People with disabilities aren’t broken
"Being chronically ill, physically or mentally, not everyone is less intelligent or less capable. It doesn't make you any less, and it doesn't change your core values."
Peak moments!
"Thinking of life, writing, and more writing. Letting my life, my body be an empty canvas on which to write, to build. Not as an excuse for myself, but a tool for others to learn from."
Wonder Woman Syndrome
"Having dissenting views on the verb ‘to pace,’ it is one I need to add seriousness as well as a lot more thought into. Having a Wonder Woman Syndrome is a term I sometimes carry with pride."
Kids? Not right now, please…
Children and multiple sclerosis? Although life was good in my last relationship, I secretly decided that having children would probably not be on my list of things to do. Not because of the lack of love, but because I didn’t want to pass on my illness to my future son or daughter. When we eventually talked about possibly mixing my illness with his screaming babies and hectic lifestyle, I realised that in quiet, I made the right decision. Being broody comes with being female, and despite my decision, I still get broody sometimes. If it wasn’t for MS, I absolutely would’ve wanted children. One of the few nice things about being chronically ill and being childless is however, when looking after children of friends and family, you can give their…
The social swing of life
"It’s easy for relationships to become frayed because people interpret your life from their own 2-D perspective on a laptop, smartphone or tablet, and not from shared, interpersonal communication or experiences. Perhaps active listening has become unintentional hearing. Feeling compassion every so often turns to judging."
MS News: June 2014
Research results Fatigue in Multiple Sclerosis Linked to Regional Brain Damage Multiple Sclerosis News Today – Fatigue, a common symptom of multiple sclerosis, could be a result of regional damage in the brain. Multiple sclerosis Reactivation of Epstein–Barr or herpes viruses not associated with MS relapse Nature.com – Infection with the Epstein–Barr virus or human herpesvirus 6 is associated with the initial onset of multiple sclerosis (MS) SLU researchers see possible answer to chemo pain in a multiple sclerosis drug Science Codex – A medication called FTY720 (Gilenya) is FDA-approved as a therapy for multiple sclerosis. Researchers publish one of the longest longitudinal studies of cognition in multiple sclerosis Medical Xpress – The article, “Cognitive impairment in multiple sclerosis: An 18-year follow-up study,” was epublished by Multiple Sclerosis and Related…
Game, set, relapse!
"In short, if I’d have to sell myself with these words, I still wouldn't receive a Booker prize. I could post “Another MS Relapse” award on the fireplace mantel, but they’re just a waste of space. I thought of referring to a relapse as something you just have to get your teeth in, but I don't want to steal Luis Suárez's limelight."