Single and chronically ill on Valentine’s Day?

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So, you’re single.

And chronically ill.

On Valentine’s Day.

But, what the heck, you don’t care.

You don’t care because you’re an alpha-woman even when you sometimes feel like a z-woman… zonked out on meds on the couch.

You don’t care because, seriously, you don’t have to go shopping to find sexy lingerie that’ll only cut off your air supply while wearing it.

You don’t care because you know that the only thing you can find in a chocolate box is a raised BMI.

You don’t care because you don’t thrive on baggage left behind by old flames. Continue reading “Single and chronically ill on Valentine’s Day?”

200 days

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200 days.

Being a perfectionist, of course, it had to be precisely 200 days.

Six months and nineteen days between my first multiple sclerosis symptoms and its very diagnosis.

Little did I know that it would eventually transform my life.

It was September 2004, and I had just dropped off my mother at Dublin Airport for her return to Belgium. On the way home, a strange sensation took hold of the left side of my face, as if it had been injected with thick rubber. Thinking nothing of it, I went back to bed to catch up on lost ZZZs.

I slept for hours.

And hours. Continue reading “200 days”

Being real!

Imagine, you’re stuck with me in an utterly crazy, hilarious episode of The Big Bang Theory. Let your imagination run riot, especially since this post has some gender reversal role playing added to it.

There is the ditzy Penny-type of person who thinks along the lines of “Not seeing = questioning = perhaps, possibly, maybe believing”. She thinks it’s hard to value the worth of something when it’s not visible, but given time to learn, she might just try and see things your way.

And then there is Leonard, who knows that he’s not on the same score card as some of his contemporaries. He knows that there is truth in the world, and more importantly, inside him. He says, “Stop questioning me. It exists, I have tangible proof, and I will demonstrate it to you until you let go.”

Continue reading “Being real!”

Conversations with myself

14222347_1101763419917442_6482430576462991914_nNot that long ago I was caught talking to my MS medication – all 28 tablets a day – in the hope they’d finally get their act together and start doing what they’re supposed to. Work. Things. Out.

I believe the phrase was, “If you are my Ross, I will be your Rachel.”

Sure, I’ve thought crazier things than that. If people would know what I’m thinking half the time, they’d take me straight to emergency and say I tore all the ligaments in my head.

Two of the biggest life lessons MS taught me, is that you can just as well have fun, and what you think, you become. A bit of semantics here and there. A touch of rhetoric too. And a tiny bit of Ubuntu if you like. Rather like, “I’m medically fascinating.”

I’m chronically fabulous too.

(Or so I am told)

I step on my own toes and hurt my own ego for the sake of applying a bit of black humour to the conversation to stop the person in front of me worrying about my physical state. So, I’ll be damned before I start taking myself too seriously. Stepping outside the box doesn’t work because I was never in the box, to begin with, and I never will be. Continue reading “Conversations with myself”

I want…

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© Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2016. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner are strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

Ignorance

Being Real image

I could call this a ‘letter to society’s ignorance’.

I could very well call it a ‘letter to my stupidity’.

While I will ponder about a suitable heading for this piece a bit longer, the topic is so well-known and dreaded, it is part of the dark fabric of life.

Continue reading “Ignorance”

But you don’t look sick!

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© Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2016. Unauthorized use and duplication of this material without express and written permission from this blog’s author and owner are strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

Let’s be frank

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“Life is 10% what happens to you and 90% how you react to it.”
(Charles Swindoll)

If you’re running behind on making a few new year’s resolutions, or perhaps call them ‘new year’s illusions’ by now instead, all is not lost. There are small things you can work on every day of the year.

Given its absurd sense of unpredictability, life with MS is challenging at the best of times. Anything turbulent added to it, and it soon becomes a slalom course with so many twists and turns that each one seems icier than the ones before. Continue reading “Let’s be frank”