My Christmas heroes
Those who willingly and therefore as blindly as I was, kept walking beside me are the heroes in this fourteen year long tale of chronic illness, daily wretched pain and forgiveness, of daily adaptation and understanding.
Time heals, perhaps even MS
As you move on in life, you will find that perhaps your diagnosis was something that needed to happen to see what is really important in life. It is not an expensive new car, clothes, jewelry. It’s health and acceptance, though flawed the best of times.
Winner Best Blog Post 2018 in the Ireland Blog Awards!
Like Roy Keane’s dog Triggs, I also ponder the undeniable finiteness of life and how best to get through it unscathed.
In search of my MS Zen
Despite having my inner dialogue running into philosophical mayhem, parameters on what I perceived to be acceptable have been reset, and my inner dialogue needs a fix as an intuitively sharp anguish took over my mindset last week.
Giving up?!
But, MS is the keeper of secrets. Not just for a day, but forever. So, rewrite your narrative, embrace its playful game of cards waiting for you to chase triumphs during times of adversity.
Pull up your big girl panties!
Let me count… Roughly speaking, I was diagnosed with MS about 5000 days ago. That’s one fair bit of experience under my hood, right? But… When talking to people, new or otherwise, it can be difficult telling them you’re living with an incurable neurodegenerative illness. Sometimes it feels like being in an uninterrupted car crash, minus the brakes, seatbelt or the steering wheel, especially when they add their own preconceived ideas about MS based on hearsay or pop-culture folly. Even if you’ve been living with MS for a decade or for just one day, you’re occasionally hitting walls of guessing, worries, disbelief and/or anger at each turn. You’re in denial. (they’re probably as well at first) You’re angry. (there’s a fair chance they are trying to remain cool under pressure when you…
You retired at age what?
So, yes, I retired at age 36,5 and it will never be what I envisioned when I moved to Ireland. I ‘ve crashed and burned, stumbled and found hope in tiny triumphs and friendships larger than life that will stand the test of time.
