A to Z of MS

blur book stack books bookshelves

You hear them each time you speak with your medical team: MS-related medical jargon can sound heavy and darken your thoughts. This list will be updated with easy to grasp terms, and if not, do not hesitate to send me a message.

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Media, stop calling it a cure when it’s not even clinically trialled yet!

Finger on lips

You know it will  definitely gather income. Good for you. Rehashing unresearched claims that have yet to be clinically trialled is not OK. It is even less OK when it’s done on the backs of people who day in day out, live in hope because they want to get on with life instead of having to go on living with critical illnesses. It is a hideous way of earning some bucks.

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The duality of MS

Woman beach

In ever memory of physical betrayal and every second of dislike of my illness, I am still intrigued by its complexities and continue to care for all its nuts and bolts.

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Time heals, perhaps even MS

Dangling clock

As you move on in life, you will find that perhaps your diagnosis was something that needed to happen to see what is really important in life.
It is not an expensive new car, clothes, jewelry.
It’s health and acceptance, though flawed the best of times.

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In search of my MS Zen

Black picture woman

”Despite having my inner dialogue running into philosophical mayhem, I’ve been trying hardest to get things on paper. Sometimes it is rather difficult to grasp how unspeakably quick, indelible and distracting multiple sclerosis can become, only to disappear for a few hours before returning. As such, parameters on what I perceived to be acceptable have been reset, and my inner dialogue needs a fix as an intuitively sharp anguish took over my mindset last week.

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Pull up your big girl panties!

On the beach

Let me count… Roughly speaking, I was diagnosed with MS about 5000 days ago. That’s one fair bit of experience under my hood, right? But… When talking to people, new or otherwise, it can be difficult telling them you’re living with an incurable neurodegenerative illness. Sometimes it feels like being in an uninterrupted car crash, minus the […]

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🎀 3443 Needles 🎀

Girl smiling road

🎀 3443 Needles 🎀 2018 Best Blog Post @ Ireland Blog Awards by Ashville Media Group October 26th, 2018 This is my favourite pose. Stretched out, in an apparent hug with what could be the floor or a bed. But, do not be confused, for I am not that hung up about yoga. I wasn’t on that […]

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I am not my brain

Brain MRI

“What’s wrong with my brain?” doesn’t automatically mean, “Is my mind, my soul therefore broken as well?”

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Clinical trials explained

  In the UK, it takes over 12 years to develop a new medicine to the standards of quality, efficacy and safety laid down by legislation. It typically costs £1.15 billion to do all the research and development necessary before a new medicine can be licensed for use. The majority of medicines under development never […]

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