Tag Archives: Clinical Trials

MS News: March 2017

Please allow me some nepotism and introduce you to the honourable American/Irish author and my friend Trevis Gleason! He penned a fantastic, witty, humorous and moving memoir about a very unexpected MS diagnosis, ending an old and starting a new career and fulfilling his dream of living in Ireland. You can buy his book here:

  1. Chef Interrupted: Discovering Life’s Second Course in Ireland with Multiple Sclerosis

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clinical-trials

Highlight still on American Healthcare Act, the replacement plan for the Patient Protection and Affordable Care Act (ACA) released by Congress on March 6, 2017

  1. Society Releases Statement on American Health Care Act
  2. National MS Society Urges Lawmakers to Oppose American Health Care Act
  3. Reducing Out-of-Pocket Cost Barriers to Specialty Drug Use Under Medicare Part D: Addressing
  4. Researchers find patients’ annual financial burden under Medicare Part D is ‘too much too soon’

New book by the honourable American/Irish author and friend Trevis Gleason!

  1. Chef Interrupted: Discovering Life’s Second Course in Ireland with Multiple Sclerosis

Highlight!

  1. Blood Diagnostic Test for Multiple Sclerosis to be Released in May 2017

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MS News: February 2017

why-to-go-for-clinical-trials-best-treatment-for-health-issues1

Highlight! What if Obamacare (Affordable Care Act) is repealed?

  1. Big Pharma’s offer to Trump: Discounts when drugs don’t work
  2. Advanced Curriculum for Multiple Sclerosis ’17: ACTRIMS Forum
  3. Patients Value Obamacare More Than General Public and Oppose Its Repeal, Survey Says
  4. Patient groups fear Obamacare repeal could undo protections for sickest Americans
  5. Most with Chronic Conditions Find Affordable Care Act Beneficial, Poll Shows
  6. Travel ban has serious medical consequences (Opinion)

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MS News: November 2016

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Because of #DonaldTrump’s shock election in the US and his insistence on scrapping Obamacare once in office, I’ve added some sites and articles dealing with insurance etc.

Highlight!

  1. Health Insurance and Medicare
  2. Dumping Obamacare without a better plan is cruel
  3. How Trump Plan To Gut Obamacare Will Take Down Medicare
  4. ‘Trumpcare’ Proposals Could Cripple the Healthcare System
  5. Even If Donald Trump Changed The FDA Drug Approval Process, Patients Wouldn’t Benefit
  6. Repealing Obamacare Would Give A Tax Cut To Millionaires, Like Donald Trump
  7. President Trump Could Derail Obamacare By Dropping Legal Appeal
  8. Insurers use high drug costs to deter some Obamacare patients, economist says
  9. Americans are freaking out about losing Obamacare

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MS News: September 2016

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Below are some MS-related topics that made the headlines this month. Do come back to check again, though, as the list will be updated every three to five days.

Highlight!

  1. #ECTRIMS2016 – Congress on Latest in MS Research and Treatment Opens Sept. 14
  2. #ECTRIMS2016 – Stay Up to Date with My Pick of Congress Highlights
  3. 25 American Athletes To Watch At The Paralympics
  4. MRI key to distinguishing multiple sclerosis from its many mimics
  5. Trending Topics in Multiple Sclerosis

Pediatric MS

  1. Pediatric multiple sclerosis: meeting the needs of the young patient and the family
  2. Pediatric multiple sclerosis: observational trials show promise for interferon-beta and glatiramer
  3. Pediatric multiple sclerosis associated with cognitive impairment in approximately a third of patients
  4. Legal Planning & Care Planning For Young Multiple Sclerosis Patients Video

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Raw

9273d650cde5389d43728b0d611c0a96Social media often finds me catching my breath because of its reach, its intent and its questioning behaviour towards the mindset of the people they follow.

After tweeting about the content of my blog, I received a rather ignorant private message from someone asking how raw my content, or I, can get and if I wanted to elaborate.

On my blog, ‘raw’ is A Powerful Letter to My MS; Death, A Fearful Thing?; Waiting and My Brother. These were pivotal words that had to be written from an emotional perspective as learning to accept a chronic illness sometimes comes with letting go of life as you once knew it.

Others say that Let’s Be Frank; Ignorance; and Hope Cures Old Wounds are realistic enough to prove that life with a chronic illness is not just about being ill, but about society judging someone’s illness also. Getting a raw deal, in other words. When somebody receives a neurodegenerative diagnosis, the lives of those living with the person who was diagnosed will change to a certain degree. Not only that, each person affected will have a theory on what that illness should be like, and how they should handle it.  Continue reading

MS News: August 2016

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Below are some MS-related topics that made the headlines this month. Do come back to check again, though, as the list will be updated every three days.

Highlight!

  1. Guidelines for Neuropsychological Research in Multiple Sclerosis
  2. Multiple Sclerosis Journal
  3. Johns Hopkins Medicine: Multiple Sclerosis
  4. Benign MS
  5. Multiple System Atrophy Research
  6. $2 Million Grant to Study Fatigue in People with MS
  7. What health conditions do people rank as worse than death?
  8. Multiple Sclerosis in Children

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MS News: July 2016

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Researchers at Queen’s University Belfast have begun a £2 million research programme to investigate reversing the damage caused by Multiple Sclerosis.

Highlight!

  1. Childhood MS: A guide for parents
  2. Queen’s University Belfast Awarded £2M in Bid to Reverse Myelin Damage in MS
  3. Exploring Multiple Sclerosis from the Inside

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