What singing taught me about life with MS

Black & white image singlng

It is hard to explain the following depth of reality. One morning shortly after my diagnosis, I woke up and thought, “From now on, I will wake up sick every day, and I need to accept that I will never get better again – unless a cure is found.”

That level of new normals isn’t easy. Then again, finding something black to wear while standing in front of a wardrobe filled with black clothes only, isn’t either. The same goes for the many pairs of black shoes, black rings, and necklaces.

Read More

Why I should be a brainiac, but I’m not

OMG shock and awe

It happened again. Just when I attempted to maximise my brain, it decided to take over and run the show. It’ll be fun, it said. But, it was so not pretty. Not even by a long mile. With so much physical pain and hence collected a fair amount of neurology-related knowledge due to life with MS, […]

Read More

The paradox of our time

Is that we have taller buildings, but shorter tempers. Wider freeways, but narrower viewpoints. We spend more, but we have less. We buy more but enjoy it less. We have bigger houses, but smaller families. More conveniences, but less time. We have more degrees, but less sense. More knowledge, but less judgement. More experts, yet […]

Read More

Ignorance

Oh, people will stalk you on Facebook on their smartphone, but do not ask them to find unprejudiced, trustworthy websites to learn something about your condition on that very smartphone. Quite often, they “will do so when they have time,” despite having their phone in their hands 50 times a day.

Read More

Lifetime membership

“Looking back at my physical self between the end of November 2009 and today, my MS took a fairly big step backwards twice. With hindsight being 20/20, retiring was the right thing to do. I cannot even begin to think where I’d be medically had I not retired, so if you want anything to work out in your life, then please let it be your early retirement.”

Read More

Conversations with myself: 2005-2006

While doing a big administration clean up, I came across some old notebooks. The one that caught my eye started on June 5th 2005, and lists MS, professional, friendship and relationship woes as I was diagnosed just two months prior. It’s very much an interior monologue trying to make sense out of nonsense. For example, […]

Read More

Oh, yes, the Blog Awards irony!

Oh the irony! That pure, untainted irony that just sits there grimacing at my lack of energy and overabundance of trigeminal neuralgia, today of all days! “What?” you ask. You who spends time with me, you know that I often live with sarcasm – I’m still DSF, a Delightfully Sarcastic Female after all. Not only […]

Read More

Wise words

While I’m not a religious person, I do respect others who are. Perhaps with the dawn of Pope Francis, I am starting to feel more open to experiencing religion. It was with this in mind that I stumbled onto a nice poem by Pope Francis that I wish to share. So for everyone, religious or […]

Read More

Faith in Ireland

Good things sometimes fall apart so better things can fall together. This is the case for people aiming to improve their lives, careers and relationships after hardship happens. Sometimes they get there from the word ‘go’ while others may require more time to reach their destination. Having faith is often necessary to be successful and […]

Read More

Letting go

Life seems like a joke, out to get you when you least expect it. People disappear from your life, but it’s not until after they’re gone that you realise how much you liked being around them. Or, you understand what being truly happy means because you’ve known absolute sadness. Or you start appreciating silence because […]

Read More

Welcome to the book fetish club!

“There are worse crimes than burning books. One of them is not reading them.” (Joseph Brodsky) There’s no certainty in life anymore. You can lose your job… just like that; you can be so stressed your heart starts beating much too fast or you can end up in fights even when you tried so hard […]

Read More

Living in Ireland: a life less ordinary

When I moved from Belgium to Ireland in 2002, I was on top of the world. I thought  knew all I had to know about Ireland and sure, I’d adapt very quickly to living life a little bit slower than I was used to. Of course I had traveled to Ireland before actually moving over […]

Read More