My Christmas heroes

Christmas lights

Those who willingly and therefore as blindly as I was, kept walking beside me are the heroes in this fourteen year long tale of chronic illness, daily wretched pain and forgiveness, of daily adaptation and understanding.

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In search of my MS Zen

Black picture woman

”Despite having my inner dialogue running into philosophical mayhem, I’ve been trying hardest to get things on paper. Sometimes it is rather difficult to grasp how unspeakably quick, indelible and distracting multiple sclerosis can become, only to disappear for a few hours before returning. As such, parameters on what I perceived to be acceptable have been reset, and my inner dialogue needs a fix as an intuitively sharp anguish took over my mindset last week.

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MS Treatments (2018)

Doctor hospital header

List of Disease-Modifying Treatments available in 2018. If information is missing or incorrect, please send me a private message.

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Preparing for your neurological appointment

Seeing your neurologist can often make you feel anxious or afraid to speak up. Each appointment should be about exploring options, not about being bulldozed by a standardised litany of things you don’t want. Going in prepared will make you feel more at ease, so why not make a list of vital questions and things you […]

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What a difference a needle makes

Needle anxiety. We all went through childhood being afraid of injections. But why would someone have needle anxiety when what you’re about to self-inject every day, in fact, slows down the progression of your chronic illness? Although my emotions regarding needles do not amount to belonephobia, I have gone through moments where I simply could […]

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10 ‘Little rebel, me’ mistakes

Are you a list person? I am, that’s a given. After wasting time on websites like List Challenges, I thought, ‘Well, how about the ten worst things I’ve done since being diagnosed, with a follow-up on the best things I’ve done since that day in 2005?’ Quotes are added to underline my thinking, ideas or […]

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10 years: a lot to be thankful for

“MS itself? It took my job, but it doesn’t own me. MS doesn’t get praise for having me. No matter how bad MS treats me in the future, I am its CEO instead. I will never lose is the knowledge that I conquer MS every single day of the year. Perhaps not physically, but mentally I am stronger than MS.”

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