MS and PTSD: not all in your head

model-of-human-brain

Life with MS is an is an ever-changing intimidate tale of loss and redemption and of love and forgiveness within your relationship with yourself. Not one day should be the same, and not one minute can go lost to idle words or feelings.

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MS + single on Valentine’s Day?

adult beautiful beauty close up

You can channel your inner delightfully, dazzling diva while wearing pyjamas, dog-shaped winter socks, leg warmers and your turban hair towel.

You can drag your duvet to the living room, watch Romeo + Juliet and cry for an hour afterward because Leo died when he shouldn’t have (Damn you William Shakespeare!)

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Things that make you love and hate MS resolutions

strong-women

“I must work towards a new set of ears,” I thought, blissfully unaware that getting these would be a herculean feat of biomechanical engineering. No matter how much I wished to exchange one of my senses because of bouts of noise intolerance, I had to retort to the usual, “Ah, the joys of life with MS” when laughing about another one of my MS-induced naps the following day.

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My Christmas heroes

Christmas lights

Those who willingly and therefore as blindly as I was, kept walking beside me are the heroes in this fourteen year long tale of chronic illness, daily wretched pain and forgiveness, of daily adaptation and understanding.

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Time heals, perhaps even MS

Dangling clock

As you move on in life, you will find that perhaps your diagnosis was something that needed to happen to see what is really important in life.
It is not an expensive new car, clothes, jewelry.
It’s health and acceptance, though flawed the best of times.

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Noise sensitivity in MS: Turn off your voice!

Vintage

If sound intolerance were a 2005 Marks & Spencer food porn ad, people would refer to it like this: “This is not just sensitivity, this is a hyperacusis noise sensitivity.”

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In search of my MS Zen

Black picture woman

”Despite having my inner dialogue running into philosophical mayhem, I’ve been trying hardest to get things on paper. Sometimes it is rather difficult to grasp how unspeakably quick, indelible and distracting multiple sclerosis can become, only to disappear for a few hours before returning. As such, parameters on what I perceived to be acceptable have been reset, and my inner dialogue needs a fix as an intuitively sharp anguish took over my mindset last week.

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Giving up?!

Red umbrella

But, MS is the keeper of secrets. Not just for a day, but forever. So, rewrite your narrative, embrace its playful game of cards waiting for you to chase triumphs during times of adversity.

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Sleep and MS… It’s what’s (not) happening!

bed bedroom blur clean

Imagine standing all dolled up at the front door, excited to go to the film you’ve been dying to see. That doesn’t do it for you? Replace ‘the film’ by ‘finally buying the boots you’ve been waiting for’ or by ‘rushing out to buy a new power tool’ to finally set up new furniture.

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How are new multiple sclerosis medicines approved?

Medicines pills tablets

If you have MS or any other chronic or acute illness, you might be dependent on pharmaceutical intervention at some stage. But, how exactly do your medicines arrive in your hands once they passed the clinical trials stage? The EMA (European Medicines Agency) own scientific committees will scientifically assess the clinical trial data. Once this […]

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Pull up your big girl panties!

On the beach

Let me count… Roughly speaking, I was diagnosed with MS about 5000 days ago. That’s one fair bit of experience under my hood, right? But… When talking to people, new or otherwise, it can be difficult telling them you’re living with an incurable neurodegenerative illness. Sometimes it feels like being in an uninterrupted car crash, minus the […]

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You retired at age what?

Old clock

So, yes, I retired at age 36,5 and it will never be what I envisioned when I moved to Ireland. I ‘ve crashed and burned, stumbled and found hope in tiny triumphs and friendships larger than life that will stand the test of time.

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Bliss, the MS-way

Apple autumn

I long for autumn since the first few warm days. I long to walk in Phoenix Park, kicking up fallen leaves that have been building up under large oak trees. The changing of colours in nature is invigorating, it serves as a token that life goes on, that seasons come and go, each year bringing new fragrances and new stories waiting to unfold.

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The beauty and cruelty of words

woman writing on a notebook beside teacup and tablet computer

What we hold dear about putting pen to paper is the urge to create something out of nothing, quite often to slow down a fast-paced society where the purity of words have become chaotic and yearn to become meaningful and treasured again.

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