Oh, media, when will you ever learn?

Vintage typewriter

Dear Media, You should know better. It began with this article in 2017 (*) Meet the Cambridge scientist on verge of curing Multiple Sclerosis: This amazing work could literally change the world Cambridgeshire Live, June 4th, 2017 Two years later… Meet Su Metcalfe, the Cambridge scientist on the verge of curing multiple sclerosis Healthy Living Idea, […]

Read More

Understanding clinical trials

A clinical trial is a research study in which volunteers receive investigational treatments under the supervision of a physician and other research professionals. These treatments are developed by pharmaceutical and biotechnology companies who select qualified physicians, also known as investigators, to conduct clinical trials to determine the benefits of investigational drugs. Clinical trials are usually […]

Read More

15 Essential MS Websites

Laptop pen and paper

Barts MS Blog Multiple Sclerosis on Neurology Times MS Trust Shift MS National Multiple Sclerosis Society (US) Multiple Sclerosis Association of America Multiple Sclerosis Research News Multiple Sclerosis News Today Healthline, Understanding Multiple Sclerosis Multiple Sclerosis Society (UK) The MS Society of Ireland MultipleSclerosis.net Medscape Multiple Sclerosis Very well: Multiple Sclerosis Non-existent link © Willeke […]

Read More

Raw

Social media often finds me catching my breath because of its reach, its intent and its questioning behaviour towards the mindset of the people they follow. After tweeting about the content of my blog, I received a rather ignorant private message from someone asking how raw my content, or I, can get and if I […]

Read More

MS News: May 2016

Highlight! People with MS Share How They Are Stronger Than MS and Maintain Independence on World MS Day May 25 Research Hebrew University and Aurum Ventures Team to Create a Diagnostic Blood Test for RRMS JC Virus Carries a Mutation in MS Patients That Amplifies Brain Disease Known as PML MS and Young Adult-onset Hodgkin […]

Read More

MS News: April 2016

Highlight! New injectable multiple sclerosis drug given go-ahead  Smoking Cessation Decelerates Brain Volume Loss in Multiple Sclerosis Research Catching glandular fever can prevent multiple sclerosis Drug boosts myelin regeneration in mice raising hope of future treatments for MS Gut Bacteria Affects Myelin Content and Induces MS-Like Depression in Mice, Study Reportsultiple sclerosis development risk linked with […]

Read More

MS News: March 2016

Highlight! Researchers spill the beans on coffee and MS Health Benefits Of Coffee: Multiple Sclerosis Risk Lower In People Who Drink More Java Daily Coffee may help combat Multiple Sclerosis (MS) Research Diabetic Oral Drugs Like Metformin Eased MS Symptoms in People with Both Diseases, Study Reports Signaling Molecule Seen to Induce CNS Remyelination in […]

Read More

MS News: February 2016

Highlight! SHEMAR MOORE JOINS KISS GOODBYE ACTRIMS 2016 ACTRIMS 2016 Talk Weighs Clinical Differences, Similarities in 2 Major Forms of MS Results of New SPMS Study to Be Presented at ACTRIMS Effects of Specific Antibodies on MS Neurodegeneration to Be Presented at ACTRIMS Forum Treadmill Exercise Benefits MS Patients, According to Study Presented at ACTRIMS Forum […]

Read More

MS News: January 2016

Highlight! Multiple sclerosis in 2015: Managing the complexity of multiple sclerosis Cancer Treatment Shows “Remarkable” Ability to Reverse Multiple Sclerosis Symptoms

Read More

MS News: November 2015

Highlight! Multiple sclerosis health news roundup 2015: MS prevention and treatment breakthroughs Study To Test Impact Of Chocolate On Multiple Sclerosis Fatigue Oxford Brookes to Study if Chocolate Could Actually Help Cure Multiple Sclerosis Chocolate could ease multiple sclerosis symptoms

Read More

MS News: October 2015

It was a busy month. ECTRIMS (European Committee for Treatment and Research in Multiple Sclerosis Congress; October 7 – 10, 2015 in Barcelona) came and went, with insight and data offered on existing and new therapies.

Read More

]MS News: September 2015

Highlight! Less vitamin D and melatonin bad for multiple sclerosis Multiple sclerosis relapse risk influenced by melatonin levels Melatonin could help treat multiple sclerosis Melatonin Linked to Seasonal Relapses of Multiple Sclerosis

Read More

MS News: August 2015

Vitamin D research was once again a recurring news story this month, with more studies linking lack of vitamin D to MS. Also widely reported was the news Novartis bought GlaxoSmithKline’s remaining rights to Ofatumumab, an investigational multiple sclerosis medicine, for up to $1 billion. Highlight! Gene study finds link between multiple sclerosis and low […]

Read More

MS News: July 2015

Because of the summer holidays, less positive news has filtered through. Either way, enjoy, and hopefully more next month! Research Gene Regulating Treatment Response in Multiple Sclerosis Identified New Study Evaluates The Role of MRI in Monitoring MS Progression Multiple Sclerosis Nano-Drugs in Liposomes Could Treat Multiple Sclerosis Altered Immune Cells in Relapsing Remitting Multiple […]

Read More

MS News: June 2015

There’s only one topic in the Highlight! part of the good news list this month. In my view, more private firms should be involved in clinical research, sponsorships of medical institutions etc. In essence, it’s in everyone’s best interests, i.e. everyone’s health, theirs included. What’s your view on this? Answer below!

Read More

MS News: May 2015

New additions: news about MS and diet, exercise etc. More will follow soon! Highlight! Hawaii Legislature approves medical marijuana dispensaries Medical marijuana registry in Quebec called world’s first Texas Senate Approves Medical Marijuana Bill State health officials unveil new marijuana dispensary rules

Read More

Hope cures old wounds

“The illness is mine, but the tragedy theirs,” when asked how my family feels about my condition. When I entered the MS academy, I read the small print and knew it wouldn’t be a 365-day holiday. However, I tolerate MS. There’s no resentment or blame, no more heartache, guilt or doubt. I find solace in seeing science produce more and better research results and medication. Clinical trials are moving forward at a pace that will eventually lead to an easier life with an illness that is as fickle as MS.”

Read More

MS News: April 2015

Research news Miconazole and clobetasol may be effective as multiple sclerosis therapies Drug Derived From Sea Anemone Shows Promise Against Psoriasis, MS Novel Drug From Nature Shows Early Promise ‘Brainbow’ illuminates cellular connections MS Association of America releases 2015 multiple sclerosis research update B Vitamin Promising in Progressive Multiple Sclerosis Phenytoin protects against optical damage […]

Read More

MS News: March 2015

Yes, here’s the March edition already! I will try and update the post each week as it will be a busy month ahead with Brain Awareness Week in Ireland, National MS Education and Awareness Month is an effort by the Multiple Sclerosis Foundation (MSF) and the US National Multiple Sclerosis Society’s MS Awareness Week. The […]

Read More

Clinical trials explained

  In the UK, it takes over 12 years to develop a new medicine to the standards of quality, efficacy and safety laid down by legislation. It typically costs £1.15 billion to do all the research and development necessary before a new medicine can be licensed for use. The majority of medicines under development never […]

Read More

MS News: February 2015

Time flies, as we’re once again nearing the end of February. It’s been an attention-grabbing month, with several positive news stories about treatment and also, about a rather interesting collaboration between Google and Biogen Idec. First of all though, I wanted to add a link displaying how many clinical trials are ongoing as we speak. […]

Read More

MS News: January 2015

The first month of 2015 has come and (almost) gone again. With that, it’s full steam ahead in the field of MS research, clinical trials, business news and interesting, general newsworthy bits and pieces. This month, the highlight was the news about MS and stem cell treatment, providing a decent outlook for those looking for […]

Read More

MS News: December 2014

Well, it was a busy December, in more ways than one. I hope you all had a great Christmas and wish you the best for 2015. From the amount of research and clinical news we keep hearing about month after month, I can only be optimistic for the future. A cure will not happen tomorrow, […]

Read More

MS News: November 2014 (*F)

“Hoping for a cure? Of course. I am realistic though, as it might not happen in my lifetime. Simply being part of the solution, is all I wish for right now. Whichever comes first, the 8,000 people with MS in Ireland, 100,000 in the UK, 400,000 in the US and many other people around the world are looking forward, and simply… hope.”

Read More

MS News: October 2014

“54 New MS Research Projects to Receive Millions of Dollars in Funding.” I can only jump up and down like a child at Christmas reading about this. Even if or when we’re struggling with our illness, we know that lots is happening to help us forward in life. So please, enjoy the list with research & clinical trial news, updates on current medication and business & general news.”

Read More

MS News: September 2014

It has been a big and very busy September for researchers, clinical trials and pharmaceutical companies. Early this month, the Joint ACTRIMS/ECTRIMS Meeting took place in Boston. For more, please check the extensive website of the conference.

Read More

Clinical trials

ClinicalTrials.gov Drug Discovery & Development ©Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2014. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and […]

Read More

News: July 2014

A lot of news on the research front in July, which can only be good. It’s a joy, relief as well as hope that one of those research projects or trials might lead to longer periods of remission, and perhaps a return to lesser disability for those with primary and secondary forms of multiple sclerosis. […]

Read More

MS News: June 2014

Research results Fatigue in Multiple Sclerosis Linked to Regional Brain Damage Multiple Sclerosis News Today – Fatigue, a common symptom of multiple sclerosis, could be a result of regional damage in the brain. Multiple sclerosis Reactivation of Epstein–Barr or herpes viruses not associated with MS relapse Nature.com – Infection with the Epstein–Barr virus or human […]

Read More

MS News: May 2014

With a 14-day delay in posting some positive news about MS, I’d like to offer my apologies and no, I absolutely haven’t forgotten about you. As many people with MS know, May is about the busiest month for those who advocate and volunteer. World MS Day is the main day of the year for MSers, […]

Read More

MS News: April 2014

Research results Enhanced uptake of multiple sclerosis-derived myelin by THP-1 macrophages and primary human … 7thSpace Interactive (press release) – The pathological hallmark of multiple sclerosis (MS) is myelin phagocytosis. It remains unclear why microglia and macrophages demyelinate axons in … Textured insoles could be a positive step for people with MS UQ News – University […]

Read More

MS News: March 2014

A little bit later than usual, for which I apologise, but here is the good news that graced global media in March 2014.

Read More

MS news: February 2014

The positives so far… Relapsing-Remitting Multiple Sclerosis Drug Copaxone Gets FDA Approval For Bigger Dose, Fewer Injections BioNews Texas – Copaxone injection for relapsing-remitting multiple sclerosis There is new news regarding a widely-used treatment for Relapsing-Remitting Multiple Sclerosis. According to the latest reports released by Teva Pharmaceutical Industries, the FDA has approved the company’s concentrated 3-times-per-week […]

Read More

MS News: January 2014

Primary Progressive, Relapse-Free Secondary Progressive Multiple … BioNews Texas – secondary progressive multiple sclerosis nerve While there have been a number of success stories for MS research in 2013, last year saw yet another … Gov candidates cool to more marijuana legalization Kansas City Star – Most Republicans said it was too early to decide, but […]

Read More

MS News: December 2013

With a bit of a delay, here is the good news in MS-world that found its way to the media in December 2013! Provincial MS strategy applauded Announced Nov. 25, Health Minister Fred Horne said the strategy – The Way Forward – “connects the dots” in the health care system so that Alberta’s almost 14,000 […]

Read More