MS News: March 2017
Highlight still on American Healthcare Act, the replacement plan for the Patient Protection and Affordable Care Act (ACA) released by Congress on March 6, 2017 Society Releases Statement on American Health Care Act National MS Society Urges Lawmakers to Oppose American Health Care Act Reducing Out-of-Pocket Cost Barriers to Specialty Drug Use Under Medicare Part D: Addressing Researchers find patients’ annual financial burden under Medicare Part D is ‘too much too soon’ New book by the honourable American/Irish author and friend Trevis Gleason! Chef Interrupted: Discovering Life’s Second Course in Ireland with Multiple Sclerosis Highlight! Blood Diagnostic Test for Multiple Sclerosis to be Released in May 2017
Balancing life and a chronic illness
Oh, you can bet I am willing, I am usually more than willing. When physical restraints curb your potential, you realise that you want so more from your own life, and out of your own reality. Life is moving forward outside your medically induced world, and you feel annoyed when healthy people don’t realise the worth of their bodies, their unused potential. It simply reminds you that being chronically ill sucks.
UNCRPD, Ireland’s ten-year moral outrage
Having a neurodegenerative illness that cannot be cured has given me the best gift I could ever ask for, strength and meeting the most inspirational and brightest people with disabilities in Ireland and abroad. Yes, they might "be different" in the eyes of many, but they showed me that not everything in life has a price or a tag. They taught me that disability is about misinterpreted ability because they help other people with or without disabilities within their communities in a time when their government shows signs of deliberate discrimination.
0% responsibility – 100% accountability
Today, I joke about not being perfect or about my mind behaving like a repetitive software update that refuses to stick after a few busy days. I may add that my bones rattle and that I have a Club Med-type relationship with three different hospitals, my primary care physician and my pharmacy. Or, I forget my name, fall asleep at fancy receptions, need an hour to cut three peppers and two onions and sometimes need to nag to myself to get things done.
MS News: February 2017
February's news about MS treatments, research, clinical trials, lifestyle choices, what if Obamacare is repealed (Affordable Care Act) and much more!
UNCRPD in Ireland – begging for change
Over the years, many extraordinary, inspiring people with disabilities have shown how they have rocked the world in their unique way. What the likes of Trump might regard as incompetence, I have seen extremely able, courageous people who have raised the bar not only for themselves but for others as well. They are living proof that having a disability is not the end of the road. There is, in fact, a whole world ahead of you. It might be good to remember these strong words from Michelle Obama, “When they go low, we go high.”
MS News: January 2017
Go red to Kiss Goodbye to MS campaign! Supporters in County Donegal asked to Help Kiss Goodbye to MS Supporters in county Longford asked to Help Kiss Goodbye to MS Co Leitrim people are being asked to help ‘Kiss Goodbye to MS’ Highlight! The top 10 drug launches of 2017 The year in new drugs
