I don’t miss myself

So…

Rugby world cup.

At last.

England in a fashion faux-pas. Coin toss aside, they resembled players of Wales, China, Japan or Kyrgyzstan (Fijian, red is Fijian).

Mum’s nine-day visit to Ireland now over.

Visited Dublin Zoo once again. New camera making me rather shutter-slow, hence prevalent photographic bonding with rear ends of several animals.

Otherwise, hardly left the house.

Sniff.

Thank you, MS. Living with a chronic illness is not all it’s cracked up to be. Chronic means chronic. I don’t get to choose the days, the hours, the moments.

Hence, a triad of medical events in the space of twelve days now extended into a three-week period.

Flu. Impatient, it could not wait to land on my doorstep before that all-important flu jab. Must remember that viruses follow idiotic timetables and adapt accordingly.

Seriously.

Disease Modifying Drugs. DMD. New increased dosage, fewer injection days. What’s not to love?

Sadly, it was not to be. For a few weeks, side effects I believed could be mentally induced, turned out to be purely physical.

Already tachycardic heart racing at Formula One speed standards. Difficulty breathing. Chest pain. Face as red as an English/Welsh/Chinese rugby shirt (Should still be Fijian). Body temperature sky-high during Skyfall. Ironic.

It sent my mum into a panic.

It sent me into a panic because of hers.

Ha. MS, such a joker.

Another medical, life experience.

Oh well. Make that experience number 9 or so. Starting to lose count. Looking out from within ain’t that grand. Or fun.

Eye-popping. Literally.

Each heartbeat making left eye pop. With each step, it bangs against its socket. Each word makes my face flinch.

Waiting on some sort of lex talionis lesson, aches waiting to be stilled by a maximum load of other drugs.

Face.

Face? Let’s not go there.

Sensory overload turns into stabbing pain. Time after time after time. Last barrier of leftover strength broken.

Note to self so, remember one thing only… That chronic, colonising, neurodegenerative thing inside that potholed brain of mine?

It’s alive. It’s breathing. Perhaps even shrinking.

Use it wisely, so. Don’t feed it negativity. Turn it into a living, breathing manual. Turn it into a tool for others to learn from.

Use that MS-ridden central nervous system as an encyclopaedia waiting to be published.

Why? How? Pollutants? Microbiota? Who knows?

Re-evaluate own expectations. And those of others.

I am not who I used to be. Nor do I wish to be. Pre-MS-Willeke has long left the building. Post-MS-Willeke received a new lease on life, and is quite literally and physically writing her first book.

MS? Assiduous. Studious. Acrimonious.

Shortcut-rambling, in bed with sunglasses on, dimmed light. Only thing missing? A tub of Ben & Jerrys ice cream and someone to massage my tired body.

But overall?

Happy. Despite the pain. Despite everything.

Love for life is still greater than the hardship MS gives me.

Happy.

Just happy.

Image happy


©Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2015. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

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Quirky, tenacious and neurologically compromised female expat living in Ireland since 2002 ◾ MyTherapyApp Best MS Blog for Simplicity 2018 ◾ Everyday Health Top 10 MS Blog of 2018 ◾ WEGO Health Patient Leader Award Nominee 2018 ◾ Feedspot Top 50 MS Blog 2017, 2018 ◾ Ireland Blog Award Finalist 2014, 2015, 2017 & Shortlisted 2018 (competition ongoing) ◾ Contributor to the Novartis MS blog Living Like You ◾ Contributor to MS Ireland’s blog MS & Me ◾ Contributor to The Mighty ◾ Guest contributor to MyTherapyApp.com

5 thoughts on “I don’t miss myself

  1. Gob smacked by your wonderful strength and sense of fun, despite such tough challenges. I wish more people had your courage and determination. MS doesn’t stand a chance against you!

    1. I am and I will. Always :)

      Rereading the post again, I realise it sounds rather dark and pessimistic, but as the end reveals it was in fact written with concealed giggles :D)

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