter for a long period. When he said, “We are all in the gutter, but some of us are looking at the stars,” I realise I still am that stargazer, that dreamer, that person who loves Irish history and sociology, nature and literature, photography and psychology.
I am also still that believer in historical and moral justice, a dreamer who wants to see eight centuries of domination over Ireland undone, but knowing all too well that from a political and royal viewpoint, this is dream one dream too many. Continue reading
Some days I feel like a half-baked Cinderella. There’s some promise at 8am, but by 10am my fairy tale book is closed until further notice. In the background, that all-important Cinderella clock keeps ticking forward. My body is in a rut: sleeping, eating, exercising, resting, eating, sleeping and back again.
And that Cinderella shoe?
Taken by someone else altogether.
In other words, and very much like a psychological broken record, I keep finding out that I am 100% present, but physically I am a goner. Continue reading