Tag Archives: Chronic Illness

MS News: March 2017

Please allow me some nepotism and introduce you to the honourable American/Irish author and my friend Trevis Gleason! He penned a fantastic, witty, humorous and moving memoir about a very unexpected MS diagnosis, ending an old and starting a new career and fulfilling his dream of living in Ireland. You can buy his book here:

  1. Chef Interrupted: Discovering Life’s Second Course in Ireland with Multiple Sclerosis

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clinical-trials

Highlight still on American Healthcare Act, the replacement plan for the Patient Protection and Affordable Care Act (ACA) released by Congress on March 6, 2017

  1. Society Releases Statement on American Health Care Act
  2. National MS Society Urges Lawmakers to Oppose American Health Care Act
  3. Reducing Out-of-Pocket Cost Barriers to Specialty Drug Use Under Medicare Part D: Addressing
  4. Researchers find patients’ annual financial burden under Medicare Part D is ‘too much too soon’

New book by the honourable American/Irish author and friend Trevis Gleason!

  1. Chef Interrupted: Discovering Life’s Second Course in Ireland with Multiple Sclerosis

Highlight!

  1. Blood Diagnostic Test for Multiple Sclerosis to be Released in May 2017

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0% responsibility – 100% accountability

1ebc241f7cb451636a9ff3ccedcf4945Imagine this… Some time ago you were finally able to give answers to these two questions, “Who am I, and what is my purpose in life?” While admitting the questions were rather philosophical as well as personal, you are suddenly thrown back to square one, and you once again want to find out who and what.

Ouch.

Like most people, my answers came and went as every meaningful tide in life left a new imprint on my senses. Continue reading

Single and chronically ill on Valentine’s Day?

Valentine'sDay Image

So, you’re single.

And chronically ill.

On Valentine’s Day.

But, what the heck, you don’t care.

You don’t care because you’re an alpha-woman even when you sometimes feel like a z-woman… zonked out on meds on the couch.

You don’t care because, seriously, you don’t have to go shopping to find sexy lingerie that’ll only cut off your air supply while wearing it.

You don’t care because you know that the only thing you can find in a chocolate box is a raised BMI.

You don’t care because you don’t thrive on baggage left behind by old flames. Continue reading

200 days

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200 days.

Being a perfectionist, of course, it had to be precisely 200 days.

Six months and nineteen days between my first multiple sclerosis symptoms and its very diagnosis.

Little did I know that it would eventually transform my life.

It was September 2004, and I had just dropped off my mother at Dublin Airport for her return to Belgium. On the way home, a strange sensation took hold of the left side of my face, as if it had been injected with thick rubber. Thinking nothing of it, I went back to bed to catch up on lost ZZZs.

I slept for hours.

And hours. Continue reading

Being real!

beingrealImagine, you’re stuck with me in an utterly crazy, hilarious episode of The Big Bang Theory. Let your imagination run riot, especially since this post has some gender reversal role playing added to it.

There is the ditzy Penny-type of person who thinks along the lines of “Not seeing = questioning = perhaps, possibly, maybe believing”. She thinks it’s hard to value the worth of something when it’s not visible, but given time to learn, she might just try and see things your way.

And then there is Leonard, who knows that he’s not on the same score card as some of his contemporaries. He knows that there is truth in the world, and more importantly, inside him. He says, “Stop questioning me. It exists, I have tangible proof, and I will demonstrate it to you until you let go.”

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Conversations with myself

14222347_1101763419917442_6482430576462991914_nNot that long ago I was caught talking to my MS medication – all 28 tablets a day – in the hope they’d finally get their act together and start doing what they’re supposed to. Work. Things. Out.

I believe the phrase was, “If you are my Ross, I will be your Rachel.”

Sure, I’ve thought crazier things than that. If people would know what I’m thinking half the time, they’d take me straight to emergency and say I tore all the ligaments in my head.

Two of the biggest life lessons MS taught me, is that you can just as well have fun, and what you think, you become. A bit of semantics here and there. A touch of rhetoric too. And a tiny bit of Ubuntu if you like. Rather like, “I’m medically fascinating.”

I’m chronically fabulous too.

(Or so I am told)

I step on my own toes and hurt my own ego for the sake of applying a bit of black humour to the conversation to stop the person in front of me worrying about my physical state. So, I’ll be damned before I start taking myself too seriously. Stepping outside the box doesn’t work because I was never in the box, to begin with, and I never will be. Continue reading

I want…

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© Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2016. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner are strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

Ignorance

Being Real image

I could call this a ‘letter to society’s ignorance’.

I could very well call it a ‘letter to my stupidity’.

While I will ponder about a suitable heading for this piece a bit longer, the topic is so well-known and dreaded, it is part of the dark fabric of life.

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