“I must work towards a new set of ears,” I thought, blissfully unaware that getting these would be a herculean feat of biomechanical engineering. No matter how much I wished to exchange one of my senses because of bouts of noise intolerance, I had to retort to the usual, “Ah, the joys of life with MS” when laughing about another one of my MS-induced naps the following day.Read More
“Too many times we like to blame others for our own problems. Situations and people create our experiences, but these situations and people don’t create you. Understanding our past helps us to distinguish why we hold on and repeat self-destructive behaviours.
When we feel anger, resentment and other non-positive emotions, the only one we annoy is ourselves. So, choose taking ownership over blaming others, happiness over negativity, a new way of life over just remaining in a rut.”
Reality. It’s what’s for breakfast. After some feeble attempts trying to write a few paragraphs the past few weeks, it was back to the drawing board each time. Not good enough. Already done this. Needs more research. Too tired. Not fit enough. You know moments like these, you sit down, determination almost physically squeezing ink […]Read More
“I decided to call it, “MS, 50 shady ways of being sick.” It sounded good in that moment. Hell, it almost sounded sexy.
I’ve yet to find 49 other ways of being ill though. When my friend therefore asked what I was (relapsing/remitting; primary progressive etc.), I simply said, “What I am? Tired, just endearingly tired, so much so I’m ready for my nappy.””Read More
“Your conscious mind gives your unconscious the task to change your outlook on life, and it is slowly being bent into thinking you’re a champion within your own league.
The beauty is this: the brain in fact doesn’t really know the difference between your mind’s visualisation and reality. And therein lies the power, not the slightly negative connotation of wanting-to-be/do-something, but the positivity of having or being it already. If need be, fake it ’til you make it!”
“‘How far do baby germs fly?’ I agree with my lateral sort of thinking in this case. Wondering how far people’s sneezes fly is usually not something I occupy myself with, unless of course when I’m sitting in warm surroundings where endemic bugs tend to live.”Read More
“Having dissenting views on the verb ‘to pace,’ it is one I need to add seriousness as well as a lot more thought into. Having a Wonder Woman Syndrome is a term I sometimes carry with pride.”Read More
“As you can tell, I have lots that strengthens me and drives me forward. I also have (dis)abilities: severe bouts of pain and fatigue, which I bent into a positive writing tool for others to lean on. My limitations serve as other people’s motivation. Their motivation became my inspiration.”Read More
There aren’t many things in my life that have outnumbered my years in Ireland as I celebrate my 11th anniversary of living in Ireland today. Once again I had to pinch my arm, making sure that I woke up in Clonsilla, Ireland instead of Belgium. Eleven years indeed. Dreams do come true if you want […]Read More
When can you call yourself a writer? With that debate still unsolved, I continue to wonder if I can call myself so. After all, I am now a former Incident Coordinator, a former library assistant and therefore a former ‘employed being’ altogether. And that sounds rather bad for one’s ego when pondered upon too long. Asked […]Read More
“You’re just being contrary!” my mum used to say. I think that from a young age, she must have found me indeed, a bit different than other kids my age. I wasn’t rebellious, in fact as a teen I was anything but rebellious, but you might say that I went through the usual girly teen […]Read More
Yep… right now I am one hell of a great example of how MS can just snap you right back to when you were first diagnosed, hence the large picture stating that very fact. Remember the days where you were just bed-ridden with lots of symptoms not making sense, and pain that kept you up […]Read More
“How do I find my way back to my desk?!” With that, vertigo had entered my life in 2005 while I was at work. The hallway seemed to be spinning. Or was it me? Had I finally lost my mind altogether? A tilting floor wanted to meet my knees instead of my feet. “Ground control […]Read More
People often ask me: “Why Ireland?” And tongue-in-cheek, I think, “Do you have a day or two so I can explain?” It goes back years, if not decades. I remember as a kid in the library under our apartment, how I traveled through Ireland by sitting down and watching pictures in big books on Ireland. […]Read More
I am a rock chick babe and you better know it. With this statement I came home from my weekly shopping, having browsed through the sales in an already low-cost shop. Makes you feel good knowing you didn’t break the bank doing so. Right now, though, that is not what is on my mind. I […]Read More
Oops! This page has moved to this page Why not read one of these posts when you’re finished? A powerful letter to my MS MS anxiety Do I have stupid written on my forehead? I’m an ex and I’m loving it! You will survive! Responsibility hurts Ignorance Let’s be frank Fake it ’til you make it […]Read More