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[Throwback Thursday] Balancing life and a chronic illness

Oh, you can bet I am willing, I am usually more than willing. When physical restraints curb your potential, you realise that you want so more from your own life, and out of your own reality. Life is moving forward outside your medically induced world, and you feel annoyed when healthy people don’t realise the worth of their bodies, their unused potential.

It simply reminds you that being chronically ill sucks.

It’s energy being depleted in all the wrong places. There is no uptake to being ill. There is no room for maneuvering when you’re faced with an illness that will -quite literally- be there until you draw your last breath. Do take it from someone who’s already stared death in the face because of it; it is so not all it’s cracked up to be, honey.

To read the whole post, please go to: Balancing life and a chronic illness

©WVE and Ireland, Multiple Sclerosis & Me, 2011-2017. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner are strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

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Man up!

screenshot-www-canva-com-2017-01-15-20-38-57During another stimulating chat with one of my ex-college friends, we found out that both our subject of non-admiration is Michael O’Reilly, one of Ireland’s Olympics boxing competitors who was sent home following a failed doping test during the first week of the Games. He knowingly travelled to Rio and although exempt from fighting for a title already, he kept silent for a week. Eventually, he admitted that he “unintentionally took a supplement that may have contained a prohibited substance given to him by someone unrelated to his team or association.”

Of course, by adding that he was “given the substance by someone else,” MOR is not taking full responsibility for the issue. It would be my understanding, though, that if you want to be an Olympic athlete, you don’t jeopardise your place by “unintentionally” taking things but also, that you need to be aware of everything that goes into your system. Passing on the blame in doping cases often smells like self-pity cloaked in a sense of entitlement and egotism. Continue reading

Book lovers, unite!

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I have always imagined that Paradise
will be a kind of library.
(Jorge Luis Borges)

If this yesterday’s long list of Firefox bookmarks was anything to go by, you’d have taken me for a very active library assistant waiting impatiently to sort non-fiction books according to the Dewey Classification again. It left me mesmerising out loud that you can take the girl out of the library, but you can’t take the library out of the girl. After all, I was destined for librarianship in some shape or form from early in life. I always felt that a child with a book can achieve more than an adult with a gun.

And that’s what I ended up doing: studying library sciences. Via word of mouth I then moved to different libraries to update and integrate their manual indexes, lists and catalogues with electronic ones. Often Herculean at best, since each library had thousands of books, CDs, videos, newspapers and other items waiting to be added. Continue reading

Slowing down

A friend sent me this picture this evening as a reminder that I need to take a step back from writing, reading, advocating and generally helping others so I can “get better” again.

We all know people with MS do not “get better” but I understood his reasoning… I need to sleep more,  relax more and stop running around like a crazy chick (also his words, not mine :))

It has been a mad few months really.  Stepping up my writing for the Ireland Blog Awards (being nominated and then shortlisted has finally started sinking in), going away for the MS National Day in Galway (stress about public speaking!), starting a writing course (not done a dicky-bird yet!), having to travel abroad because of the passing away of my uncle, general house-related stress (suddenly everything started breaking down), advocating better neurological services before the 2014 Budget announcement by the Irish government etc etc etc… Continue reading

Liebster Award with a twist!

Blog-award-with-a-twist awarded by my favourite blogger Experienced Tutors

Yesterday I came upon a blog post by one of my top favourite bloggers Experienced Tutors. Dean was given another blog award but because of getting so many, wanted to skip the usual format of forwarding the award and instead do something else altogether.

This tutor loves bending the rules for fun, and who could blame him. In Dean’s own words:
I have decided not to pass the award on directly but those of you want it and are willing to pass it on must earn it. :-) So, the rule is, you need to complete the following sentence: “I would love to receive the Liebster Award from Experienced Tutors because. . . ” This is not a competition because all who reply will receive the award.Continue reading

Shortlisted!

blog_awards_2013_badge_shortlistAfter a holiday which wasn’t really a holiday – flying home because a family member passed away is hardly reason to have that excited holiday feeling – and trying to sleep while having half an eye fixed on the Ireland Blog Awards 2013 website every so many hours for the last week or so, I am now still trying to figure out how I got to being shortlisted in the Personal Blog category.

Chuffed. Exhilarated. Stunned.

In the past I expressed my surprise about that peculiar kind of twist of fate which later turns out to be a blessing in disguise, and yet again I have to admit that life really is a stage show. A show of which I continuously seem to misplace the brochure but manage to grasp why things happen, have to happen or don’t happen at all. Continue reading

Sunshine Award once again!

The Sunshine Award passed my doorstep again, this time awarded by Jean, a fellow Ireland lover and indeed an inhabitant of the proudest county in Ireland: Waterford. I gladly accept the award so as Jean’s blog always brings something new every day, a picture, story or poem, always written fantastically and with lots of passion.

The Sunshine Blog award is an award given to bloggers, by other bloggers. It is given to “bloggers who are positive and creatively inspire others in the blogosphere”.

Rule 1: Link back to your nominator. 

http://socialbridge.wordpress.com/2013/08/23/sunshine-and-celebration-gatherings-from-ireland-229/#comment-5180

Rule 2: Display the Sunshine Award image as you see below: Continue reading

Waiting

Neurology waiting room in hospital. People waiting, wondering, dreading, hoping.

It is not fair. Nobody deserves to be here. Nobody is ever prepared to hear what the stranger in front of them has to say. A neurologist looks at your test results, gazing, thinking. Do they wonder how they will tell you that from this minute onwards, your life will be different, that you will have to change your lifestyle to suit your new, closest and most annoying illness, that your body had betrayed you?

Neurological illnesses walk in and out, often their illness seem larger than what they perceive themselves to be. For the ones sitting, waiting by themselves, without someone accompanying them, time goes slow. For the ones waiting with their boyfriends, spouses, parents, time is gentler. They talk about fears, or they talk about anything but the reason why they’re there. Continue reading

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