A to Z of MS

blur book stack books bookshelves

You hear them each time you speak with your medical team: MS-related medical jargon can sound heavy and darken your thoughts. This list will be updated with easy to grasp terms, and if not, do not hesitate to send me a message.

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Multiple Sclerosis, fake or not

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The assumption that of the many invisible symptoms associated with MS, some can be faked – as if they’re digitally pasted on someone – is flabbergastingly prejudiced and foolish. It portrays a clear lack of understanding of what MS as a neurodegenerative illness is and what its impact is one those living with it.

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Oh, media, when will you ever learn?

Vintage typewriter

Dear Media, You should know better. It began with this article in 2017 (*) Meet the Cambridge scientist on verge of curing Multiple Sclerosis: This amazing work could literally change the world Cambridgeshire Live, June 4th, 2017 Two years later… Meet Su Metcalfe, the Cambridge scientist on the verge of curing multiple sclerosis Healthy Living Idea, […]

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About Vikings, Vitamin D and multiple sclerosis!

Girl in the sun

So, how do you feel about your MS? The biggest joke of your life? A royal pain in a less magnificent backside? Or, just something to be had, whether you like it or not, and that includes the big bag of medicines and vitamins you pick up from your pharmacy every four weeks?

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Media, stop calling it a cure when it’s not even clinically trialled yet!

Finger on lips

You know it will  definitely gather income. Good for you. Rehashing unresearched claims that have yet to be clinically trialled is not OK. It is even less OK when it’s done on the backs of people who day in day out, live in hope because they want to get on with life instead of having to go on living with critical illnesses. It is a hideous way of earning some bucks.

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Heat sensitivity and multiple sclerosis: is it autumn yet?

Blurred eye

For more details on heat sensitivity Learn more about Uhthoff’s Phenomenon, Science Direct Uhthoff’s Phenomenon 125 years later – what do we know today? NCBI Uhthoff’s Phenomenon: Understanding Overheating, Healthline MS & Uhthoff’s Phenomenon: Coping with Heat Sensitivity, MyTherapy   2018 Winner Best Blog Post with ‘3443 Needles’, Blog Awards Ireland, Ashville Media Group, Dublin, […]

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The duality of MS

Woman beach

In ever memory of physical betrayal and every second of dislike of my illness, I am still intrigued by its complexities and continue to care for all its nuts and bolts.

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Body image and MS: how many selfies do you have?

Woman hiding face

in reality, people have far more important things to think about than how you, me and the rest of the world looks, and I even if you were on their radar, they’ll have forgotten about you within the next ten minutes.

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