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      • Detailed Trigeminal Neuralgia info
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      • Understanding Trigeminal Neuralgia
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    • What if it’s not MS
      • Do I Have Multiple Sclerosis or Another Disease?
      • The difference between fibromyalgia and MS
      • The difference between ALS and MS
    • Reading Healthcare: A Medical Terminology Study Guide for Patients, Students and Professionals
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      • Managing Relapses (US National MS Society)
      • Managing Relapses (MS Trust)
    • Managing MS fatigue
      • The Spoon Theory
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    • Here’s What to Ask Your Doctor About Multiple Sclerosis
    • A Look at Your Multiple Sclerosis Treatment Plan
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      • Oh, media, when will you ever learn? Stop calling it a cure!
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      • The first day
      • It’s OK not to be OK
      • I am not my brain
      • Making sense of MS
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      • 3443 Needles
      • Starting over
      • Injecting object
      • What a difference a needle makes
    • Living with Trigeminal Neuralgia
      • No-wrinkle multiple sclerosis
      • Where is my left cheek?!
      • The five-second MS rant
      • Not my face!
      • No end to trigeminal neuralgia
      • I’m an ex and I’m lovin’ it!
      • Why I love advocacy!
      • 10 years: a lot to be thankful for
      • How (not to) be sick!
      • A future without chronic illness
      • Medical terminology?
      • MRI scans, hope or defeat
      • The MS blame game
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      • Then & now
      • What we refuse to discuss
      • What you might not be aware of
    • Fatigue
      • The truth about Cinderella
      • Sleep: a time-consuming commodity
      • Time to recharge
      • Tiredness ≠ fatigue
    • Emotional Health
      • MS and PTSD: not all in your head
      • Body image and MS: how many selfies do you have?
      • Happiness and MS
      • Things that make you love and hate MS resolutions
      • Bliss, the MS-way
      • Depression?
      • I don’t miss myself
      • I’m only human
      • Mortality
      • Peak moments!
      • Resilience
      • Magnetic voices
    • Hyperacusis | Sound sensitivity | Noise sensitivity
      • Noise sensitivity in MS: Turn off your voice!
      • When life with MS is like The Clash’s ‘Should I stay or should I go’
    • That ignorance!
      • MS Anxiety
      • Defined by myself
      • Dissecting words
      • Ignorance
      • Pull up your big girl panties!
    • Optimism
      • The duality of MS
      • I am not my brain
      • You will survive!
      • What singing taught me about life with MS
      • Branded!
      • Do I have stupid written on my forehead?
      • Fake it ’til you make it!
      • Giving up is not an option
      • How far do baby germs fly?
      • Life begins at the end of your comfort zone
      • Life’s meant to be…
      • The day I stopped being weak
      • Man up!
      • Now what?!
      • Paper dreams
      • Waiting
      • What about it?
      • Why I should be a brainiac, but I’m not
      • You will survive!
    • Relationships/Friendships
      • Body image and MS, fake or not
      • Hell is other people
      • MS and single on Valentine’s Day?
      • MS + single on Valentine’s Day?
      • Kids? Not right now, please…
      • Philosophy of Friendship
      • Single life!
    • MS Relapses / Flare-ups
      • Game, set, relapse!
      • Relapse!
      • Relentless relapse
    • Heat sensitivity / Uhthoff’s Symptoms
      • About Vikings, Vitamin D and multiple sclerosis!
      • Heat sensitivity and MS?
      • Too hot for you? Heat sensitivity explained!
      • The duplicity of MS
      • Every leaf speaks bliss to me
      • Hot town!
      • That thing people call ‘summer’
    • Other symptoms
      • Sensory MS symptoms: The hair that isn’t there
      • You retired at age what?
      • Mental or physical, your choice
      • Silver Linings
      • The social swing of life
      • Jammed filter!
      • Wheelchair?
    • Optic Neuritis
      • Eyes of sorrow
      • Fourteen MS years and counting
    • Ireland
      • Paper dreams
      • The Celtic Tree of Life… sort of!
      • Why Ireland?
      • Ireland, a love story
      • Dublin: a state of mind
      • Back to Ireland
      • Photography
        • Famine
        • Caged
        • An Irish General… and me
        • Irish Selfie
  • Top Posts
  • 🎀 3443 Needles (Winner Ireland Blog Awards 2018) 🎀
  • Blog Awards
  • MS Trust DMT Decisions Aid
  • [NEW] 45 Best Multiple Sclerosis Blogs and Websites in 2025
  • [NEW] Your Everyday Guide To Living Well With Multiple Sclerosis
  • [NEW] 7 Common Complications of MS
  • [NEW] What’s New in MS Research in 2025
  • Privacy Policy
  • Home
  • About [updated]
  • History of MS
  • A to Z of MS
  • MS Explained
    • Why Multiple Sclerosis Is So Difficult to Diagnose
    • What is MS?
    • The Effects of Multiple Sclerosis on Your Body
    • How MS Affects Brain Cells
    • What causes MS?
    • Types of MS
    • Updated McDonald Criteria (2017)
    • Immune System
      • What is an immune-mediated disease?
      • BiteSized Immunology
    • Central Nervous System
    • CNS (videos)
  • MS Symptoms
    • Early signs of MS
    • 16 Early Symptoms of Multiple Sclerosis
    • MS & Sleep
    • Cognition
    • Multiple Sclerosis and Memory Loss
    • Sensory Symptoms
    • Pain, the basic facts
    • What is pain & how do you rate it?
    • Trigeminal Neuralgia
      • Detailed Trigeminal Neuralgia info
      • Trigeminal Neuralgia Infochart
      • Trigeminal Neuralgia – MedlinePlus
      • Understanding Trigeminal Neuralgia
    • Emotional changes in people with MS
      • MS and Mental Health: Depression, Anxiety and Pseudobulbar Affect (Johns Hopkins)
    • What if it’s not MS
      • Do I Have Multiple Sclerosis or Another Disease?
      • The difference between fibromyalgia and MS
      • The difference between ALS and MS
    • Reading Healthcare: A Medical Terminology Study Guide for Patients, Students and Professionals
  • Managing MS
    • Symptom Management
    • What is an MS relapse?
      • Managing Relapses (US National MS Society)
      • Managing Relapses (MS Trust)
    • Managing MS fatigue
      • The Spoon Theory
    • Pain management
    • Preparing for your neurologist appointment
    • Here’s What to Ask Your Doctor About Multiple Sclerosis
    • A Look at Your Multiple Sclerosis Treatment Plan
    • 40 Self-care strategies
  • MS Treatments
    • Medications List
    • Alternative Treatments
      • Healthy eating
      • Vitamins, Minerals, and Herbs in MS
      • Vitamin D info
      • Vitamins, supplements & MS: research
      • Complementary Health Approaches for MS
      • Complementary & Alternative Medicines
      • Medical Marijuana
      • Evidence-based guideline: Complementary and alternative medicine in MS
  • Research & Clinical Trials
    • Current clinical trials – Ireland
    • Current clinical trials – UK
    • Current clinical trials – globally
    • Understanding clinical trials
    • How Do New Medicines Get Approved?
    • Latest Research
    • RESEARCH NEWS – MS IRELAND
    • Research eZine, by MS Ireland
  • Health Organisations – Ireland
  • To update 2025 – Mental Health Ireland
  • Useful Resources
    • MS Societies around the World
    • Disability websites
    • General websites
    • Medical Websites
    • MS Organisations
    • Neurology (Research)
  • My Journey
    • General
      • Media, stop calling it a cure when it’s not even clinically trialled yet!
      • Oh, media, when will you ever learn? Stop calling it a cure!
    • Newly diagnosed
      • Blurred notes to self
      • The first day
      • It’s OK not to be OK
      • I am not my brain
      • Making sense of MS
      • The road to diagnosis
    • Disease-Modifying Treatments
      • 3443 Needles
      • Starting over
      • Injecting object
      • What a difference a needle makes
    • Living with Trigeminal Neuralgia
      • No-wrinkle multiple sclerosis
      • Where is my left cheek?!
      • The five-second MS rant
      • Not my face!
      • No end to trigeminal neuralgia
      • I’m an ex and I’m lovin’ it!
      • Why I love advocacy!
      • 10 years: a lot to be thankful for
      • How (not to) be sick!
      • A future without chronic illness
      • Medical terminology?
      • MRI scans, hope or defeat
      • The MS blame game
      • MS: a social disconnect
      • Then & now
      • What we refuse to discuss
      • What you might not be aware of
    • Fatigue
      • The truth about Cinderella
      • Sleep: a time-consuming commodity
      • Time to recharge
      • Tiredness ≠ fatigue
    • Emotional Health
      • MS and PTSD: not all in your head
      • Body image and MS: how many selfies do you have?
      • Happiness and MS
      • Things that make you love and hate MS resolutions
      • Bliss, the MS-way
      • Depression?
      • I don’t miss myself
      • I’m only human
      • Mortality
      • Peak moments!
      • Resilience
      • Magnetic voices
    • Hyperacusis | Sound sensitivity | Noise sensitivity
      • Noise sensitivity in MS: Turn off your voice!
      • When life with MS is like The Clash’s ‘Should I stay or should I go’
    • That ignorance!
      • MS Anxiety
      • Defined by myself
      • Dissecting words
      • Ignorance
      • Pull up your big girl panties!
    • Optimism
      • The duality of MS
      • I am not my brain
      • You will survive!
      • What singing taught me about life with MS
      • Branded!
      • Do I have stupid written on my forehead?
      • Fake it ’til you make it!
      • Giving up is not an option
      • How far do baby germs fly?
      • Life begins at the end of your comfort zone
      • Life’s meant to be…
      • The day I stopped being weak
      • Man up!
      • Now what?!
      • Paper dreams
      • Waiting
      • What about it?
      • Why I should be a brainiac, but I’m not
      • You will survive!
    • Relationships/Friendships
      • Body image and MS, fake or not
      • Hell is other people
      • MS and single on Valentine’s Day?
      • MS + single on Valentine’s Day?
      • Kids? Not right now, please…
      • Philosophy of Friendship
      • Single life!
    • MS Relapses / Flare-ups
      • Game, set, relapse!
      • Relapse!
      • Relentless relapse
    • Heat sensitivity / Uhthoff’s Symptoms
      • About Vikings, Vitamin D and multiple sclerosis!
      • Heat sensitivity and MS?
      • Too hot for you? Heat sensitivity explained!
      • The duplicity of MS
      • Every leaf speaks bliss to me
      • Hot town!
      • That thing people call ‘summer’
    • Other symptoms
      • Sensory MS symptoms: The hair that isn’t there
      • You retired at age what?
      • Mental or physical, your choice
      • Silver Linings
      • The social swing of life
      • Jammed filter!
      • Wheelchair?
    • Optic Neuritis
      • Eyes of sorrow
      • Fourteen MS years and counting
    • Ireland
      • Paper dreams
      • The Celtic Tree of Life… sort of!
      • Why Ireland?
      • Ireland, a love story
      • Dublin: a state of mind
      • Back to Ireland
      • Photography
        • Famine
        • Caged
        • An Irish General… and me
        • Irish Selfie
  • Top Posts
  • 🎀 3443 Needles (Winner Ireland Blog Awards 2018) 🎀
  • Blog Awards
  • MS Trust DMT Decisions Aid
  • [NEW] 45 Best Multiple Sclerosis Blogs and Websites in 2025
  • [NEW] Your Everyday Guide To Living Well With Multiple Sclerosis
  • [NEW] 7 Common Complications of MS
  • [NEW] What’s New in MS Research in 2025
  • Privacy Policy
  • strong-women
    Happy Thoughts,  Lifestyle,  MS,  Multiple Sclerosis

    Things that make you love and hate MS resolutions

    16 January 2019 / 6 Comments

    “I must work towards a new set of ears,” I thought, blissfully unaware that getting these would be a herculean feat of biomechanical engineering. No matter how much I wished to exchange one of my senses because of bouts of noise intolerance, I had to retort to the usual, “Ah, the joys of life with MS” when laughing about another one of my MS-induced naps the following day.

    Continue reading
  • Happy Thoughts,  Lifestyle,  MS,  Multiple Sclerosis,  Retirement

    Let’s be frank

    24 January 2016 / No Comments

    "Too many times we like to blame others for our own problems. Situations and people create our experiences, but these situations and people don't create you. Understanding our past helps us to distinguish why we hold on and repeat self-destructive behaviours. When we feel anger, resentment and other non-positive emotions, the only one we annoy is ourselves. So, choose taking ownership over blaming others, happiness over negativity, a new way of life over just remaining in a rut."

    Continue reading
  • Happy Thoughts,  Mental Health,  MS,  Multiple Sclerosis

    Balancing life and a chronic illness

    25 November 2015 / 12 Comments

    Reality. It’s what’s for breakfast. After some feeble attempts trying to write a few paragraphs the past few weeks, it was back to the drawing board each time. Not good enough. Already done this. Needs more research. Too tired. Not fit enough. You know moments like these, you sit down, determination almost physically squeezing ink out of your pen. Cup of coffee at the ready, you start and a few minutes later you have to hold on, waiting for energy to kick your bum to open up your half-closed eyes. Reality. Seamus Heaney once said “writing is a snapshot of consciousness”. I was lucky being semi-conscious this week. I could hardly make sense of myself during those few moments I tried to put pen to paper.

    Continue reading
  • Happy Thoughts,  MS,  Multiple Sclerosis

    MS, 50 shady ways of being sick

    9 August 2015 / No Comments

    "I decided to call it, “MS, 50 shady ways of being sick.” It sounded good in that moment. Hell, it almost sounded sexy. I’ve yet to find 49 other ways of being ill though. When my friend therefore asked what I was (relapsing/remitting; primary progressive etc.), I simply said, “What I am? Tired, just endearingly tired, so much so I’m ready for my nappy.”"

    Continue reading
  • Finances and MS,  Happy Thoughts,  MS,  Multiple Sclerosis,  Your career and MS

    Fake it ’til you make it!

    19 July 2015 / No Comments

    "Your conscious mind gives your unconscious the task to change your outlook on life, and it is slowly being bent into thinking you’re a champion within your own league. The beauty is this: the brain in fact doesn’t really know the difference between your mind’s visualisation and reality. And therein lies the power, not the slightly negative connotation of wanting-to-be/do-something, but the positivity of having or being it already. If need be, fake it ’til you make it!"

    Continue reading
  • Happy Thoughts,  Humour,  MS,  Multiple Sclerosis

    How far do baby germs fly?

    18 February 2015 / No Comments

    "‘How far do baby germs fly?’ I agree with my lateral sort of thinking in this case. Wondering how far people’s sneezes fly is usually not something I occupy myself with, unless of course when I’m sitting in warm surroundings where endemic bugs tend to live."

    Continue reading
  • Happy Thoughts,  MS,  Multiple Sclerosis,  Trigeminal Neuralgia

    Wonder Woman Syndrome

    18 July 2014 / No Comments

    "Having dissenting views on the verb ‘to pace,’ it is one I need to add seriousness as well as a lot more thought into. Having a Wonder Woman Syndrome is a term I sometimes carry with pride."

    Continue reading
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What? Why?

IMSM is an award-winning blog filled with personal experiences and general information about MS to fill the gap left by websites crowded with medical jargon.

Now 22 years in Ireland and 20 years post-diagnosis, my goal is to connect people who like me, found themselves in front of MS’s door, and were dragged in for an extended stay in one of its uncomfortable, dark-lit backrooms. Hopefully, we will connect somehow to share its burden and be an inspiration to each other. After all, IMSM was created to do just that: trying to make sense of MS nonsense.

© Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis and Me, 2025

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