A future without chronic illness
I could think of many dates, funny ones, productive ones and those that would mean to a lot of friends and family. If I could choose though, I’d want to be there when a cure for MS is found.
Two million people worldwide are living with this incurable illness in their brain and spinal cord, leading to disabilities that maim them or make them withdraw from society, even life.
For those two million people, a cure would mean a wonder, a dream come true. No more wheelchair, no more bags of medication, disabling neuropathic and chronic pains. No more being shut out of family and friends. No more carers or hospitals, no more being stuck within themselves. To them, a cure would mean the world.
For me, it would mean a return to work, something I dream of quite regularly. While I cope mentally as I am right now, physically severe trigeminal neuralgia and disabling fatigue locks me in my dark bedroom. Listening to the TV instead of watching it, having to put down my books and rest my eyes. But I cope. To me, a cure would mean everything.
Until then, we wait. We wait patiently or impatiently. We hang on life and we hope. We hope that day will come soon. And when it happens, I want to be there.
©Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2014. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.
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areed090290
I’m so sorry you’re going through this. I feel horrible and wish I could be more helpful! You’re a selfless person, and I hope a cure is found in your lifetime so you can be there to see it. I hope this helps you…
‘Yesterday is history, tomorrow is a mystery but today is a gift, and that’s why they call it the present” it’s how I look at life. My bad days are nothing compared to yours, but I hope this helps you a little.
Billie
Apologies for the late reply! Thank you so much for your nice words, we keep on hoping for a better future, in the meantime like you say: enjoy the present. Thanks again!
spreadincrazysmiles
No problem, and anytime! I’m glad I made your day a little brighter 🙂
How I Beat the Odds
Oh I so relate to this. Not with MS but with the purpose of my blog – I live in chronic pain and recently went through a major life change and challenge that almost killed me – and because of that it brought me to blogging. Your words are so similar to mine, thank you for writing this. This prompt was a great one – and you definitely gave it top notch effort.
Billie
Thanks, I hope you’re doing well and apologies for the late reply. I will keep my eyes on your blog because sometimes you need to read another person’s story to put yours into perspective. Thanks again!
jayashreetrao
I can understand and feel the pain. Hope all will be well with you
Billie
Thank you!
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Martha Kennedy
I am with you 100%. Maybe, if it hadn’t have been for MS, I could have know my dad adult-to-adult, something I’ve treasured with other people in my family. Maybe he would have been able to choose a life of pure research (which he wanted) rather than going to work for the government so he provide for his wife and family after he died.
http://marthakennedy.wordpress.com/2014/01/11/pee-here-now-daily-prompt/
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wscottling
I don’t have MS, but a lot of other co-morbid illness, so I can understand the want for a pain-free world. As my husband is always saying, “Wish I had a magic wand…” Be safe.
Billie
True, life goes on despite all that, it’s all down to trying to find a way to cope every day.
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Russel Ray Photos
I volunteered for many years with the National Multiple Sclerosis Society. It, and other chronic diseases, are so sad. I’m not sure cures will ever be found but we can search and hope that such a day will comes.
Billie
Always keeping fingers and toes crossed, and keep hoping!
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