Defined by myself

“As you can tell, I have lots that strengthens me and drives me forward. I also have (dis)abilities: severe bouts of pain and fatigue, which I bent into a positive writing tool for others to lean on. My limitations serve as other people’s motivation. Their motivation became my inspiration.”

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The first day

Change is good. So they say, anyway. I totally agree, in fact, I welcome change with open arms. Afraid of new challenges? No, not me. Because change is good.

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Liebster Award! (no. 4)

Here is the other Liebster Award that was sitting here idly without being forwarded. Tamie’s Realm kindly nominated me and needless to say, I am very happy about it! As always, nominations – which are winners in WordPress blog terminology – need to follow a few steps when passing on the award. Here are the […]

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30 Things about My Invisible Illness You May Not Know

I was sent this list after National Invisible Illness Week ended and asked if I wanted to write about it either way, so here are my answers: 1. The illness I live with is: Multiple sclerosis, the house guest that ends up on your doorstep, invites himself in and never leaves again. 2. I was […]

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Five-year plan

Bad tidings always happen when you least expect it. Your plans for tonight, next week or the following year get punched right in the stomach and you have to regroup. Not only does rearranging your life involve more people than just yourself; your family, friends and colleagues need to find out where you and your […]

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You never know how strong you are…

One of the most emotional journeys you could go on, is meeting yourself along the road of a diagnosis you never wanted to happen. It will make you, shape you and perhaps take you somewhere you don’t want to go, but for now, you have to. You lose a parent, a brother or sister, or […]

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The road well traveled

It’s always nice when people see positive changes in you, especially when they took a long time to manifest. A famous quote goes that “happiness is a journey, not a destination” and there is definitely some truth in that. Despite a few minor setbacks on a health level, I’ve sailed through my main illness this […]

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Captain Jack is back!

Oh yes he is… or rather: she is! Or I am… With quite a captain-look. Black eye patch hiding an eye so desperate to jump out of its socket and an eye that is telling me to stay away from reading, writing and watching television. Hhmm… somehow that is quite hard to do in this […]

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Letting go

Life seems like a joke, out to get you when you least expect it. People disappear from your life, but it’s not until after they’re gone that you realise how much you liked being around them. Or, you understand what being truly happy means because you’ve known absolute sadness. Or you start appreciating silence because […]

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The stalker called MS

In my job I often had to do “root cause analysis” assessments on what went wrong with a certain account and how we could “cure” it again. I miss the term “root cause analysis” and I thought I’d do a one on myself, or my life. What the heck, it’s not like I have anything […]

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Welcome to the book fetish club!

“There are worse crimes than burning books. One of them is not reading them.” (Joseph Brodsky) There’s no certainty in life anymore. You can lose your job… just like that; you can be so stressed your heart starts beating much too fast or you can end up in fights even when you tried so hard […]

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Dublin: a state of mind

‘Dublin is as much a state of mind as it is a city’ Tom MacDonagh   It is, that I can tell you for sure. Dublin has a way of getting under your skin. In a good way and in a lesser way. Dublin is Dublin is Dublin, but sadly Irishness is disappearing from the […]

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That daily fight

Sometimes it seems that the hardest battles you will ever have to fight will be the battles with yourself. You strive to get through hours of hard grinding for upcoming exams, or you want to get fit after Christmas and New Year’s parties. We’ve all been there, and the older you get and the harder […]

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Life begins at the end of your comfort zone

Sometimes I just don’t feel like talking about what goes on mentally or physically. Not being able to sleep properly doesn’t do much good either, so writing about everything that has been ruling my day, was rather hard to do. Having MS is no mean feat… If your MS is anything like mine, then I’m […]

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MS fatigue… the invisible monster

MS fatigue… The most common, yet most difficult to detect a symptom in multiple sclerosis. Aside from feeling exhausted, having to explain people over and over how different it is to normal tiredness, you often get a stigma assigned of “yeah, yeah, you’re just being lazy” or “sure, now keep walking, it’s probably not that […]

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Why Ireland?

People often ask me: “Why Ireland?” And tongue-in-cheek, I think, “Do you have a day or two so I can explain?” It goes back years, if not decades. I remember as a kid in the library under our apartment, how I traveled through Ireland by sitting down and watching pictures in big books on Ireland. […]

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