Giving up?!

But, MS is the keeper of secrets. Not just for a day, but forever. So, rewrite your narrative, embrace its playful game of cards waiting for you to chase triumphs during times of adversity.

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Sleep… It’s what’s (not) happening!

bed bedroom blur clean

Imagine standing all dolled up at the front door, excited to go to the film you’ve been dying to see. That doesn’t do it for you? Replace ‘the film’ by ‘finally buying the boots you’ve been waiting for’ or by ‘rushing out to buy a new power tool’ to finally set up new furniture.

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How are new medicines approved in Europe?

Medicines pills tablets

If you have MS or any other chronic or acute illness, you might be dependent on pharmaceutical intervention at some stage. But, how exactly do your medicines arrive in your hands once they passed the clinical trials stage? The EMA (European Medicines Agency) own scientific committees will scientifically assess the clinical trial data. Once this […]

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Pull up your big girl panties!

On the beach

Let me count… Roughly speaking, I was diagnosed with MS about 5000 days ago. That’s one fair bit of experience under my hood, right? But… When talking to people, new or otherwise, it can be difficult telling them you’re living with an incurable neurodegenerative illness. Sometimes it feels like being in an uninterrupted car crash, minus the […]

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You retired at age what?

Old clock

So, yes, I retired at age 36,5 and it will never be what I envisioned when I moved to Ireland. I ‘ve crashed and burned, stumbled and found hope in tiny triumphs and friendships larger than life that will stand the test of time.

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Bliss

Apple autumn

I long for autumn since the first few warm days. I long to walk in Phoenix Park, kicking up fallen leaves that have been building up under large oak trees. The changing of colours in nature is invigorating, it serves as a token that life goes on, that seasons come and go, each year bringing new fragrances and new stories waiting to unfold.

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The beauty and cruelty of words

What we hold dear about putting pen to paper is the urge to create something out of nothing, quite often to slow down a fast-paced society where the purity of words have become chaotic and yearn to become meaningful and treasured again.

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Starting over

Glitter image sparkle

Sacrificing your life for a chronic illness never comes easily. You learn to compensate and decide how reliable your judgment is based on what you can put in physically, mentally and emotionally. Quite often, what lies within you is mentally infinitely stronger than anyone might realise – even yourself –  because, until that point in time, you have been at your worst already.

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MS Treatments (2018)

Doctor hospital header

List of Disease-Modifying Treatments available in 2018. If information is missing or incorrect, please send me a private message.

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Too warm for you? Heat sensitivity explained!

Girl on the beach

Summer has finally arrived and with it, comes a list of things you wished you knew before sunburn blasted your chest. Heat sensitivity is, of course, an uncomfortable sensation many people struggle with and is therefore not a symptom solely attributed to MS. The difference from other illnesses lies in how heat affects the central […]

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Happy World MS Day!

Header doctor hallway hospital

Let’s do our bit to advance research until we find a cure. and be part of the solution instead of the problem!

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What happened when you weren’t looking!

We often become too focused on the serious moments in life, yet we can learn as much about the funnier side of life with a chronic illness, or from those that show us grace in defeat. I was therefore incredibly surprised to find out that my blog was among the 10 Best Blogs of 2018 […]

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Sitemap

Book case sitemap

Home About IMSM History of MS 19th century 1900-1940 1950s 1960-1980 1990-2010 MS Explained What is MS? How MS Affects Brain Cells What causes MS? Types of MS Early signs of MS MS Symptoms Do I Have Multiple Sclerosis or Another Disease? Updated McDonald Criteria (2017) What is an MS relapse? Central Nervous System Central […]

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3443 Needles

Injection needle

This is my favourite pose. Stretched out, in an apparent hug with what could be the floor or a bed. But, do not be confused, for I am not that hung up about yoga. I wasn’t on that day, anyway. No, this rather resembles my all-time, never-changing, loudly-snoring daytime nap, and I just happen to find […]

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I am not my brain

Vintage clock with white flowers

“What’s wrong with my brain?” doesn’t automatically mean, “Is my mind, my soul therefore broken as well?”

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What singing taught me about life with MS

Black & white image singlng

It is hard to explain the following depth of reality. One morning shortly after my diagnosis, I woke up and thought, “From now on, I will wake up sick every day, and I need to accept that I will never get better again – unless a cure is found.”

That level of new normals isn’t easy. Then again, finding something black to wear while standing in front of a wardrobe filled with black clothes only, isn’t either. The same goes for the many pairs of black shoes, black rings, and necklaces.

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The day I stopped being weak

Tired person running

You never know how strong you are until being strong is the only option you have. How true is this? You lose a parent, a brother or sister, or someone else you dearly loved and yet, time goes on. Time has to go on. For your family, for yourself. Years later you realise you went […]

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Why I love advocacy (and you should too!)

No talking girl

No matter when you were diagnosed, there might be moments when you feel like screaming at the top of your lungs when symptoms take a little too long to disappear, or because people are just getting on your nerves.

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