MS News: April 2017

MS News: April 2017

Highlight!

  1. Canadian Study of MS-Prone Family Proves that in Rare Cases, Multiple Sclerosis is Inherited
  2. Large Family Study Strengthens Case for Inherited Multiple Sclerosis
  3. New Survey Finds Multiple Sclerosis Patients Struggle with Misdiagnosis and Invisible Symptoms

Continue reading “MS News: April 2017”

MS News: March 2017

MS News: March 2017

Please allow me some nepotism and introduce you to the honourable American/Irish author and my friend Trevis Gleason! He penned a fantastic, witty, humorous and moving memoir about a very unexpected MS diagnosis, ending an old and starting a new career and fulfilling his dream of living in Ireland. You can buy his book here:

  1. Chef Interrupted: Discovering Life’s Second Course in Ireland with Multiple Sclerosis

Highlight still on American Healthcare Act, the replacement plan for the Patient Protection and Affordable Care Act (ACA) released by Congress on March 6, 2017

  1. Society Releases Statement on American Health Care Act
  2. National MS Society Urges Lawmakers to Oppose American Health Care Act
  3. Reducing Out-of-Pocket Cost Barriers to Specialty Drug Use Under Medicare Part D: Addressing
  4. Researchers find patients’ annual financial burden under Medicare Part D is ‘too much too soon’

New book by the honourable American/Irish author and friend Trevis Gleason!

  1. Chef Interrupted: Discovering Life’s Second Course in Ireland with Multiple Sclerosis

Highlight!

  1. Blood Diagnostic Test for Multiple Sclerosis to be Released in May 2017

Continue reading “MS News: March 2017”

[Throwback Thursday] Balancing life and a chronic illness

Oh, you can bet I am willing, I am usually more than willing. When physical restraints curb your potential, you realise that you want so more from your own life, and out of your own reality. Life is moving forward outside your medically induced world, and you feel annoyed when healthy people don’t realise the worth of their bodies, their unused potential.

It simply reminds you that being chronically ill sucks.

It’s energy being depleted in all the wrong places. There is no uptake to being ill. There is no room for maneuvering when you’re faced with an illness that will -quite literally- be there until you draw your last breath. Do take it from someone who’s already stared death in the face because of it; it is so not all it’s cracked up to be, honey.

To read the whole post, please go to: Balancing life and a chronic illness

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MS News: November 2016

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Because of #DonaldTrump’s shock election in the US and his insistence on scrapping Obamacare once in office, I’ve added some sites and articles dealing with insurance etc.

Highlight!

  1. Health Insurance and Medicare
  2. Dumping Obamacare without a better plan is cruel
  3. How Trump Plan To Gut Obamacare Will Take Down Medicare
  4. ‘Trumpcare’ Proposals Could Cripple the Healthcare System
  5. Even If Donald Trump Changed The FDA Drug Approval Process, Patients Wouldn’t Benefit
  6. Repealing Obamacare Would Give A Tax Cut To Millionaires, Like Donald Trump
  7. President Trump Could Derail Obamacare By Dropping Legal Appeal
  8. Insurers use high drug costs to deter some Obamacare patients, economist says
  9. Americans are freaking out about losing Obamacare

Continue reading “MS News: November 2016”

MS News: October 2016

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Highlight!

  1. Influenza, Vaccinations, MS
  2. Brain cognitive exhaustion is real for people with Multiple Sclerosis

Continue reading “MS News: October 2016”

MS News: July 2016

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Researchers at Queen’s University Belfast have begun a £2 million research programme to investigate reversing the damage caused by Multiple Sclerosis.

Highlight!

  1. Childhood MS: A guide for parents
  2. Queen’s University Belfast Awarded £2M in Bid to Reverse Myelin Damage in MS
  3. Exploring Multiple Sclerosis from the Inside

Continue reading “MS News: July 2016”

40 Self-care strategies

We all get preoccupied with our personal, social and professional life sometimes. In doing so, we often forget that self-care is quite important. After all, ‘mens sana in corpore sano’ or ‘a healthy mind in a healthy body’ is one of the biggest and best gifts you can give yourself. For those less fortunate in the health department – including yours truly – you can adopt a few easy steps to make yourself feel better physically, mentally and emotionally.

You can only move forward in life when you take ownership of everything in it, my mantra is ‘Life is 10% of what happens to me and 90% how I react to it.

With that in mind, so, practising below hints makes them a lot more easy to follow.

Morning

  • Wake up early. Carpe diem! You get a lot more done when you wake up early and seize the day.
  • Start your day with five minutes of breathing in deeply through your nose, holding your breath and then breathing out through your mouth. Put your hand on your belly, and feel it rising and falling noticeably while breathing. You can easily do this lying down or sit in a chair.
  • Add a good cleansing ritual by drinking a glass of warm water and lemon before having breakfast.
  • Continue drinking fluids every day, especially when you take a lot of medication.
  • Take as much time for breakfast, lunch and dinner as you need, and let the food settle in your stomach before sitting or lying down again to avoid indigestion.
  • Don’t forget to get the necessary rays of direct sunshine to get some vitamin D. Cloudy days limit your intake and sitting behind glass doesn’t produce vitamin D, so you need to go outside and find some sunshine.
  • Prioritise your daily or weekly tasks to get as much enjoyment and time out of it as possible.

Continue reading “40 Self-care strategies”

Mental or physical, your choice

10906095_10152968660468908_3270331244306118983_nAfter the fun-filled celebration of having to scroll further down age-selection forms on the internet yet again, I felt rather bemused at how fast life was whizzing through highs, lows and the “despite this/that…” moments.

So, once the usual questions “How’s the facial pain going?” as well as “Willeke, why do you never smile at the camera?!”, I wanted to give as much information in one sentence as possible. Sometimes it’s good to be low on energy as it automatically stops you from talking about “that” subject for the rest of the day.

“That” → MS. Facial pain. Or pain, period. Continue reading “Mental or physical, your choice”

Balancing life and a chronic illness

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Imagine this… You are chronically ill, but every time you have a physical setback, your body can heal itself without input from your GP, neurologists, hospitals…

Our mind has the power to heal heartache and/or to show strength in times of need, yet our bodies lack that magnificent paradox. The answer lies in how we look at our emotions; are they your friend, or foe? And how do you view your physical body?

After some feeble attempts trying to write a few paragraphs the past few weeks, I was sent back to the drawing board after each occasion. Not good enough. Already done this. Needs more research. Too tired. Continue reading “Balancing life and a chronic illness”

Mental Health Organisations – Ireland

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Aware
Aware provides support & information for people who experience depression, anxiety or mood disorder and their concerned loved ones.

72 Lower Leeson Street, Dublin 2
Tel: (01) 661 7211
AWARE Helpline: 1890-303302
Support Services
Email: info@aware.ie
Continue reading “Mental Health Organisations – Ireland”

Depression?

Crying eyesThree weeks ago, Mental Health Awareness Week graced Ireland, hoping to shine a light on  the different kinds of mental illness some people live with. If you spent time on Facebook or other social media during that time, you probably saw pictures float by saying, “Depression isn’t a sign of weakness, it’s a sign you’ve been trying to remain strong for too long.”

While everyone goes through a short time of feeling low at some stage in his or her life, feeling down can also be a symptom of an illness other than depression, like multiple sclerosis. Continue reading “Depression?”

What about it?

3.30am. Eye pain and headaches have taken an option on my sleep, each wanting to do better than the other. In addition to that, ideas for a blog post keep flying in my head. My mind is busy compartmentalizing thoughts while my eyes are in charge of my sleeping patterns.

And now my hair also hurts. Seriously, it does! The frequent pains – if not chronic – have prevented me from writing much lately, so I am slowly turning into a state of anarchy.

Several attempts of putting pen to paper happened but none were finished because either sleep came knocking on my door much too early, or because I still had to analyze a few episodes of James Joyces Ulysses for the reading group I’m in. If not that, other things required attention. Continue reading “What about it?”