You will survive!

To this day, 13 years post-diagnosis, I am still prone to having conscious/unconscious battles. I am past the “woe is me” period that tried to knock me sideways at first, but I still have pacing issues that lay bare any ineffectiveness I attribute to myself. We all want the opportunity to stay active human beings. Not wanting to be is foreign to my character and it quite possibly will be for as long as I live. Still studying is just one part of that action plan.

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MS News: January 2018

MRI brain scan

Your monthly MS news is back after spending a few months in the cooler. It will continue as before, with highlights, news on research and clinical trials as well as lifestyle, diet and mental and emotional health. If you found an article you want to add to this post, please let me know. Highlight! 5 […]

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The story in all of us

MS is a mere aspect, label or classification. My story is therefore not one of heroism or tragedy, satire or drama, cheap thrills or grandeur. Showing up for myself in my own life means taking responsibility for the good and the bad while also trying to achieve goals I set myself for 2018.

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The paradox of our time

(This essay appeared under the title “The Paradox of Our Age” in Words Aptly Spoken, Dr. Moorehead, 1995) The paradox of our times Is that we have taller buildings, but shorter tempers. Wider freeways, but narrower viewpoints. We spend more, but we have less. We buy more but enjoy it less. We have bigger houses, but smaller […]

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Where is my left cheek?!

Trigeminal neuralgia feels like a vicious affair, and it is still hard to know who came first, TN or MS. Being a lover of Shakespearean drama, they would tell you they arrived around the same time.

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MS, Inc.

Perhaps losing my only sibling over a decade ago recreated the perspective on life I once held. It poured resilience into a mind that required to be strengthened for the many years ahead. Hope became the antidote to being tired of always being sick and tired.

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Understanding clinical trials

A clinical trial is a research study in which volunteers receive investigational treatments under the supervision of a physician and other research professionals. These treatments are developed by pharmaceutical and biotechnology companies who select qualified physicians, also known as investigators, to conduct clinical trials to determine the benefits of investigational drugs. Clinical trials are usually […]

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United

What do you think about this Tuesday thought, “Life has too many twists and turns?” When MS is your sidekick, you certainly understand the concept of the ‘before-MS’ and ‘since-MS’ time in your life. In that brief moment between both, life as you once knew it had all but disappeared. Many wondered how to bridge […]

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The truth about Cinderella

Some days I  go through life like a half-baked version of Cinderella. There’s promise at 8 AM, but by 11 AM my fairytale book is closed until further notice. In the background, that all-important clock keeps ticking forward, but my body is in a rut: sleeping, eating, exercising, resting, more eating, more sleeping and back again. And […]

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Do I have stupid written on my forehead?

Cog fog image

Can you recall what life was like before this craziness started? Nope? Neither can I. There is a bit of mental derailing going on right now. Fatigue is back with a vengeance. I am so excellent in not sleeping well, that when I do, it’s a reason to organise a party, or rather, a pyjama […]

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Something’s on the way!

When you’re standing in the shower and you get a fab idea to write about, but can’t remember what it was 3 minutes later… Something’s in the works, and it’ll be posted here by the end of tomorrow! In the meantime, why not catch up with these… The five-second MS rant Magnetic voices MS Anxiety The […]

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The five-second MS rant

Thinking on bed image

“Oh no, what does that mean?!” “Give me a break, please. Stop being so self-aware of every little nook and cranny in your body. Stop assigning it symptoms that are self-diagnosed. Stop wanting to be sick.” “You want to feel pain? How about I lend you some trigeminal neuralgia laced with extra brain fog and […]

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Magnetic voices

Life with MS is about adaptation. What you can do, however, is listen to the voice of reason, no matter how hard it might seem. It might say that you will need time, rest, medicines, a decent medical team and a seriously good dose of positivity to go through life.

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