Summer, not to me
It’s back! It’s here again and boy I love it! “It” is autumn, and those of you in my physical surroundings know that I live for autumn. And winter. And hey, maybe spring too if it’s not too warm outside! “It” means fresh and clean air entering my lungs and a bit more energy in my old’ bones. “It” also means I feel alive, oh yes I do!
Reality check!
I just saw this picture on a dedicated MS Facebook page. It says “YOU WILL NEVER KNOW WHAT PAIN IS UNLESS YOU HAVE MS!!” Well excusez–moi, please, but that is just OTT. Life is NOT A CONTEST of who has more pain than the other, it’s not a game of showing people how sick we can be. So forgive me for sticking up for others who are otherwise seriously ill, because statements like this only give people the wrong idea of what having MS is really like.
Letting go
Life seems like a joke, out to get you when you least expect it. People disappear from your life, but it’s not until after they’re gone that you realise how much you liked being around them. Or, you understand what being truly happy means because you’ve known absolute sadness. Or you start appreciating silence because you know how loud, annoying and horrible noise can be. Life seems like a joke so; it makes you learn lessons by applying the opposite of what you want. Life is a joke in an ironic way. Murphy’s Law had it in for me years ago. Anything that could go wrong went totally wrong. In the space of 3.5 years I lost part of myself (thank you MS!), and my only sibling, stepdad and four other…
My tired is tired
Yep… right now I am one hell of a great example of how MS can just snap you right back to when you were first diagnosed, hence the large picture stating that very fact. Remember the days where you were just bed-ridden with lots of symptoms not making sense, and pain that kept you up day and night, no matter how tired you were? How so? Well, last week my body was half-fried under the sun in temperatures of 35°C. Microwave temperatures sizzling my body from the outside in, although it felt like I was roasted from the inside out. I still feel like a walking advert for Kentucky Fried Chicken… minus the Kentucky mind you. And the chicken.
Mortality
The superbug that had been staring into my eyes for months seemed long gone. In its wake, it left me wondering. I went through an abyss, one that could resemble Dante's nine circles of hell. That bottom of that abyss had been the morning before the rush into surgery.
Everyone’s an Olympian
After 7 years of waiting, the London 2012 Olympic Games are finally here! Off we go again for another breathtaking 16 days of sport, success and sorrow! I’ve ice cream in the freezer, my couch blanket and caffeine ready to make the most of the coming days. London 2012 was always going to be special to me because I’ve never lived so close to the Games as this year. This may sound funny to you but as a sports fan; I have been looking forward to having the Games to close to my native country as well as my adopted one. Every 4 years the Olympics take over 16 days of my summer calendar and this year it will be a blast. Not only because of the proximity of the…
An Open Letter To Those Without MS
I’ve known about this letter for a while now, and sometimes I feel the need to read it again, as if by reading it once more, people around me will understand what having an incurable illness feels like even when they’re not the ones reading it. However, at the end of the day, I cannot step in those people’s shoes and make them accept what is going on inside me. I am the first person that needs to educate my family, friends, ex-colleagues etc. I am the first one that has to tell them the same things over and over, and I will be the only one to know the truth about my own MS. I am my expert-patient and I will be the only one that will have to…
