MS, here today, gone tomorrow?
Degeneration happens, yet it forgets to enlighten you in which physical state you will wake up in the morning, and how you will eventually go to sleep at night. If your persistent MS fatigue is anything like mine, powernaps are overrated, and you go for XXX-large naps.
Oh, media, when will you ever learn? Stop calling it a cure!
Again, dear Media, you are one slick, quick fixer. You know what works: stories that touches people’s hearts and their emotions. You know it will definitely gather income. Good for you. A few short clicks to search, select all, enter, tag and publish. Job done. Imagine when clinical trials are over and done with already... And you didn’t look it up before hitting 'Publish'.
Understanding clinical trials
A clinical trial is a research study in which volunteers receive investigational treatments under the supervision of a physician and other research professionals. These treatments are developed by pharmaceutical and biotechnology companies who select qualified physicians, also known as investigators, to conduct clinical trials to determine the benefits of investigational drugs. Clinical trials are usually conducted in three phases (I, II, III). Only a small number of people participate in phase I trials while the later phases involve a larger number of volunteers. To get involved in MS research in the US, please click here. © Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2017. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used,…
15 Essential MS Websites
Barts MS Blog Multiple Sclerosis on Neurology Times MS Trust Shift MS National Multiple Sclerosis Society (US) Multiple Sclerosis Association of America Multiple Sclerosis Research News Multiple Sclerosis News Today Healthline, Understanding Multiple Sclerosis Multiple Sclerosis Society (UK) The MS Society of Ireland MultipleSclerosis.net Medscape Multiple Sclerosis Very well: Multiple Sclerosis Non-existent link © Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2017. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner are strictly prohibited.
Raw
Social media often finds me catching my breath because of its reach, its intent and its questioning behaviour towards the mindset of the people they follow. After tweeting about the content of my blog, I received a rather ignorant private message from someone asking how raw my content, or I, can get and if I wanted to elaborate. On my blog, ‘raw’ is A Powerful Letter to My MS; Death, A Fearful Thing?; Waiting and My Brother. These were pivotal words that had to be written from an emotional perspective as learning to accept a chronic illness sometimes comes with letting go of life as you once knew it. Others say that Let’s Be Frank; Ignorance; and Hope Cures Old Wounds are realistic enough to prove that life with a…
MS News: June 2016
Check June's main MS news stories and do not forget to share them!
MS News: May 2016
Highlight! People with MS Share How They Are Stronger Than MS and Maintain Independence on World MS Day May 25 Research Hebrew University and Aurum Ventures Team to Create a Diagnostic Blood Test for RRMS JC Virus Carries a Mutation in MS Patients That Amplifies Brain Disease Known as PML MS and Young Adult-onset Hodgkin Lymphoma May Share Underlying Causes, Study Says Gut Microbiota in Young MS Patients Is Higher in Pro-Inflammatory Bacteria Than Usual, Study Finds Sanofi Genzyme and Johns Hopkins Partner on MS Research Projects into Disease Progression Study of Immune System Response to Viral Infection Revives Possibility of Link Between MS and Viruses Gut Bacteria Affects Myelin Content and Induces MS-Like Depression in Mice, Study Reports Modern Medicine’s Promising Future for MS Treatment: Stem Cell Therapy Fluorosamine…
