Sleep and MS… It’s what’s (not) happening!

bed bedroom blur clean

Imagine standing all dolled up at the front door, excited to go to the film you’ve been dying to see. That doesn’t do it for you? Replace ‘the film’ by ‘finally buying the boots you’ve been waiting for’ or by ‘rushing out to buy a new power tool’ to finally set up new furniture.

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Oh my god, I am (so not) dying!

Life with MS can be awkward. It can be puzzling. It is unquestionably easier said than done. It’s the little things that are happening inside your central nervous system that can make you stumble as if your body reinvents and transforms itself without your consent as if the ‘old’ you is suddenly not good enough anymore.

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10 ‘Little rebel, me’ mistakes

Are you a list person? I am, that’s a given. After wasting time on websites like List Challenges, I thought, ‘Well, how about the ten worst things I’ve done since being diagnosed, with a follow-up on the best things I’ve done since that day in 2005?’ Quotes are added to underline my thinking, ideas or […]

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Some oomph along the way!

Many women will agree, and perhaps a few men also, that great shoes have a way of lifting your mood. My left foot, in fact, stopped yelping shortly after I was told that Dr Martens boots would substantially improve my old and new Achilles tendon injuries as well as my gait if I added a […]

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Proud

Mum, I’m a very proud daughter. The way you overcame many obstacles in your life before, during and after your pregnancy with me, made you into a woman who stands up for herself, who is very funny, intelligent and simply, a good soul. We often tell one another how proud we are of each other, […]

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The miseducation of…

“Ergo, the benefits of having MS is that I met my other, weaker self, and I learned how to be strong and wise before my own eyes, and at the speed of light. Even E.T. couldn’t follow me on his BMX bike. He tried, the little fella, but lost my phone number. Go figure.”

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Identity crisis

WordPress Daily Prompt: Say your name Write about your first name: Are you named after someone or something? Are there any stories or associations attached to it? If you had the choice, would you rename yourself? Photographers, show us YOU.” My name is a story of yes versus no, of not liking it, to being […]

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What you might not be aware of

“Walking on a staircase can be a bit of an E=mc2 moment in my life, meaning I can’t remember what those things at the end of my legs are for. They look cute in my tall Dr Martens boots, but every so often, I do wonder about them. Do I lift, drop or kick them sideways or not, or are they for decorative reasons only?”

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Game, set, relapse!

“In short, if I’d have to sell myself with these words, I still wouldn’t receive a Booker prize. I could post “Another MS Relapse” award on the fireplace mantel, but they’re just a waste of space. I thought of referring to a relapse as something you just have to get your teeth in, but I don’t want to steal Luis Suárez’s limelight.”

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Fierce Friday

Ah yes, sometimes my nerves – not nervous system – sometimes my nerves get on my nerves as it were. I happen to coexist with a messed up central nervous system, overly active heartbeat, breathing problems and every now and then I find myself covered with a nice infection or two. If that wasn’t enough, […]

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