Tag Archives: Clinical Trials

MS News: May 2017

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MS in the media – 2017 Meeting American Academy of Neurology (AAN)

  1. Aubagio in people at risk of MS
  2. Cladribine
  3. Gilenya
  4. Lemtrada long-term data
  5. Lemtrada and black people
  6. Opicinumab
  7. Siponimod
  8. Importance of early effective treatment
  9. NEDA challenged
  10. Measuring disease activity in progressive MS
  11. Predicting risk of conversion to SPMS
  12. Risk factors for MS in children and teenagers

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MS News: April 2017

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Highlight!

  1. Canadian Study of MS-Prone Family Proves that in Rare Cases, Multiple Sclerosis is Inherited
  2. Large Family Study Strengthens Case for Inherited Multiple Sclerosis
  3. New Survey Finds Multiple Sclerosis Patients Struggle with Misdiagnosis and Invisible Symptoms

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MS News: March 2017

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Highlight still on American Healthcare Act, the replacement plan for the Patient Protection and Affordable Care Act (ACA) released by Congress on March 6, 2017

  1. Society Releases Statement on American Health Care Act
  2. National MS Society Urges Lawmakers to Oppose American Health Care Act
  3. Reducing Out-of-Pocket Cost Barriers to Specialty Drug Use Under Medicare Part D: Addressing
  4. Researchers find patients’ annual financial burden under Medicare Part D is ‘too much too soon’

 

New book by the honourable American/Irish author and friend Trevis Gleason!

  1. Chef Interrupted: Discovering Life’s Second Course in Ireland with Multiple Sclerosis

Highlight!

  1. Blood Diagnostic Test for Multiple Sclerosis to be Released in May 2017

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MS News: February 2017

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Highlight! What if Obamacare (Affordable Care Act) is repealed?

  1. Big Pharma’s offer to Trump: Discounts when drugs don’t work
  2. Advanced Curriculum for Multiple Sclerosis ’17: ACTRIMS Forum
  3. Patients Value Obamacare More Than General Public and Oppose Its Repeal, Survey Says
  4. Patient groups fear Obamacare repeal could undo protections for sickest Americans
  5. Most with Chronic Conditions Find Affordable Care Act Beneficial, Poll Shows
  6. Travel ban has serious medical consequences (Opinion)

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MS News: November 2016

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Because of #DonaldTrump’s shock election in the US and his insistence on scrapping Obamacare once in office, I’ve added some sites and articles dealing with insurance etc.

Highlight!

  1. Health Insurance and Medicare
  2. Dumping Obamacare without a better plan is cruel
  3. How Trump Plan To Gut Obamacare Will Take Down Medicare
  4. ‘Trumpcare’ Proposals Could Cripple the Healthcare System
  5. Even If Donald Trump Changed The FDA Drug Approval Process, Patients Wouldn’t Benefit
  6. Repealing Obamacare Would Give A Tax Cut To Millionaires, Like Donald Trump
  7. President Trump Could Derail Obamacare By Dropping Legal Appeal
  8. Insurers use high drug costs to deter some Obamacare patients, economist says
  9. Americans are freaking out about losing Obamacare

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MS News: October 2016

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Highlight!

  1. Influenza, Vaccinations, MS
  2. Brain cognitive exhaustion is real for people with Multiple Sclerosis

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MS News: September 2016

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Below are some MS-related topics that made the headlines this month. Do come back to check again, though, as the list will be updated every three to five days.

Highlight!

  1. #ECTRIMS2016 – Congress on Latest in MS Research and Treatment Opens Sept. 14
  2. #ECTRIMS2016 – Stay Up to Date with My Pick of Congress Highlights
  3. 25 American Athletes To Watch At The Paralympics
  4. MRI key to distinguishing multiple sclerosis from its many mimics
  5. Trending Topics in Multiple Sclerosis

Pediatric MS

  1. Pediatric multiple sclerosis: meeting the needs of the young patient and the family
  2. Pediatric multiple sclerosis: observational trials show promise for interferon-beta and glatiramer
  3. Pediatric multiple sclerosis associated with cognitive impairment in approximately a third of patients
  4. Legal Planning & Care Planning For Young Multiple Sclerosis Patients Video

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Raw

9273d650cde5389d43728b0d611c0a96Social media often finds me catching my breath because of its reach, its intent and its questioning behaviour towards the mindset of the people they follow.

After tweeting about the content of my blog, I received a rather ignorant private message from someone asking how raw my content, or I, can get and if I wanted to elaborate.

On my blog, ‘raw’ is A Powerful Letter to My MS; Death, A Fearful Thing?; Waiting and My Brother. These were pivotal words that had to be written from an emotional perspective as learning to accept a chronic illness sometimes comes with letting go of life as you once knew it.

Others say that Let’s Be Frank; Ignorance; and Hope Cures Old Wounds are realistic enough to prove that life with a chronic illness is not just about being ill, but about society judging someone’s illness also. Getting a raw deal, in other words. When somebody receives a neurodegenerative diagnosis, the lives of those living with the person who was diagnosed will change to a certain degree. Not only that, each person affected will have a theory on what that illness should be like, and how they should handle it.  Continue reading

MS News: August 2016

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Below are some MS-related topics that made the headlines this month. Do come back to check again, though, as the list will be updated every three days.

Highlight!

  1. Guidelines for Neuropsychological Research in Multiple Sclerosis
  2. Multiple Sclerosis Journal
  3. Johns Hopkins Medicine: Multiple Sclerosis
  4. Benign MS
  5. Multiple System Atrophy Research
  6. $2 Million Grant to Study Fatigue in People with MS
  7. What health conditions do people rank as worse than death?
  8. Multiple Sclerosis in Children

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MS News: July 2016

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Researchers at Queen’s University Belfast have begun a £2 million research programme to investigate reversing the damage caused by Multiple Sclerosis.

Highlight!

  1. Childhood MS: A guide for parents
  2. Queen’s University Belfast Awarded £2M in Bid to Reverse Myelin Damage in MS
  3. Exploring Multiple Sclerosis from the Inside

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MS News: June 2016

Research

  1. Nerve-insulating cells more diverse than previously thought
  2. Heart monitor implant could save lives in patients with serious immune disease
  3. ANKRD55: New gene involved in Multiple Sclerosis discovered
  4. In MS, can better sleep improve cognition?
  5. PET detects neuroinflammation in multiple sclerosis
  6. Multiple Sclerosis and Fibromyalgia – is there a connection? – Patient Talk
  7. CD8 Cells after Immunological Stem Cell Reconstitutions
  8. Progressive multifocal leukoencephalopathy in a patient without apparent immunosuppression
  9. Antibodies in the CSF may be secondary to damage
  10. How do cells enter the Brain?
  11. ResearchSpeak: grey matter lesions
  12. Link between gut bacteria, MS discovered
  13. Continued inflammation in SPMS – the role of antibodies to galectin-3
  14. Obesity and multiple sclerosis: Is there a causal relationship?
  15. Gut Microbiota is different in MS
  16. The autoimmune predilection: rheumatoid arthritis in MS
  17. Tracking brain atrophy in MS could become routine, thanks to software developed at UB
  18. Diet and Gut Microbiome Influences Multiple Sclerosis Disease Activity
  19. Cerebral Microbleeds May Be Linked to Disability in Multiple Sclerosis

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MS News: May 2016

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Highlight!

  1. People with MS Share How They Are Stronger Than MS and Maintain Independence on World MS Day May 25

Research

  1. Hebrew University and Aurum Ventures Team to Create a Diagnostic Blood Test for RRMS
  2. JC Virus Carries a Mutation in MS Patients That Amplifies Brain Disease Known as PML
  3. MS and Young Adult-onset Hodgkin Lymphoma May Share Underlying Causes, Study Says
  4. Gut Microbiota in Young MS Patients Is Higher in Pro-Inflammatory Bacteria Than Usual, Study Finds
  5. Sanofi Genzyme and Johns Hopkins Partner on MS Research Projects into Disease Progression
  6. Study of Immune System Response to Viral Infection Revives Possibility of Link Between MS and Viruses
  7. Gut Bacteria Affects Myelin Content and Induces MS-Like Depression in Mice, Study Reports
  8. Modern Medicine’s Promising Future for MS Treatment: Stem Cell Therapy
  9. Fluorosamine Seen to Boost Remyelination in MS Mouse Model by Blocking Scarring Molecules
  10. Combined Use of Imaging Techniques Allows Scientists to Peer Into Myelin Formation
  11. High Glutamate Levels in Brain Seen to Drive MS Progression
  12. MS Patients May Be Prone to Other Chronic Illnesses, Study Finds
  13. Key Pathway in Antibody B-Cell Production Identified, Important to Diseases Like MS
  14. Cognitive Difficulties Known to MS Traced to Problems in Nerve Cell Activity in Hippocampus
  15. Low Prenatal Vitamin D Linked to Later MS in Offspring

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Positive MS News: April 2016

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Highlight!

  1. New injectable multiple sclerosis drug given go-ahead 
  2. Smoking Cessation Decelerates Brain Volume Loss in Multiple Sclerosis

Research

  1. Catching glandular fever can prevent multiple sclerosis
  2. Drug boosts myelin regeneration in mice raising hope of future treatments for MS
  3. Gut Bacteria Affects Myelin Content and Induces MS-Like Depression in Mice, Study Reportsultiple sclerosis development risk linked with where you live
  4. The nature of genetic susceptibility to multiple sclerosis: constraining the possibilities
  5. A Way Forward in Treating Primary-Progressive Multiple Sclerosis?
  6. Study Shows Potential of Novel Compound to Treat Multiple Sclerosis
  7. Cytokine Once Thought Only to Promote Inflammation Now Seen to Have Restorative Properties, Too
  8. Multiple sclerosis: A new leap forward?
  9. Technique measures ‘postural sway’ to diagnose neuromuscular disorders
  10. Multiple sclerosis Could Helicobacter pylori provide protection against multiple sclerosis?

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Positive MS News: March 2016

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Highlight!

  1. Researchers spill the beans on coffee and MS
  2. Health Benefits Of Coffee: Multiple Sclerosis Risk Lower In People Who Drink More Java Daily
  3. Coffee may help combat Multiple Sclerosis (MS)

Research

  1. Diabetic Oral Drugs Like Metformin Eased MS Symptoms in People with Both Diseases, Study Reports
  2. Signaling Molecule Seen to Induce CNS Remyelination in Mice with Spinal Injuries
  3. Oral MS Drug Derived from Plant Peptide Seen to Stop Disease Progression in Mice Continue reading

Positive MS News: February 2016

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Highlight!

  1. SHEMAR MOORE JOINS KISS GOODBYE

ACTRIMS 2016

  1. ACTRIMS 2016 Talk Weighs Clinical Differences, Similarities in 2 Major Forms of MS
  2. Results of New SPMS Study to Be Presented at ACTRIMS
  3. Effects of Specific Antibodies on MS Neurodegeneration to Be Presented at ACTRIMS Forum
  4. Treadmill Exercise Benefits MS Patients, According to Study Presented at ACTRIMS Forum
  5. NIH Study into Progressive MS Biomarkers to Be Presented at ACTRIMS 2016
  6. ACTRIMS Session on MS Progression to Emphasize Continuing Treatment of Advancing Disease

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