Time heals, perhaps even MS

Dangling clock

As you move on in life, you will find that perhaps your diagnosis was something that needed to happen to see what is really important in life.
It is not an expensive new car, clothes, jewelry.
It’s health and acceptance, though flawed the best of times.

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Noise sensitivity in MS: Turn off your voice!

Vintage

If sound intolerance were a 2005 Marks & Spencer food porn ad, people would refer to it like this: “This is not just sensitivity, this is a hyperacusis noise sensitivity.”

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In search of my MS Zen

Black picture woman

”Despite having my inner dialogue running into philosophical mayhem, I’ve been trying hardest to get things on paper. Sometimes it is rather difficult to grasp how unspeakably quick, indelible and distracting multiple sclerosis can become, only to disappear for a few hours before returning. As such, parameters on what I perceived to be acceptable have been reset, and my inner dialogue needs a fix as an intuitively sharp anguish took over my mindset last week.

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Pull up your big girl panties!

On the beach

Let me count… Roughly speaking, I was diagnosed with MS about 5000 days ago. That’s one fair bit of experience under my hood, right? But… When talking to people, new or otherwise, it can be difficult telling them you’re living with an incurable neurodegenerative illness. Sometimes it feels like being in an uninterrupted car crash, minus the […]

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3443 Needles

Girl smiling road

This is my favourite pose. Stretched out, in an apparent hug with what could be the floor or a bed. But, do not be confused, for I am not that hung up about yoga. I wasn’t on that day, anyway. No, this rather resembles my all-time, never-changing, loudly-snoring daytime nap, and I just happen to find […]

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I am not my brain

Brain MRI

“What’s wrong with my brain?” doesn’t automatically mean, “Is my mind, my soul therefore broken as well?”

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Clinical trials explained

  In the UK, it takes over 12 years to develop a new medicine to the standards of quality, efficacy and safety laid down by legislation. It typically costs £1.15 billion to do all the research and development necessary before a new medicine can be licensed for use. The majority of medicines under development never […]

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MS in numbers

“Instead of going into the possibility of ending their life in a wheelchair, I refer to the opposite side of the scale. When they say “But 25% of people with MS will end up in a wheelchair!” I say “Perhaps, but that means that 75% of people with MS will not end up in one at all!”

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History of MS: 1960 – now

1960s During the 1960s, scientific research into the cause of MS came to focus on two main lines of inquiry that are still being explored today. The first emerged from analysis of the immune system. White blood cells that react against myelin, specifically against a component called myelin basic protein, were discovered in both EAE […]

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History of MS: 19th century

19th century Until the early years of the 19th century, physicians relied on superstition, hearsay, and “the wisdom of the ancients” to care for the sick. Medical ideas were not scientifically tested. Even so, physicians were often good observers and we can look back today and identify people who undoubtedly had MS from descriptions written […]

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History of MS: 1900 – 1960

20th century In the 19th century, scientists first learned that bacteria cause many diseases. As the 20th century began, they discovered even smaller organisms, viruses, and developed techniques for growing and studying bacteria and viruses in the laboratory. This later led to research on viral causes of MS. In 1906, the Nobel Prize for Medicine […]

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MS Societies around the World

Oops… We can’t find the page you’re looking for. Maybe this page might help? MS Societies around the World (2018) Or, why not travel around IMSM with me by visiting these pages? A powerful letter to my MS Do I have stupid written on my forehead? MS anxiety I’m an ex and I’m loving it! You […]

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Kids? Not right now, please…

Children and multiple sclerosis? Although life was good in my last relationship, I secretly decided that having children would probably not be on my list of things to do. Not because of the lack of love, but because I didn’t want to pass on my illness to my future son or daughter. When we eventually […]

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