Evil resolutions
Ah, that dreaded question! That thing we all say we will do but never actually make it to the finish line! We’re all creators of almost-standard replies that sound like “This year is the year I will lose 50 pounds of weight!” Or “From January 1st I will stop smoking for good!”
Misty Monday
Right now I’m in from some kind of self-inflicted, being-stuck-syndrome. Thankfully, it only happens a few times a year. I am gasping for air and checking if I’m still alive every 10 seconds. It’s stifling my bones and putting my knickers in a twist. So I am listening to Lady Gaga. To lift my spirits.
MS Ireland National Meeting Day 2013
Last September, I was invited by the Irish MS Society to take part in a panel discussion at their National Day in Galway. I happily accepted because we all know that I never say no to having a good chat. The topic of the National Day was ‘being active and interactive’, and the panel discussion covered employment, exercise, being online and volunteering. Trevis Gleason, well-known in the MS stratosphere and a new addition to the Irish population, interviewed four people with MS: Grace, Anne-Marie, Mark and myself. These are the videos covering above topics. We were all a bit nervous (no, really?! :)) because of being filmed, but we all did very well.
My brother’s silence
Grief, a tear in my mind when others talk about their brother. A hug I cannot feel anymore. A future we will not share anymore. There is a silence I cannot place, memories that are beginning to fade. The silence he leaves behind, follows me in places in Ireland I know he would have loved, he would want to return to time after time.
MS News: November 2013
Thirty pieces of positive MS news published in November to brighten your day! Multiple sclerosis appears to originate in different part of brain than long believed Steven Schutzer, a physician and scientist at Rutgers New Jersey Medical School, has now found an important clue why progress has been slow – it appears that most research on the origins of MS has focused on the wrong part of the brain.
The Spoon Theory
Today I was reminded of a story I heard of a few years ago about a girl who lives with lupus and who tries to explain to a friend what life with a chronic illness, especially fatigue, is like. It is told in a very powerful and imaginative way that will hopefully shed a better light on how fatigue affects people living with MS, lupus and other illnesses that take a toll on daily life. In my view, it is the best piece of writing about fatigue I have ever read. As you know, one of my main disabilities is severe fatigue which is sometimes so energy-sapping that walking from my bed to the fridge asks for a rest in between. From the moment this level of tiredness became troublesome,…
It’s not just sport. It’s Irish rugby.
Yesterday Ireland saw what the Irish rugby team is capable of when all parameters are right. It turned out to be an emotional day for many since Ireland has never beaten New Zealand. When the 80 minutes of the game were played, Ireland was ahead. But then came the last 90 seconds. Pure joy changed into pure heartache. Still… as a nation, we can be proud of our rugby team because we saw belief, passion, strength and rugby intelligence at work. Below video shows what rugby means to people in Ireland. [youtube=http://youtu.be/ElMEi_TlPmM]
