Top 10 MS support pages on Facebook

Top 10 MS support pages on Facebook

MSI Logo

Multiple Sclerosis Ireland
@MultipleSclerosisIreland
Provides information, support and advocacy services to people with MS and their families. Learn more at Multiple Sclerosis Ireland website

 

OMS Logo

Overcoming Multiple Sclerosis
@OvercomingMS
OMS supports an evidence-based, positive diet and lifestyle program. Learn more at Overcoming MS website

 

MSUK logo

MS Society UK
@MSSociety
Our community is here for you through the highs, lows and everything in between. Learn more at UK MS Society website

 

USMS Logo

National Multiple Sclerosis Society
@nationalmssociety
Multiple sclerosis stops people from moving. Learn more at National Multiple Sclerosis Society website

 

MSHealthline logo

Multiple Sclerosis HealthCentral
@MSHealthCentral
Supportive and compassionate community that represents many points of view. Learn more at HealthCentral MS website

 

PLwMS logo

Positive Living with MS – Multiple Sclerosis
@PositiveLivingWithMs
Providing a positive place for those living with Multiple Sclerosis. Learn more at Positive Living website

 

MSnet logo

MultipleSclerosis.net
@MultipleSclerosisDotNet
Learn, share, and connect with peers and healthcare professionals. Learn more at MultipleSclerosis.net website

 

NLO logo

Multiple Sclerosis – Newlifeoutlook
@newlifeoutlook.ms
Providing valuable information, insight and support. Learn more at NewLifeOutlook website

 

MSworld logo

MSWorld
@MSWorld.Fan.Page
At MSWorld we are living each day better, TOGETHER. MSWorld has been a ‘patients helping patients’. Learn more at MS World website

 

MSinspiration logo

Multiple Sclerosis Inspiration
@MultipleSclerosisInspiration
Support page and info about MS research studies.

 

 

Is this page missing a Facebook page you like to see mentioned? Leave a comment below!

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© Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2017. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner are strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

Paper dreams

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Have you ever wondered, “What exactly is my purpose on our little shining blue ball floating around in our vast universe?”

Have you?

Congratulations, so have I!

It took me the better part of my teenage years – if not very young adult life – to get to the stage where I thought, “Yes! Eureka! Yes, I found out what I am doing here!”

Translated, it sounded more like this, “I know where I am going to live!”

Part of the master plan that had been hiding in my unconscious mind had already been set in motion, albeit drifting rebelliously between my conscious and the harder to access unconscious level, before mischievously appearing again.

Continue reading “Paper dreams”

Injecting object

[Submissive Sunday] “The needle, so needed. The fluid, water of life. Not stopping my illness progressing, but slowing down relapses. MS, as always having more than one meaning, one more way of living it.”

images

Injection needle, fridge. Taking out another pre-filled syringe to ward of future multiple sclerosis relapses.

To others? A scary thing, a daily habit they could not fathom.

To me? Now, the fluid of my life. For my life.

View original post 261 more words

MS News: April 2017

MS News: April 2017

Highlight!

  1. Canadian Study of MS-Prone Family Proves that in Rare Cases, Multiple Sclerosis is Inherited
  2. Large Family Study Strengthens Case for Inherited Multiple Sclerosis
  3. New Survey Finds Multiple Sclerosis Patients Struggle with Misdiagnosis and Invisible Symptoms

Continue reading “MS News: April 2017”

Jammed filter!

Image memory thinking
For more on memory and thinking, click on the above image (©MS Ireland)

Every so often, people say things that shouldn’t be said.

Literally.

Some things just shouldn’t.

Us humans – living, breathing, excessively addictive to social media – have to endure the result of a very selfishly applied verb.

We communicate. And not always very well.

In fact, I am sure your brain-to-mouth filter runs into trouble every so often, and you have suffered from that same technical glitch just as much as I have.

We just cannot take back our words.

Continue reading “Jammed filter!”

MS News: March 2017

MS News: March 2017

Please allow me some nepotism and introduce you to the honourable American/Irish author and my friend Trevis Gleason! He penned a fantastic, witty, humorous and moving memoir about a very unexpected MS diagnosis, ending an old and starting a new career and fulfilling his dream of living in Ireland. You can buy his book here:

  1. Chef Interrupted: Discovering Life’s Second Course in Ireland with Multiple Sclerosis

Highlight still on American Healthcare Act, the replacement plan for the Patient Protection and Affordable Care Act (ACA) released by Congress on March 6, 2017

  1. Society Releases Statement on American Health Care Act
  2. National MS Society Urges Lawmakers to Oppose American Health Care Act
  3. Reducing Out-of-Pocket Cost Barriers to Specialty Drug Use Under Medicare Part D: Addressing
  4. Researchers find patients’ annual financial burden under Medicare Part D is ‘too much too soon’

New book by the honourable American/Irish author and friend Trevis Gleason!

  1. Chef Interrupted: Discovering Life’s Second Course in Ireland with Multiple Sclerosis

Highlight!

  1. Blood Diagnostic Test for Multiple Sclerosis to be Released in May 2017

Continue reading “MS News: March 2017”

[Throwback Thursday] Balancing life and a chronic illness

Oh, you can bet I am willing, I am usually more than willing. When physical restraints curb your potential, you realise that you want so more from your own life, and out of your own reality. Life is moving forward outside your medically induced world, and you feel annoyed when healthy people don’t realise the worth of their bodies, their unused potential.

It simply reminds you that being chronically ill sucks.

It’s energy being depleted in all the wrong places. There is no uptake to being ill. There is no room for maneuvering when you’re faced with an illness that will -quite literally- be there until you draw your last breath. Do take it from someone who’s already stared death in the face because of it; it is so not all it’s cracked up to be, honey.

To read the whole post, please go to: Balancing life and a chronic illness

©WVE and Ireland, Multiple Sclerosis & Me, 2011-2017. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner are strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

UNCRPD, Ireland’s ten-year moral outrage

UNCRPD, Ireland’s ten-year moral outrage

Ad nauseam.

Ah yes, you know the term.

In proper Wikipedia language, it reads “An argument or other discussion that has continued ‘to [the point of] nausea.” In Irish slang, “We are bloody well tired of talking or hearing about it.”

And that, dear reader, we are. Severely sick and tired of hearing that the Irish government will ratify the UNCRPD by a specified date, only to find out that they very silently forgot to live by that promise. Needless to say, having the gift of the gab in Dáil Éireann is an advantage, yet those we elected to represent our very needs refuse to use that gift when it matters most. Continue reading “UNCRPD, Ireland’s ten-year moral outrage”

0% responsibility – 100% accountability

1ebc241f7cb451636a9ff3ccedcf4945Imagine this… Some time ago you were finally able to give answers to these two questions, “Who am I, and what is my purpose in life?” While admitting the questions were rather philosophical as well as personal, you are suddenly thrown back to square one, and you once again want to find out who and what.

Ouch.

Like most people, my answers came and went as every meaningful tide in life left a new imprint on my senses. Continue reading “0% responsibility – 100% accountability”

MS News: February 2017

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Highlight! What if Obamacare (Affordable Care Act) is repealed?

  1. Big Pharma’s offer to Trump: Discounts when drugs don’t work
  2. Advanced Curriculum for Multiple Sclerosis ’17: ACTRIMS Forum
  3. Patients Value Obamacare More Than General Public and Oppose Its Repeal, Survey Says
  4. Patient groups fear Obamacare repeal could undo protections for sickest Americans
  5. Most with Chronic Conditions Find Affordable Care Act Beneficial, Poll Shows
  6. Travel ban has serious medical consequences (Opinion)

Continue reading “MS News: February 2017”

Single and chronically ill on Valentine’s Day?

Valentine'sDay Image

So, you’re single.

And chronically ill.

On Valentine’s Day.

But, what the heck, you don’t care.

You don’t care because you’re an alpha-woman even when you sometimes feel like a z-woman… zonked out on meds on the couch.

You don’t care because, seriously, you don’t have to go shopping to find sexy lingerie that’ll only cut off your air supply while wearing it.

You don’t care because you know that the only thing you can find in a chocolate box is a raised BMI.

You don’t care because you don’t thrive on baggage left behind by old flames. Continue reading “Single and chronically ill on Valentine’s Day?”

UNCRPD in Ireland – begging for change

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The last few months, I’ve read and watched more political news about Donald Trump than I could stomach. As a result, shortcut rambling and biased vernacular on Twitter now linger in my own vocabulary when I try to write.

While it is true that you cannot bring about transformation by using blank expressions or hyped-up buzzwords that portray unfairness, ignorance and baseless conjecture, there is a limit to what is morally and personally allowed. It’s fair to say, so, that I have never been so amazed and shocked by any politician in such a short time frame. More annoyingly, because I love psychology so much, I keep going back because I want to know more about Trump’s state of mind.

Continue reading “UNCRPD in Ireland – begging for change”