MS, here today, gone tomorrow?
Degeneration happens, yet it forgets to enlighten you in which physical state you will wake up in the morning, and how you will eventually go to sleep at night. If your persistent MS fatigue is anything like mine, powernaps are overrated, and you go for XXX-large naps.
Noise sensitivity in MS: Turn off your voice!
If sound intolerance were a 2005 Marks & Spencer food porn ad, people would refer to it like this: “This is not just sensitivity, this is a hyperacusis noise sensitivity.”
You retired at age what?
So, yes, I retired at age 36,5 and it will never be what I envisioned when I moved to Ireland. I ‘ve crashed and burned, stumbled and found hope in tiny triumphs and friendships larger than life that will stand the test of time.
Starting over
Sacrificing your life for a chronic illness never comes easily. You learn to compensate and decide how reliable your judgment is based on what you can put in physically, mentally and emotionally. Quite often, what lies within you is mentally infinitely stronger than anyone might realise - even yourself - because, until that point in time, you have been at your worst already.
The day I stopped being weak
You never know how strong you are until being strong is the only option you have. How true is this? You lose a parent, a brother or sister, or someone else you dearly loved and yet, time goes on. Time has to go on. For your family, for yourself. Years later you realise you went through that loss better than you ever thought you would. Being strong was the only option you had. Being diagnosed with an illness that can’t be cured is a little bit similar, or is it? The day I received my MS diagnosis is a day I can almost literally rephrase, just like the day you lose someone you love, or the day when absolutely horrifying accidents happen. We all know where we were and what we…
MS News: August 2016
Below are some MS-related topics that made the headlines this month. Do come back to check again, though, as the list will be updated every three days. Highlight! Guidelines for Neuropsychological Research in Multiple Sclerosis Multiple Sclerosis Journal Johns Hopkins Medicine: Multiple Sclerosis Benign MS Multiple System Atrophy Research $2 Million Grant to Study Fatigue in People with MS What health conditions do people rank as worse than death? Multiple Sclerosis in Children
Mental or physical, your choice
"Is life with MS that comfortable, then? God, no. Absolutely not. You just have to learn how to live with it. Somehow I found a way to tap goodness from those negative connotations because I listened to its actual narrative by refusing to make a mountain out of a molehill. So, even when facial pain is also called “the suicide disease”, even when MS fatigue can knock me senseless in less than five minutes, and even when I feel awful inside despite not looking sick, I am just cool with the whole lot because there simply is no other way."
