Things that make you love and hate MS resolutions

“I must work towards a new set of ears,” I thought, blissfully unaware that getting these would be a herculean feat of biomechanical engineering. No matter how much I wished to exchange one of my senses because of bouts of noise intolerance, I had to retort to the usual, “Ah, the joys of life with MS” when laughing about another one of my MS-induced naps the following day.

Read More

Happy 2019!

Fireworks

2018 Winner Best Blog Post with ‘3443 Needles’, Blog Awards Ireland, Ashville Media Group, Dublin, Ireland ◾ Ireland Blog Awards Finalist 2014, 2015, 2017 ◾ MyTherapyApp Best MS Blog for Simplicity 2018 ◾ Everyday Health Top 10 MS Blog of 2018 ◾ Feedspot Top 50 MS Blog 2017, 2018 © Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, […]

Read More

My Christmas heroes

Christmas lights

Those who willingly and therefore as blindly as I was, kept walking beside me are the heroes in this fourteen year long tale of chronic illness, daily wretched pain and forgiveness, of daily adaptation and understanding.

Read More

Time heals, perhaps even MS

Dangling clock

As you move on in life, you will find that perhaps your diagnosis was something that needed to happen to see what is really important in life.
It is not an expensive new car, clothes, jewelry.
It’s health and acceptance, though flawed the best of times.

Read More

Winner Best Blog Post 2018!

Fireworks

Like Roy Keane’s dog Triggs, I also ponder the undeniable finiteness of life and how best to get through it unscathed.

Read More

Noise sensitivity in MS: Turn off your voice!

Vintage

If sound intolerance were a 2005 Marks & Spencer food porn ad, people would refer to it like this: “This is not just sensitivity, this is a hyperacusis noise sensitivity.”

Read More

In search of my MS Zen

Black picture woman

”Despite having my inner dialogue running into philosophical mayhem, I’ve been trying hardest to get things on paper. Sometimes it is rather difficult to grasp how unspeakably quick, indelible and distracting multiple sclerosis can become, only to disappear for a few hours before returning. As such, parameters on what I perceived to be acceptable have been reset, and my inner dialogue needs a fix as an intuitively sharp anguish took over my mindset last week.

Read More

Read More

Giving up?!

Red umbrella

But, MS is the keeper of secrets. Not just for a day, but forever. So, rewrite your narrative, embrace its playful game of cards waiting for you to chase triumphs during times of adversity.

Read More

Sleep and MS… It’s what’s (not) happening!

bed bedroom blur clean

Imagine standing all dolled up at the front door, excited to go to the film you’ve been dying to see. That doesn’t do it for you? Replace ‘the film’ by ‘finally buying the boots you’ve been waiting for’ or by ‘rushing out to buy a new power tool’ to finally set up new furniture.

Read More

How are new multiple sclerosis medicines approved?

Medicines pills tablets

If you have MS or any other chronic or acute illness, you might be dependent on pharmaceutical intervention at some stage. But, how exactly do your medicines arrive in your hands once they passed the clinical trials stage? The EMA (European Medicines Agency) own scientific committees will scientifically assess the clinical trial data. Once this […]

Read More

Pull up your big girl panties!

On the beach

Let me count… Roughly speaking, I was diagnosed with MS about 5000 days ago. That’s one fair bit of experience under my hood, right? But… When talking to people, new or otherwise, it can be difficult telling them you’re living with an incurable neurodegenerative illness. Sometimes it feels like being in an uninterrupted car crash, minus the […]

Read More

You retired at age what?

Old clock

So, yes, I retired at age 36,5 and it will never be what I envisioned when I moved to Ireland. I ‘ve crashed and burned, stumbled and found hope in tiny triumphs and friendships larger than life that will stand the test of time.

Read More

Bliss, the MS-way

Apple autumn

I long for autumn since the first few warm days. I long to walk in Phoenix Park, kicking up fallen leaves that have been building up under large oak trees. The changing of colours in nature is invigorating, it serves as a token that life goes on, that seasons come and go, each year bringing new fragrances and new stories waiting to unfold.

Read More

The beauty and cruelty of words

woman writing on a notebook beside teacup and tablet computer

What we hold dear about putting pen to paper is the urge to create something out of nothing, quite often to slow down a fast-paced society where the purity of words have become chaotic and yearn to become meaningful and treasured again.

Read More

Starting over

Clock vintage

Sacrificing your life for a chronic illness never comes easily. You learn to compensate and decide how reliable your judgment is based on what you can put in physically, mentally and emotionally. Quite often, what lies within you is mentally infinitely stronger than anyone might realise – even yourself –  because, until that point in time, you have been at your worst already.

Read More