Balancing life and a chronic illness

Oh, you can bet I am willing, I am usually more than willing. When physical restraints curb your potential, you realise that you want so more from your own life, and out of your own reality. Life is moving forward outside your medically induced world, and you feel annoyed when healthy people don’t realise the worth of their bodies, their unused potential. It simply reminds you that being chronically ill sucks.

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Let’s be frank

“Too many times we like to blame others for our own problems. Situations and people create our experiences, but these situations and people don’t create you. Understanding our past helps us to distinguish why we hold on and repeat self-destructive behaviours.
When we feel anger, resentment and other non-positive emotions, the only one we annoy is ourselves. So, choose taking ownership over blaming others, happiness over negativity, a new way of life over just remaining in a rut.”

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Whát?! 2015 in review!

The WordPress.com statistics monkeys prepared a 2015 annual report for this blog. With a total of 22,599 views from 13,765 visitors in 137 countries in 2015 and with 1,857 followers so far, I cannot be any happier. Writing and posting has been slow the last few months, but I will be back soon enough with […]

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Older, and dafter too!

Another year older today, and another year dafter too. Kookier. Most definitely away with the faeries. Never one to take myself too seriously unless needed, I am taking my new number in my stride. Having family and friends I love and who in return, seem to like me enough to give me a place in […]

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Eyes of sorrow

“I am utterly afraid of losing my eyesight completely. The pleasure I assign to them is felt every minute of every day. Reading a book, watching the sun set behind the mountains, seeing a flower open during the day, catching those few rays of sunshine in grey clouds… I am often in awe of the images my eyes capture and send to my brain. These images tease and taunt, are overjoyed or full of sorrow, want more or have enough.”

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Hope cures old wounds

“The illness is mine, but the tragedy theirs,” when asked how my family feels about my condition. When I entered the MS academy, I read the small print and knew it wouldn’t be a 365-day holiday. However, I tolerate MS. There’s no resentment or blame, no more heartache, guilt or doubt. I find solace in seeing science produce more and better research results and medication. Clinical trials are moving forward at a pace that will eventually lead to an easier life with an illness that is as fickle as MS.”

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Books, Ireland and a few blanks

“To see the real Ireland, the sea, the ocean, the mountains, the patches of green under constantly changing shadows, is to know its people. Despite trying to give Ireland the best of both worlds, it ended up taking up part of me. Lex talionis not applied, I abide by its spirit and ever-welcoming mind.”

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Oh, yes, the Blog Awards irony!

Oh the irony! That pure, untainted irony that just sits there grimacing at my lack of energy and overabundance of trigeminal neuralgia, today of all days! “What?” you ask. You who spends time with me, you know that I often live with sarcasm – I’m still DSF, a Delightfully Sarcastic Female after all. Not only […]

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The first day

Change is good. So they say, anyway. I totally agree, in fact, I welcome change with open arms. Afraid of new challenges? No, not me. Because change is good.

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Evil resolutions

Ah, that dreaded question! That thing we all say we will do but never actually make it to the finish line! We’re all creators of almost-standard replies that sound like “This year is the year I will lose 50 pounds of weight!” Or “From January 1st I will stop smoking for good!”

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Misty Monday

Right now I’m in from some kind of self-inflicted, being-stuck-syndrome. Thankfully, it only happens a few times a year. I am gasping for air and checking if I’m still alive every 10 seconds. It’s stifling my bones and putting my knickers in a twist. So I am listening to Lady Gaga. To lift my spirits.

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MS Ireland National Meeting Day 2013

Last September, I was invited by the Irish MS Society to take part in a panel discussion at their National Day in Galway. I happily accepted because we all know that I never say no to having a good chat. The topic of the National Day was ‘being active and interactive’, and the panel discussion […]

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The Spoon Theory

Today I was reminded of a story I heard of a few years ago about a girl who lives with lupus and who tries to explain to a friend what life with a chronic illness, especially fatigue, is like. It is told in a very powerful and imaginative way that will hopefully shed a better […]

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Slowing down

A friend sent me this picture this evening as a reminder that I need to take a step back from writing, reading, advocating and generally helping others so I can “get better” again. We all know people with MS do not “get better” but I understood his reasoning… I need to sleep more,  relax more […]

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International Trigeminal Neuralgia Awareness Day

International Trigeminal Neuralgia Awareness Day on October 7th 2013: Today is the first Trigeminal Neuralgia Awareness Day, please watch this video and sign the petition to get the World Health Organisation to add this to their ‘Health Topics’ lists to get more research and funding into this debilitating symptom: http://www.ipetitions.com/petition/trigeminal-neuralgia-awareness-day/ http://www.tnnme.com/ ©Willeke Van Eeckhoutte and […]

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Trigeminal Neuralgia Awareness Day

Tomorrow is the first Trigeminal Neuralgia Awareness Day, focused on bringing awareness about facial pain disorders. This year I have gone through severe TN attacks myself and I therefore want to spread awareness about Trigeminal Neuralgia, also called “the suicide disease” because of the severity of pain experienced. Please check out this video and these […]

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So many books, so little time!

Yesterday morning – rain, wind, a slight chill in the air – I walked totally wrecked and at snail pace towards the bookshop. Voucher in hand, lots of titles written down on paper just in case my memory checks out on me again. For a while now I had been looking at certain books, longing […]

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MS News: September 2013

Just because multiple sclerosis too often has a negative undertone, here is some good news that was published online lately! Gene discovery! Gene discovery is major step towards finding cure for multiple sclerosis, researchers believe. Brand new helmet! Harding, the Minnesota Wild backup best known as the winner of the 2013 Masterton Trophy for his […]

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Perfectionism

Banjaxed, tired high and wrecked. That’s how yesterday unfolded. After being up till 3.30am writing, I managed to sleep only 3h. I was unable to sleep, and as a result, I was going over the things I still needed to do before Saturday’s National MS Day in Galway. One of the topics of the day […]

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Sleep: a time-consuming commodity

Shoulders back, head held high. Striving to soldier on, wanting to do more. Body says ‘no’, mind perhaps too. This morning I ran into my leading enemy. Not the one I declared war to over some silly misunderstanding when I was 8, nor the one who swore she would never talk to me again when […]

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