You will survive!

To this day, 13 years post-diagnosis, I am still prone to having conscious/unconscious battles. I am past the “woe is me” period that tried to knock me sideways at first, but I still have pacing issues that lay bare any ineffectiveness I attribute to myself. We all want the opportunity to stay active human beings. Not wanting to be is foreign to my character and it quite possibly will be for as long as I live. Still studying is just one part of that action plan.

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UNCRPD, Ireland’s ten-year moral outrage

Having a neurodegenerative illness that cannot be cured has given me the best gift I could ever ask for, strength and meeting the most inspirational and brightest people with disabilities in Ireland and abroad. Yes, they might “be different” in the eyes of many, but they showed me that not everything in life has a price or a tag. They taught me that disability is about misinterpreted ability because they help other people with or without disabilities within their communities in a time when their government shows signs of deliberate discrimination.

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UNCRPD in Ireland – begging for change

Over the years, many extraordinary, inspiring people with disabilities have shown how they have rocked the world in their unique way. What the likes of Trump might regard as incompetence, I have seen extremely able, courageous people who have raised the bar not only for themselves but for others as well. They are living proof that having a disability is not the end of the road. There is, in fact, a whole world ahead of you. It might be good to remember these strong words from Michelle Obama, “When they go low, we go high.”

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Hell is other people

“The best lesson I ever taught myself was that “What you think, you become.” I refused to let being unhappy define me or let it shape my mindset for the rest of my life. In gaining happiness and trust again, I also learned to anticipate the outcome of whatever I decided in life. After all, happiness, hope and trust are 100% up to you, and you alone.”

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Disability rights in Ireland, 3 years later

“What’s even more bizarre, in November 2012, Ireland successfully campaigned for election to the Human Rights Council, yet it is still to ratify a convention that states that the rights of people with disabilities must be upheld. As a result, human rights are good for some in Ireland, but not for all. Oh, the irony of a health minister talking about inclusion.”

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Disable Inequality

It’s been rather quiet down here. The past four to five months, I’ve been involved in disability rights campaigns and had a long much-needed Christmas and New Year’s break. I’m now back to passive campaigning in some form or another while having the flu… it’s never boring in MS-land. With the Irish election campaign in […]

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Depression?

“There is indeed no shame in being depressed. It can happen to any of us, for any reason and at any time. Nobody is protected from those deep, dark clouds in your mind. Inspired by my friend’s words and strength, I hope to keep the circle of hope for better days going. When all is said and done, let’s be the heroes of our own darkest of days.”

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Medical Websites

Cleveland Clinic eMedicine Health Everyday Health Johns Hopkins Medicine Mayo Clinic MedlinePlus WebMD Updated: September 8th, 2017 © Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2017. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, […]

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The Spoon Theory

Today I was reminded of a story I heard of a few years ago about a girl who lives with lupus and who tries to explain to a friend what life with a chronic illness, especially fatigue, is like. It is told in a very powerful and imaginative way that will hopefully shed a better […]

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Slowing down

A friend sent me this picture this evening as a reminder that I need to take a step back from writing, reading, advocating and generally helping others so I can “get better” again. We all know people with MS do not “get better” but I understood his reasoning… I need to sleep more,  relax more […]

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Disability rights in Ireland

October 16th 2013 is Blog Action Day, dedicated to human rights. Bloggers in 126 countries are writing about things that matter, like education for everyone, healthcare for each and every person on this planet and many, many more human right subjects. After yesterday’s announcement of Budget 2014 by the Irish government, I clearly see what […]

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Being active

Last week I received an invitation to take part in the 2013 National Meeting Day panel discussion on September 28th by the MS Society of Ireland. Needlessly, I accepted straight away as ‘Being Active and Interactive’ is something that lies close to my heart. If you’ve been part of my blogging community for a while, […]

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UNCRPD – The Right on Participation in Political and Public Life

It has been a great, uplifting two weeks. Busy, yes, but it was also about self-analysis and giving back. If I remember well – as you know my memories have a short lifespan – it was all about life with MS. I finally received meds for trigeminal neuralgia, aka the ‘suicide disease’ last week. As […]

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UNCRPD – Getting Ready to Ratify (2)

Like mentioned last Friday, I went to a conference on the hopefully soon-to-be ratified UN Convention on the Rights of Persons with Disabilities (UNCRPD) and this Friday, I will attend a second conference about this. Before I received both invitations, I was unaware of the CRPD. My first thought was “Oh I thought there were […]

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