MS News: November 2014 (*F)
"Hoping for a cure? Of course. I am realistic though, as it might not happen in my lifetime. Simply being part of the solution, is all I wish for right now. Whichever comes first, the 8,000 people with MS in Ireland, 100,000 in the UK, 400,000 in the US and many other people around the world are looking forward, and simply... hope."
Ireland Blog Awards 2014 certificates
Happy days! The certificates of the Ireland Blog Awards 2014 finalists arrived today so I can now frame them and give them a nice place on my walls. I want to thank everyone once again for voting me in, and for the continuous support. Without sounding too cliché, I would not be able to keep on writing if it wasn’t for all the good intentions, friendship and love you’ve given me so far. © Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2014. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with…
Conversations with myself: 2005-2006
While doing a big administration clean up, I came across some old notebooks. The one that caught my eye started on June 5th 2005, and lists MS, professional, friendship and relationship woes as I was diagnosed just two months prior. It’s very much an interior monologue trying to make sense out of nonsense. For example, I wrote about the last meeting with my dog Wolf right before he was put down. Questions about certain relationships also feature heavily as a new me was now meeting new demands, wishes etc. In the next few weeks, I will be publishing parts of my diagnosis diary, so keep an eye on my blog. For more: Dogs, miracles with paws See you then! ©Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2014. Unauthorised…
Making Sense of MS
One of the many things people newly diagnosed with MS (PwMS) look for is information on what their illness will have in store for them. From thinking back to when I was discovering what MS might be like, I remember an overwhelming feeling of “where on earth do I even begin?” when I finally went online. I was numb and in denial but knew I had to find out more if I wanted to create a realistic idea of it. Approximately 5,000 people are newly diagnosed with MS each year in the UK, and for this reason, the MS Trust commissioned the “Making Sense of MS” resource to highlight the need for more information at the time of diagnosis.
Resilience
"Most of all, though, I had once again come to the realisation that I unfortunately need more sleep than the average, healthy person. At this stage so, I must start considering my continuous fights against tiredness and “forgetfulness” about needing a lot of sleep, as a pure character flaw. Perhaps I should also consider this forgetfulness a deliberate act of personal terrorism because who doesn’t like being busy? Who doesn’t like being able to get up in the morning and continue to work and stay awake for the next 12+ hours without falling asleep after 2 hours?"
MS News: October 2014
“54 New MS Research Projects to Receive Millions of Dollars in Funding.” I can only jump up and down like a child at Christmas reading about this. Even if or when we’re struggling with our illness, we know that lots is happening to help us forward in life. So please, enjoy the list with research & clinical trial news, updates on current medication and business & general news."
Depression?
"There is indeed no shame in being depressed. It can happen to any of us, for any reason and at any time. Nobody is protected from those deep, dark clouds in your mind. Inspired by my friend's words and strength, I hope to keep the circle of hope for better days going. When all is said and done, let's be the heroes of our own darkest of days."