Oh, media, when will you ever learn?

Vintage typewriter

Dear Media, You should know better. It began with this article in 2017 (*) Meet the Cambridge scientist on verge of curing Multiple Sclerosis: This amazing work could literally change the world Cambridgeshire Live, June 4th, 2017 Two years later… Meet Su Metcalfe, the Cambridge scientist on the verge of curing multiple sclerosis Healthy Living Idea, […]

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Things that make you love and hate MS resolutions

strong-women

“I must work towards a new set of ears,” I thought, blissfully unaware that getting these would be a herculean feat of biomechanical engineering. No matter how much I wished to exchange one of my senses because of bouts of noise intolerance, I had to retort to the usual, “Ah, the joys of life with MS” when laughing about another one of my MS-induced naps the following day.

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Happy 2019!

Fireworks

2018 Winner Best Blog Post with ‘3443 Needles’, Blog Awards Ireland, Ashville Media Group, Dublin, Ireland ◾ Ireland Blog Awards Finalist 2014, 2015, 2017 ◾ MyTherapyApp Best MS Blog for Simplicity 2018 ◾ Everyday Health Top 10 MS Blog of 2018 ◾ Feedspot Top 50 MS Blog 2017, 2018

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The beauty and cruelty of words

woman writing on a notebook beside teacup and tablet computer

What we hold dear about putting pen to paper is the urge to create something out of nothing, quite often to slow down a fast-paced society where the purity of words have become chaotic and yearn to become meaningful and treasured again.

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Too warm for you? Heat sensitivity in MS explained!

Girl on the beach

Uhthoff’s phenomenon is when changes in body temperature make a person’s existing MS symptoms worse, even a rise of 0.25°C to 0.5°C in the core body temperature is enough to cause upsetting symptoms in those living with MS.

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The paradox of our time

Is that we have taller buildings, but shorter tempers. Wider freeways, but narrower viewpoints. We spend more, but we have less. We buy more but enjoy it less. We have bigger houses, but smaller families. More conveniences, but less time. We have more degrees, but less sense. More knowledge, but less judgement. More experts, yet […]

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Hell is other people

person holding clear glass ball with flame

“The best lesson I ever taught myself was that “What you think, you become.” I refused to let being unhappy define me or let it shape my mindset for the rest of my life. In gaining happiness and trust again, I also learned to anticipate the outcome of whatever I decided in life. After all, happiness, hope and trust are 100% up to you, and you alone.”

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Ignorance

Oh, people will stalk you on Facebook on their smartphone, but do not ask them to find unprejudiced, trustworthy websites to learn something about your condition on that very smartphone. Quite often, they “will do so when they have time,” despite having their phone in their hands 50 times a day.

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No Place for Extremism

I may have been critical of my native country Belgium in the past, but yesterday’s events in Brussels solidified friendships and my love for my people’s resilience and way of life. IS, ISIL, ISIS, Daesh (or whichever way they want to be called next) may think they won another war on foreign soil, but the western […]

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