Tag Archives: Demyelinating Diseases

MS News: April 2017

Research Image

Highlight!

  1. Canadian Study of MS-Prone Family Proves that in Rare Cases, Multiple Sclerosis is Inherited
  2. Large Family Study Strengthens Case for Inherited Multiple Sclerosis
  3. New Survey Finds Multiple Sclerosis Patients Struggle with Misdiagnosis and Invisible Symptoms

Continue reading

MS News: March 2017

cropped-images-2.jpg

Highlight still on American Healthcare Act, the replacement plan for the Patient Protection and Affordable Care Act (ACA) released by Congress on March 6, 2017

  1. Society Releases Statement on American Health Care Act
  2. National MS Society Urges Lawmakers to Oppose American Health Care Act
  3. Reducing Out-of-Pocket Cost Barriers to Specialty Drug Use Under Medicare Part D: Addressing
  4. Researchers find patients’ annual financial burden under Medicare Part D is ‘too much too soon’

 

New book by the honourable American/Irish author and friend Trevis Gleason!

  1. Chef Interrupted: Discovering Life’s Second Course in Ireland with Multiple Sclerosis

Highlight!

  1. Blood Diagnostic Test for Multiple Sclerosis to be Released in May 2017

Continue reading

Man up!

screenshot-www-canva-com-2017-01-15-20-38-57During another stimulating chat with one of my ex-college friends, we found out that both our subject of non-admiration is Michael O’Reilly, one of Ireland’s Olympics boxing competitors who was sent home following a failed doping test during the first week of the Games. He knowingly travelled to Rio and although exempt from fighting for a title already, he kept silent for a week. Eventually, he admitted that he “unintentionally took a supplement that may have contained a prohibited substance given to him by someone unrelated to his team or association.”

Of course, by adding that he was “given the substance by someone else,” MOR is not taking full responsibility for the issue. It would be my understanding, though, that if you want to be an Olympic athlete, you don’t jeopardise your place by “unintentionally” taking things but also, that you need to be aware of everything that goes into your system. Passing on the blame in doping cases often smells like self-pity cloaked in a sense of entitlement and egotism. Continue reading

What MS looks like in your brain

Positive MS News: September 2014

image multiple sclerosis header news

It has been a big and very busy September for researchers, clinical trials and pharmaceutical companies. Early this month, the Joint ACTRIMS/ECTRIMS Meeting took place in Boston. For more, please check the extensive website of the conference. Continue reading

History of MS: 1960 – now

 

 

History of MS: 19th century

Jean Martin Charcot, 188619th century

Until the early years of the 19th century, physicians relied on superstition, hearsay, and “the wisdom of the ancients” to care for the sick. Medical ideas were not scientifically tested. Even so, physicians were often good observers and we can look back today and identify people who undoubtedly had MS from descriptions written as long ago as the Middle Ages.

Drawings from autopsies done as early as 1838 clearly show what we now recognize as MS. Then, in 1868, Jean-Martin Charcot, a professor at the University of Paris who has been called “the father of neurology,” carefully examined a young woman with a tremor of a sort he had never seen before. He noted her other neurological problems including slurred speech and abnormal eye movements, and compared them to other patients he had seen.

Continue reading

History of MS: 1900 – 1960

CC120th century

In the 19th century, scientists first learned that bacteria cause many diseases. As the 20th century began, they discovered even smaller organisms, viruses, and developed techniques for growing and studying bacteria and viruses in the laboratory. This later led to research on viral causes of MS.

In 1906, the Nobel Prize for Medicine was awarded to Dr. Camillo Golgi and Dr. Santiago Ramon y Cajal, who perfected new chemicals to enhance the visibility of nerve cells under the microscope. With this new technology now available, Dr. James Dawson at the University of Edinburgh in 1916 performed detailed microscopic examinations of the brains of patients who had died with MS. Continue reading

MS Organisations

images

Can Do Multiple Sclerosis

Consortium of Multiple Sclerosis Centers

European Committee for Treatment and Research in Multiple Sclerosis

European Multiple Sclerosis Platform

HealthCare Journey

MS-UK

MS Trust

Multiple Sclerosis Discovery Forum

Multiple Sclerosis Foundation

Multiple Sclerosis International Federation

Shift.ms

ThisIsMS

©Willeke Van Eeckhoutte and Ireland, MS and Me, 2011-2016. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner are strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

A day in the life of fatigue

1604490_718174168233342_1210291019_n Continue reading

Positive MS News: December 2013

With a bit of a delay, here is the good news in MS-world that found its way to the media in December 2013!

  1. Provincial MS strategy applauded
    Announced Nov. 25, Health Minister Fred Horne said the strategy – The Way Forward – “connects the dots” in the health care system so that Alberta’s almost 14,000 multiple sclerosis (MS) patients can access resources and find supports more easily.
  2. Teva and Takeda Announce Agreement for Glatiramer Acetate for Multiple Sclerosis Treatment in Japan
    Teva Pharmaceutical Industries Ltd. (NYSE:TEVA) and Takeda Pharmaceutical Company Limited (Takeda) today announced the signing earlier this year of an agreement in which Teva licensed to Takeda the right to commercialize Teva’s innovative glatiramer acetate (active ingredient) formulation for the treatment of multiple sclerosis, in Japan. Teva and Takeda are currently working on further agreements in connection with the implementation of this license. Continue reading

The Spoon Theory

Today I was reminded of a story I heard of a few years ago about a girl who lives with lupus and who tries to explain to a friend what life with a chronic illness, especially fatigue, is like. It is told in a very powerful and imaginative way that will hopefully shed a better light on how fatigue affects people living with MS, lupus and other illnesses that take a toll on daily life. In my view, it is the best piece of writing about fatigue I have ever read.

As you know, one of my main disabilities is severe fatigue which is sometimes so energy-sapping that walking from my bed to the fridge asks for a rest in between. From the moment this level of tiredness became troublesome, I’ve been looking for the right words to explain to people what it feels like. Sadly there have been times where I was unsuccessful in explaining medical fatigue. Hopefully this story will help.

The Spoon Theory, ©Christine Miserandino

SpoonGirlHat-150x150My best friend and I were in the diner, talking. As usual, it was very late and we were eating French fries with gravy. Like normal girls our age, we spent a lot of time in the diner while in college, and most of the time we spent talking about boys, music or trivial things, that seemed very important at the time. We never got serious about anything in particular and spent most of our time laughing.

Continue reading

MS News: September 2013

Just because multiple sclerosis too often has a negative undertone, here is some good news that was published online lately!

  1. Gene discovery!
    Gene discovery is major step towards finding cure for multiple sclerosis, researchers believe.
  2. Brand new helmet!
    Harding, the Minnesota Wild backup best known as the winner of the 2013 Masterton Trophy for his courageous fight against Multiple Sclerosis, has a history of working up some pretty sweet helmets with artist Todd Miska.
  3. Vitamin D: reverse or halt?
    In search of a better option for MS patients, a team of University of Wisconsin-Madison biochemists has discovered a promising vitamin D-based treatment that can halt — and even reverse — the course of the disease in a mouse model of MS. Continue reading

Beware of the thief!

In between trying to set up a new laptop today and resting enough before another batch of daily tasks comes my way, I came across an email about MS and the question what MS has stolen from us.

In her blog post, Nicole Lemelle says “Multiple Sclerosis robs us of our outside roles and independence. Which most times amounts to our identities”.

So where do I begin? Do I even want to answer this?  Will it lead to feelings I thought half forgotten?

Continue reading

Dissecting words

“Billie… smile!”

“Billie, this is a business company, not the beach!”

“Oh Bee, you’re such a bad dancer!”

“It must be great being on sick leave so much; it’s like being on a long holiday!”

“Look at her, Monday morning and still drunk!”

These sentences might just be background noise to some, but to a person with a neurological illness, those words can cut like tiny slithers of glass. Continue reading

%d bloggers like this: