You know it will definitely gather income. Good for you. Rehashing unresearched claims that have yet to be clinically trialled is not OK. It is even less OK when it’s done on the backs of people who day in day out, live in hope because they want to get on with life instead of having to go on living with critical illnesses. It is a hideous way of earning some bucks.Read More
For more details on heat sensitivity Learn more about Uhthoff’s Phenomenon, Science Direct Uhthoff’s Phenomenon 125 years later – what do we know today? NCBI Uhthoff’s Phenomenon: Understanding Overheating, Healthline MS & Uhthoff’s Phenomenon: Coping with Heat Sensitivity, MyTherapy 2018 Winner Best Blog Post with ‘3443 Needles’, Blog Awards Ireland, Ashville Media Group, Dublin, […]Read More
In ever memory of physical betrayal and every second of dislike of my illness, I am still intrigued by its complexities and continue to care for all its nuts and bolts.Read More
We each tailor our own agenda on how best to adapt should this risk materialise, and in my view, the final outcome is achieved by writing, for the story writes itself, as if I am just a mere spectator while paper accepts the narrative of the illness.Read More
in reality, people have far more important things to think about than how you, me and the rest of the world looks, and I even if you were on their radar, they’ll have forgotten about you within the next ten minutes.Read More
By now, you’ve probably grown accustomed to some of my outer worldly MS symptoms like the ice-picking in my eye, the bees in my ears or the whole-body buzzing when lying down. Some girls just want to have fun. I just want to stop being so blatantly weird.Read More
Thank you for listening to whispers of fear and despair when life seemed all but lost in translation.Read More
Neurological tests are entertaining. They’re telling. Mind-boggling. Enigmatic. In brief, neuro checkups sometimes border on the gloomy, darkly lit twilight zone of your existence, especially when you get up close and personal with the MRI scans of your central nervous system – your brain and spinal cord. Both are the cause of what makes you the […]Read More
Life with MS is an is an ever-changing intimate tale of loss and redemption and of love and forgiveness within your relationship with yourself. Not one day should be the same, and not one minute can go lost to idle words or feelings.Read More
You can channel your inner delightfully, dazzling diva while wearing pyjamas, dog-shaped winter socks, leg warmers and your turban hair towel.
You can drag your duvet to the living room, watch Romeo + Juliet and cry for an hour afterward because Leo died when he shouldn’t have (Damn you William Shakespeare!)Read More
“I must work towards a new set of ears,” I thought, blissfully unaware that getting these would be a herculean feat of biomechanical engineering. No matter how much I wished to exchange one of my senses because of bouts of noise intolerance, I had to retort to the usual, “Ah, the joys of life with MS” when laughing about another one of my MS-induced naps the following day.Read More
Those who willingly and therefore as blindly as I was, kept walking beside me are the heroes in this fourteen year long tale of chronic illness, daily wretched pain and forgiveness, of daily adaptation and understanding.Read More
As you move on in life, you will find that perhaps your diagnosis was something that needed to happen to see what is really important in life.
It is not an expensive new car, clothes, jewelry.
It’s health and acceptance, though flawed the best of times.
Like Roy Keane’s dog Triggs, I also ponder the undeniable finiteness of life and how best to get through it unscathed.Read More
If sound intolerance were a 2005 Marks & Spencer food porn ad, people would refer to it like this: “This is not just sensitivity, this is a hyperacusis noise sensitivity.”Read More
”Despite having my inner dialogue running into philosophical mayhem, I’ve been trying hardest to get things on paper. Sometimes it is rather difficult to grasp how unspeakably quick, indelible and distracting multiple sclerosis can become, only to disappear for a few hours before returning. As such, parameters on what I perceived to be acceptable have been reset, and my inner dialogue needs a fix as an intuitively sharp anguish took over my mindset last week.Read More
But, MS is the keeper of secrets. Not just for a day, but forever. So, rewrite your narrative, embrace its playful game of cards waiting for you to chase triumphs during times of adversity.Read More
Imagine standing all dolled up at the front door, excited to go to the film you’ve been dying to see. That doesn’t do it for you? Replace ‘the film’ by ‘finally buying the boots you’ve been waiting for’ or by ‘rushing out to buy a new power tool’ to finally set up new furniture.Read More
If you have MS or any other chronic or acute illness, you might be dependent on pharmaceutical intervention at some stage. But, how exactly do your medicines arrive in your hands once they passed the clinical trials stage? The EMA (European Medicines Agency) own scientific committees will scientifically assess the clinical trial data. Once this […]Read More
Let me count… Roughly speaking, I was diagnosed with MS about 5000 days ago. That’s one fair bit of experience under my hood, right? But… When talking to people, new or otherwise, it can be difficult telling them you’re living with an incurable neurodegenerative illness. Sometimes it feels like being in an uninterrupted car crash, minus the […]Read More