20 Best Personal Blogs about MS

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Personal blogs are a great way to get to see what is hiding behind the mask of life with MS. While each person with MS is different, writers often connect with readers on a shared human level, away from hospitals, neurologists and other physicians. These are some of the best personal blogs in 2017, written […]

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💋 Kiss Goodbye to MS 2017 💋

I agree it has been fairly quiet here. A lot has happened the past few months which required the usual RRS, the almighty Rest, Relaxation, and Sleep. New things are still taking shape, so do hang around or drop me an email. 💋💋💋 Pucker up in the meantime in February! Go RED to KISS GOODBYE […]

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Volunteering, a worthy cause

“In fact, for anyone interested in volunteering, research shows it can be beneficial in improving mood, self-esteem and quality of life, and in reducing stress, pain and depression. It also shows that ill people who volunteer, become better at managing their own illness in turn and volunteering can strengthen their immune system.”

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Irish public transport: access all areas?

“At this stage, I thought “Do I really have to walk with my coffin under my arm to get a seat when I’m physically leaning on a walking stick while holding the handrail as if it was my best friend?””

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EMSP Spring Conference 2014, Dublin

“For those reasons, the European MS Platform will host its Spring Conference in Ireland on the 8th and the 9th of May in the Gibson Hotel, Dublin. The theme of this year’s conference is “Care where it counts – in the journey with MS.””

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Meet your new MS Ireland writer!

“It has been a bit of a hectic, but a great time to write lately. Two bits of fantastic news came my way in regards to my writing, and I’ve been over the moon since.”

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But nudging isn’t enough

“I spend half my time comforting the afflicted, and the other half afflicting the comfortable.” (Wess Stafford) “If you’re afraid to defend your convictions because you might get your ass kicked for it, you’re not really fit to advocate for them.” (James Carlos Blake) “But nudging isn’t enough.” (Jacqueline Novogratz) “Never be afraid to raise […]

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World MS Day 2014

For more on World MS Day, please visit http://www.worldmsday.org/ This year’s tag-line is “One day…” where people with MS can add access-related mottos, questions and ideas to. Access is still a very important issue that needs more research, adaptation, laws, understanding, support and elimination of barriers before people with multiple sclerosis can lead a totally […]

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MS Ireland National Meeting Day 2013

Last September, I was invited by the Irish MS Society to take part in a panel discussion at their National Day in Galway. I happily accepted because we all know that I never say no to having a good chat. The topic of the National Day was ‘being active and interactive’, and the panel discussion […]

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The right to die (updated)

“In the end, the truly sad thing is courts denying people the right to live their own life and deal with death when someone is so obviously tormented. Sanctity of life is a personal matter, what you or I see in this is not up to a court to decide. Not now, not ever.”

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Being active online

It’s two days after travelling 230km west for MS Ireland’s National Meeting Day in Galway, Ireland. It was a fantastic day, and I learned a lot, but it was just as great being able to share information on how to be interactive when you have a mountain of free time when you’re stuck at home. […]

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Being active

Last week I received an invitation to take part in the 2013 National Meeting Day panel discussion on September 28th by the MS Society of Ireland. Needlessly, I accepted straight away as ‘Being Active and Interactive’ is something that lies close to my heart. If you’ve been part of my blogging community for a while, […]

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The right to die

Suicide law in Ireland has been a hot topic recently. Marie Fleming, a multiple sclerosis patient in the later stages of the illness, is seeking the right to commit suicide with the help of her long-term partner Tom Curran. She does not want her partner receiving criminal charges for assisting her in her dying wish, […]

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MS Awareness Week 2013

MS Awareness Week from Monday, March 11 2013 to Sunday, March 17th 2013. Tell us why you connect on: http://www.msconnection.org/ © Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2013. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, […]

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The sorry state of neurology in Ireland

On Tuesday evening, I received a late invite to join a lobby group of the NAI (Neurological Alliance of Ireland) and the Irish MS Society to protest in- and outside Leinster House, the seat of the Irish government. I was quite happy to do so, because, after being an MS Society spokesperson last year relating […]

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Gilenya in Ireland: Yes!

People in Ireland who have multiple sclerosis will finally be able to receive Gilenya from their neurologists! The HSE’s temporary agreement from June 19th 2012 between the Department of Health and the Irish Pharmaceutical Healthcare Association also revealed €20 million savings will be reached by the association. For more, please read http://www.irishtimes.com/newspaper/ireland/2012/0619/1224318195781.html This is absolutely […]

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Gilenya in Ireland: Yes!

People in Ireland who have multiple sclerosis will finally be able to receive Gilenya from their neurologists! The HSE’s temporary agreement from June 19th 2012 between the Department of Health and the Irish Pharmaceutical Healthcare Association also revealed €20 million savings will be reached by the association. For more, please continue reading here. This is […]

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Gilenya in Ireland, part 2

It’s been a tumultuous week. I didn’t win the lottery or meet my knight in shining armour, but I had my MS/neurological check-up in one of Dublin’s biggest hospitals. It created ripples of emotions, questions and very few answers and as expected, Copaxone will remain my disease modifying drug (DMD) for the next few… hhmm… […]

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Gilenya in Ireland… or not?

Looking through the window and wondering when and how it all began… Did it creep up on me or did it just hit me with a ton of bricks? Honestly? I think I know when it all started, but then again, there have been past flare-ups or exacerbations long before that, even if I didn’t […]

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