The MS blame game

Tempus fugit

Earlier this year, my right eye behaved erratically because of a significant amount of stress that led to ongoing optic neuritis. My eye doctor recommended several times that reducing stress levels as well as cutting back on laptop, smartphone and TV use would be beneficial.

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World MS Day 2016

As each day passes with life with MS, it’s worth noting that quite often, there is still a large information gap to be filled on a medical, emotional, societal and political level. Like many other disease groups, the MS community wants to enhance “Life with…” once a year in a bid to give more insight […]

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Trading pens and ink for bullets

“My own freedom of speech means the need to write, to create, to share, to ask, to think, to discuss and then create again the way I intended, the format and content I choose. It’s not only my basic human right, but it’s yours also and should be upheld regardless of country borders or religious background.”

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What a difference a needle makes

Needle anxiety. We all went through childhood being afraid of injections. But why would someone have needle anxiety when what you’re about to self-inject every day, in fact, slows down the progression of your chronic illness? Although my emotions regarding needles do not amount to belonephobia, I have gone through moments where I simply could […]

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Mental Health Ireland

Fasttrack General Practitioners, GPs, Family Doctors, Pharmacists, Dentists, Hospitals. It also provides contact phone numbers. Type your address in the box below. The Atlas will search automatically – choose an address from the search results. A map of your street will appear. Health Atlas HSE mental health support HSE mental health professionals National office for […]

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Fake it ’til you make it!

“Your conscious mind gives your unconscious the task to change your outlook on life, and it is slowly being bent into thinking you’re a champion within your own league.
The beauty is this: the brain in fact doesn’t really know the difference between your mind’s visualisation and reality. And therein lies the power, not the slightly negative connotation of wanting-to-be/do-something, but the positivity of having or being it already. If need be, fake it ’til you make it!”

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MS Ireland: Hope & Empowerment

It’s not the first time I sit back at night and go over past moments that left me inspired and willed me forward to do more, much more. As societies go, there’s a lot of goodwill in MS Ireland, our national MS society. There are also hard facts that tell you that this is a […]

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I’m only human

“I’m only human.” It’s a phrase we all use sometimes to explain unwanted behaviours and/or consequences. Friedrich Nietzsche would say, ‘Human, all too human’, while I wonder why we simply do the things we do without some foresight, afterthought, or a memory spark that could have shown us how to avoid running into trouble. My […]

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The right to die (updated)

“In the end, the truly sad thing is courts denying people the right to live their own life and deal with death when someone is so obviously tormented. Sanctity of life is a personal matter, what you or I see in this is not up to a court to decide. Not now, not ever.”

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2014 Budget plea to the Irish government

“A heart transplant is easy enough these days, but brain transplants belong in the world of fantasy. Because of that, urgent reconfiguration of existing services should be done.”

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The right to die

Suicide law in Ireland has been a hot topic recently. Marie Fleming, a multiple sclerosis patient in the later stages of the illness, is seeking the right to commit suicide with the help of her long-term partner Tom Curran. She does not want her partner receiving criminal charges for assisting her in her dying wish, […]

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Disability is never cured with one pill alone

So it seems I’m on the warpath. It also appears that if you want to change things, you have to work very hard to get it done. And hope your adversaries are willing to at least listen for one second to what you have to say. Is it worth it? Not if your voice is […]

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Irish: A Manner of Speaking

Once again I am finding myself in WordPress-Blog-space. It’s a happy space if you ask me. Slowly I am learning about blogging and about writing and I am finding my own voice. When I received the WordPress Weekly Writing Challenge email about slang and phrases that are unique to where bloggers live, I need not […]

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Very Inspiring Blogger Award

Yesterday I found out that I received a ‘Very Inspiring Blogger Award’ on a blog post of early February (MS: a social disconnect) and the award comes from ExperiencedTutors on WordPress.com. Needless to say it was quite a pleasant surprise because as a blogger I actually wondered if anyone found it interesting enough what I […]

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Changing Ireland

I’m well into my 10th year of living in Ireland, and I often wonder about what changed during those years. A long list builds itself in my mind on people, mentality, culture, politics, nature, life… Writing about everything would result into one very long blog post that will eventually bore everyone, so I will try […]

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Dublin: a state of mind

‘Dublin is as much a state of mind as it is a city’ Tom MacDonagh   It is, that I can tell you for sure. Dublin has a way of getting under your skin. In a good way and in a lesser way. Dublin is Dublin is Dublin, but sadly Irishness is disappearing from the […]

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Gilenya in Ireland, part 2

It’s been a tumultuous week. I didn’t win the lottery or meet my knight in shining armour, but I had my MS/neurological check-up in one of Dublin’s biggest hospitals. It created ripples of emotions, questions and very few answers and as expected, Copaxone will remain my disease modifying drug (DMD) for the next few… hhmm… […]

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MS fatigue… the invisible monster

MS fatigue… The most common, yet most difficult to detect a symptom in multiple sclerosis. Aside from feeling exhausted, having to explain people over and over how different it is to normal tiredness, you often get a stigma assigned of “yeah, yeah, you’re just being lazy” or “sure, now keep walking, it’s probably not that […]

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What MS feels like in your mind

What multiple sclerosis feels like on a mental level? How does it affect your mind? These are questions many people wonder about: those with MS, wondering how others feel with the illness they share. Or people without MS, like your family, your friends, just curious how you are feeling. And then there are those that […]

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