Category: Health

UNCRPD, Ireland’s ten-year moral outrage

Having a neurodegenerative illness that cannot be cured has given me the best gift I could ever ask for, strength and meeting the most inspirational and brightest people with disabilities in Ireland and abroad. Yes, they might “be different” in the eyes of many, but they showed me that not everything in life has a price or a tag. They taught me that disability is about misinterpreted ability because they help other people with or without disabilities within their communities in a time when their government shows signs of deliberate discrimination.

UNCRPD in Ireland – begging for change

Over the years, many extraordinary, inspiring people with disabilities have shown how they have rocked the world in their unique way. What the likes of Trump might regard as incompetence, I have seen extremely able, courageous people who have raised the bar not only for themselves but for others as well. They are living proof that having a disability is not the end of the road. There is, in fact, a whole world ahead of you. It might be good to remember these strong words from Michelle Obama, “When they go low, we go high.”

Hell is other people

“The best lesson I ever taught myself was that “What you think, you become.” I refused to let being unhappy define me or let it shape my mindset for the rest of my life. In gaining happiness and trust again, I also learned to anticipate the outcome of whatever I decided in life. After all, happiness, hope and trust are 100% up to you, and you alone.”

Disability rights in Ireland, 3 years later

“What’s even more bizarre, in November 2012, Ireland successfully campaigned for election to the Human Rights Council, yet it is still to ratify a convention that states that the rights of people with disabilities must be upheld. As a result, human rights are good for some in Ireland, but not for all. Oh, the irony of a health minister talking about inclusion.”

Disable Inequality

It’s been rather quiet down here. The past four to five months, I’ve been involved in disability rights campaigns and had a long much-needed Christmas and New Year’s break. I’m now back to passive campaigning in some form or another while having the flu… it’s never boring in MS-land. With the Irish election campaign in full swing, it’s difficult combining high-powered fatigue issues and … Read More Disable Inequality

Depression?

“There is indeed no shame in being depressed. It can happen to any of us, for any reason and at any time. Nobody is protected from those deep, dark clouds in your mind. Inspired by my friend’s words and strength, I hope to keep the circle of hope for better days going. When all is said and done, let’s be the heroes of our own darkest of days.”

Medical Websites

Cleveland Clinic eMedicine Health Everyday Health Johns Hopkins Medicine Mayo Clinic MedlinePlus WebMD Updated: September 8th, 2017 © Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2017. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to … Read More Medical Websites

The Spoon Theory

Today I was reminded of a story I heard of a few years ago about a girl who lives with lupus and who tries to explain to a friend what life with a chronic illness, especially fatigue, is like. It is told in a very powerful and imaginative way that will hopefully shed a better light on how fatigue affects people living with MS, … Read More The Spoon Theory

Slowing down

A friend sent me this picture this evening as a reminder that I need to take a step back from writing, reading, advocating and generally helping others so I can “get better” again. We all know people with MS do not “get better” but I understood his reasoning… I need to sleep more,  relax more and stop running around like a crazy chick (also … Read More Slowing down

Disability rights in Ireland

October 16th 2013 is Blog Action Day, dedicated to human rights. Bloggers in 126 countries are writing about things that matter, like education for everyone, healthcare for each and every person on this planet and many, many more human right subjects. After yesterday’s announcement of Budget 2014 by the Irish government, I clearly see what I need and want to address with my post … Read More Disability rights in Ireland

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