MS News: April 2017
The latest MS news about clinical trials, research, treatments, mental & emotional health, diet and lifestyle, including highlights from Barts MS Blog
Jammed filter!
I didn't dumb down, I just kinda go dumber depending on my physical state of being before regaining some speed again. My neuropsychologist pointed out that sometimes, my ability to handle particular mental tasks may skip the F1 pole position, but that brain training was a great way to stop the decline.
Being real!
Despite chronic pain and fatigue issues, I am making the best of my life, and I am doing everything possible to be the best version of myself as I can be. All I ask of you is some understanding of what I am going through, and know that every bad day is only making me stronger. Some days, though, I want you to hold my hand or hug me and tell me that everything will be OK.
Ignorance
Oh, people will stalk you on Facebook on their smartphone, but do not ask them to find unprejudiced, trustworthy websites to learn something about your condition on that very smartphone. Quite often, they "will do so when they have time," despite having their phone in their hands 50 times a day.
But you don’t look sick!
We have all been there, at the receiving end of ignorance and unwillingness to understand what life with an invisible illness is like. 2018 Winner Best Blog Post with ‘3443 Needles’, Blog Awards Ireland, Ashville Media Group, Dublin, Ireland ◾ MyTherapyApp: Multiple Sclerosis Blogs: 10 of the Best in 2019 ◾ Ireland Blog Awards: Finalist 2014, 2015, 2017 ◾ MyTherapyApp: Best MS Blog for Simplicity 2018 ◾ Everyday Health: Top 10 MS Blog of 2018 ◾ Feedspot: Top 50 MS Blog 2017, 2018, 2019 © Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2019. Unauthorized use and/or duplication of this material without express and written permission from this site’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and irelandms.com with…
10 ‘Little rebel, me’ mistakes
Are you a list person? I am, that’s a given. After wasting time on websites like List Challenges, I thought, ‘Well, how about the ten worst things I’ve done since being diagnosed, with a follow-up on the best things I’ve done since that day in 2005?’ Quotes are added to underline my thinking, ideas or just as some way to kick-start goodness in my life. Once the 10 best things have found their way onto paper, I will link them to each other here if you want to read lists for a while!
What we refuse to discuss
"Another such thing is talking about your sex life if you have MS. In fact, I should rephrase this to ‘not talking about it.’ People are conservative about this subject in Ireland, and it’s a given that not everyone wants to talk about their intimate love life."
