Category: MS

MS, Inc.

Perhaps losing my only sibling over a decade ago recreated the perspective on life I once held. It poured resilience into a mind that required to be strengthened for the many years ahead. Hope became the antidote to being tired of always being sick and tired.

Understanding clinical trials

A clinical trial is a research study in which volunteers receive investigational treatments under the supervision of a physician and other research professionals. These treatments are developed by pharmaceutical and biotechnology companies who select qualified physicians, also known as investigators, to conduct clinical trials to determine the benefits of investigational drugs. Clinical trials are usually conducted in three phases (I, II, III). Only a … Read More Understanding clinical trials

Central Nervous System (videos)

United

What do you think about this Tuesday thought, “Life has too many twists and turns?” When MS is your sidekick, you certainly understand the concept of the ‘before-MS’ and ‘since-MS’ time in your life. In that brief moment between both, life as you once knew it had all but disappeared. Many wondered how to bridge that gap. Some failed. More prevailed.

The truth about Cinderella

Some days I  go through life like a half-baked version of Cinderella. There’s promise at 8 AM, but by 11 AM my fairytale book is closed until further notice. In the background, that all-important clock keeps ticking forward, but my body is in a rut: sleeping, eating, exercising, resting, more eating, more sleeping and back again. And that Cinderella shoe? Taken by someone else altogether. Very … Read More The truth about Cinderella

Do I have stupid written on my forehead?

Can you recall what life was like before this craziness started? Nope? Neither can I. There is a bit of mental derailing going on right now. Fatigue is back with a vengeance. I am so excellent in not sleeping well, that when I do, it’s a reason to organise a party, or rather, a pyjama gala. Sponsored by MS. And it’s undoubtedly impacting my … Read More Do I have stupid written on my forehead?

The five-second MS rant

In technical terms, there is ‘cross talk’ between nerve fibres that carry sensations such as touch and vibration to the brain and those that carry sharp pain. In MS, this cross talk is caused by loss of myelin – fatty substance that covers nerve fibres – on the trigeminal nerve. The damaged nerves react to touch sensations and send incorrect pain signals to the brain.

Magnetic voices

Life with MS is about adaptation. What you can do, however, is listen to the voice of reason, no matter how hard it might seem. It might say that you will need time, rest, medicines, a decent medical team and a seriously good dose of positivity to go through life.

15 Essential MS Websites (2017)

  Barts MS Blog Multiple Sclerosis on Neurology Times MS Trust Shift MS National Multiple Sclerosis Society (US) Multiple Sclerosis Association of America Multiple Sclerosis Research News Multiple Sclerosis News Today MedMerits: Multiple Sclerosis Center Healthline, Understanding Multiple Sclerosis Multiple Sclerosis Society (UK) The MS Society of Ireland MultipleSclerosis.net Medscape Multiple Sclerosis Very well: Multiple Sclerosis © Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis … Read More 15 Essential MS Websites (2017)

20 Best Personal Blogs about MS (2017)

Personal blogs are a great way to get to see what is hiding behind the mask of life with MS. While each person with MS is different, writers often connect with readers on a shared human level, away from hospitals, neurologists and other physicians. These are some of the best personal blogs in 2017, written by real people with real multiple sclerosis issues. Positive … Read More 20 Best Personal Blogs about MS (2017)

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