“Oh, you can bet I am willing, I am usually more than willing. When physical restraints curb your potential, you realise that you want so more from your own life, and out of your own reality. Life is moving forward outside your medically induced world, and you feel annoyed when healthy people don’t realise the worth of their bodies, their unused potential.
It simply reminds you that being chronically ill sucks.
It’s energy being depleted in all the wrong places. There is no uptake to being ill. There is no room for maneuvering when you’re faced with an illness that will -quite literally- be there until you draw your last breath. Do take it from someone who’s already stared death in the face because of it; it is so not all it’s cracked up to be, honey.“
“Life is 10% what happens to you and 90% how you react to it.” (Charles Swindoll)
If you’re running behind on making a few new year’s resolutions, or perhaps call them ‘new year’s illusions’ by now instead, all is not lost. There are small things you can work on every day of the year.
Given its absurd sense of unpredictability, life with MS is challenging at the best of times. Anything turbulent added to it, and it soon becomes a slalom course with so many twists and turns that each one seems icier than the ones before. Continue reading Let’s be frank
The WordPress.com statistics monkeys prepared a 2015 annual report for this blog.
With a total of 22,599 views from 13,765 visitors in 137 countries in 2015 and with 1,857 followers so far, I cannot be any happier. Writing and posting has been slow the last few months, but I will be back soon enough with new, hopefully inspiring and helpful content.
Thank you each and everyone of you who found your way to my writing, and please do let me know if you have any tips or questions on email@example.com
Here’s an excerpt:
The concert hall at the Sydney Opera House holds 2,700 people. This blog was viewed about 22,000 times in 2015. If it were a concert at Sydney Opera House, it would take about 8 sold-out performances for that many people to see it.
Another year older today, and another year dafter too.
Most definitely away with the faeries.
Never one to take myself too seriously unless needed, I am taking my new number in my stride. Having family and friends I love and who in return, seem to like me enough to give me a place in their own busy lives, is all I need to know.
Asked how I ended up in Dublin, celebrating my birthday in Ireland for a 13th consecutive year, is a recurring question. The answer? The bonkers idea since age 15ish, that life in Ireland was ‘it’, a dream so titanic in size I was afraid it might never work out. Continue reading Older, and dafter too!
With World MS Day 2015 now gone for another 365 days, I shared a few words yesterday about one of the things I hardly ever talk about in regards to my own MS: the day I woke up without sight in my left eye, and the subsequent fear of permanently losing my eyesight.
We use our eyes to learn, navigate, assess and appreciate. They help our brain understand our environment and sometimes, as peculiar as it sounds, we use them to listen. Continue reading Eyes of sorrow
‘Hypochondria? It’s the only disease I haven’t met yet.’ One of the easier jokes I can actually remember as I simply don’t do can’t remember long ones.
MS? Awkward, puzzling, easier said than done, and the type of illness that carries this tagline, “The illness is mine, but the tragedy theirs,” when asked how your family feels about your condition. Buzzwords that don’t exactly calm down an overactive mind.
Any illness is unwelcome, that much we can agree on. MS can strike in so many different ways that your life often resembles a war zone. When I entered the MS academy, I read the small print and knew it wouldn’t be a 365-day holiday. But, if one good thing has come from being diagnosed ten years ago, it’s the perception that no matter what happens, life goes on.
When asked what a review of my life would look like, I’d inevitably request that poetry be added to Smile, by Charlie Chaplin; classical music to moments of newly found strength and that slapstick moments appear in the Odd News paragraph. Neither would offend my sensibilities, as I can pack a good few things in that large, worn suitcase of a weary dreamer, in my mind that is a lost and found lover of the arts, and of course, of books, libraries and any kind of Psychology. Continue reading Books, Ireland and a few blanks
Often, our blogs have taglines. But what if humans did, too? What would your tagline be?
When some of my blogging friends urgently emailed me this question as part of a Daily Post, I didn’t need to think of answers myself. Friends, as great friends do, always have your best interest at heart. Sarcastic interests, even.
I have always imagined that Paradise
will be a kind of library.
(Jorge Luis Borges)
If this yesterday’s long list of Firefox bookmarks was anything to go by, you’d have taken me for a very active library assistant waiting impatiently to sort non-fiction books according to the Dewey Classification again. It left me mesmerising out loud that you can take the girl out of the library, but you can’t take the library out of the girl. After all, I was destined for librarianship in some shape or form from early in life. I always felt that a child with a book can achieve more than an adult with a gun.
And that’s what I ended up doing: studying library sciences. Via word of mouth I then moved to different libraries to update and integrate their manual indexes, lists and catalogues with electronic ones. Often Herculean at best, since each library had thousands of books, CDs, videos, newspapers and other items waiting to be added. Continue reading Book lovers, unite!