Positive MS News: August 2014

Image of gene control in brain

August 2014 has been a great month for people with neurological illnesses, as they finally saw their type of illness broadcast, and indeed, doused by ALS ice bucket challenges.

To quickly place ALS amongst other neurological illnesses, perhaps the most famous person with ALS is Stephen Hawking, a person hero of mine since my teenage years. ALS, also called MND (Motor Neurone Disease and Lou Gehrig’s Disease), is similar to multiple sclerosis, and has several causes. A lot of money has gone to charitable organisations supporting ALS as well as other neurological illnesses.

In short: finally attention is on people living with a neurodegenerative (in other words: progressive) illness. The bucket challenge, my blog and many others, is just a tiny bit of proof of life with a progressive illness..

Research news

  1. Multiple Sclerosis and Osteoporosis: What’s the Connection?
    Healthline – At first glance, multiple sclerosis (MS) and osteoporosis appear to be two very different diseases. One attacks the nerves and the other the bones. But dig a little deeper and it’s clear they have a lot in common.
  2. Natural Multiple Sclerosis Treatment Review Reveals the Inside Story to Gary M. Levin’s Cure …
    DigitalJournal.com – The Natural Multiple Sclerosis Treatment review recently published by Daily Gossip reveals the inside story to Gary M. Levin’s cure program.
  3. Nanotechnology a Possible Future Solution for Multiple Sclerosis
    HCPLive – A University of Southern California (USC) PhD student has announced plans to develop a model of a human brain that can mimic the electrical circuit pathways of multiple sclerosis (MS) and other neurological diseases that can affect patients.
  4. MS and Sex
    Huffington Post – Before an MS award dinner last week, I sat down with nine guys from the Mandell Center for Multiple Sclerosis in Hartford. Mandell deals with urological issues related to MS. This is the only program of its kind in the country. These guys were a support group.
  5. Experts say new hope for those with M-S, as transplants might be the key to the future
    KCBD-TV – Six months ago, he had a stem cell transplant, and now, a new treatment is giving Dan and other patients with multiple sclerosis a whole new outlook.
  6. HIV May Protect Against Multiple Sclerosis
    Medscape – New research supports an association between HIV infection and a reduced risk for multiple sclerosis (MS). Investigators at the Prince of Wales
  7. Yale scientists track origins of multiple sclerosis
    HealthCanal.com – Research in the News: Yale scientists track origins of multiple sclerosis, autoimmune response that is involved in multiple sclerosis (MS) was once thought to be confined to the brain.
  8. No Link Between Vitamin D Levels in Newborns and Multiple Sclerosis
    Science World Report – Multiple sclerosis (MS) is one of the most disabling neurological diseases that affect 250,000-350,000 people in the U.S.
  9. Gene that controls nerve conduction velocity linked to multiple sclerosis
    EurekAlert (press release) – Investigators report that even minor reductions in conduction velocity may aggravate disease in multiple sclerosis (MS) patients and in mice bred for the MS-like condition experimental autoimmune encephalomyelitis (EAE).
  10. Multiple Sclerosis Symptoms Aggravated By Genetic Alterations in Patients
    Multiple Sclerosis News Today – genetic alteration in MS While the majority of scientists dedicated to multiple sclerosis research focus on genetic regulators of conditions such as as autoimmunity, demyelination, inflammation, and neurodegeneration, a team from the University of Lubeck in Germany, led by Saleh M. Ibrahim, MD, PhD, focuses on genetic regulators of conduction velocity.
  11. Everyday Health Examines Link Between Heat and Multiple Sclerosis
    MarketWatch – Everyday Health, the leading digital health and wellness company, examines the link between heat and multiple sclerosis (MS).
  12. Researchers Find MS Drug Fingolimod Decreases Gd-enhancing Lesions
    Multiple Sclerosis News Today – fingolimod and RRMS Fingolimod is a disease modifying therapy (DMT) used to treat relapsing remitting multiple sclerosis (RRMS) patients as well as patients who continue to present with relapses despite treatment with beta interferon drugs.

Clinical trials

  1. Expanded Data on Disability and Cognitive Improvements in Phase II Study of Synthetic Biologics …
    MarketWatch – The data will be presented at the 2014 Joint Americas and European Committees for Treatment and Research in Multiple Sclerosis Meeting
  2. Research and Markets: Relapsing Multiple Sclerosis (RMS) Global Clinical Trials Review, H2, 2014
    DigitalJournal.com – Our clinical trial report, Relapsing Multiple Sclerosis (RMS) Global Clinical Trials Review, H2, 2014″ provides data on the Relapsing Multiple Sclerosis.
  3. Data From Multiple Sclerosis Study of Trimesta For Disability, Cognitive Improvements in Women …
    Multiple Sclerosis News Today – Multiple Sclerosis, an immune-mediated disease whereby progressive neurological degeneration leads to pain, loss of muscle control, paralysis.
  4. 90 Secondary Progressive MS Patients To Be Recruited To Test Novel Experimental Therapy
    Multiple Sclerosis News Today – It has begun to recruit patients with Secondary Progressive Multiple Sclerosis (SPMS) for its phase 2B trial of its experimental therapy MIS416.

Medical treatment news

  1. NYSCF Scientists Closer to Developing Cell Replacement Therapy For Multiple Sclerosis Patients
    Multiple Sclerosis News Today – Since multiple sclerosis is a chronic demyelinating disease of unknown etiology that affects the central nervous system, with current therapies primarily directed to work against the immune system.
  2. Complementary and Alternative Medicine is Gaining Credibility Among MS Patients
    Multiple Sclerosis News Today – Complementary and alternative medicine (CAM) are no substitutes for the regular treatment of multiple sclerosis (MS).
  3. FDA approves Biogen’s multiple sclerosis drug
    wwlp.com – Multiple sclerosis is a disease of the immune system in which the body attacks the brain and spinal cord. Its symptoms can come and go, often reappearing months later.
  4. New Treatment for Multiple Sclerosis Can Be Expected
    TWC News – More than 3.5 million people worldwide have multiple sclerosis. Most of these people are found in the United States; it affects women in their prime.
  5. Anti-psychotic drugs to be used in Multiple Sclerosis study
    TVNZ – New Zealand researchers have been given the green light to trial new treatments on multiple sclerosis patients using anti-psychotic drugs.
  6. Cannabis-based medicine for multiple sclerosis patients will be available on the NHS in Wales
    Daily Mail – A cannabis-based drug designed to alleviate the symptoms of multiple sclerosis is to be made available on prescription in Wales.

General news

  1. Cleveland Clinic app helps assess multiple sclerosis symptoms
    iMedicalApps – Neuroscientists at the Cleveland Clinic have developed an iPad-based tool for assessing disability and symptoms from multiple sclerosis.
  2. Big Multiple Sclerosis Conference Scheduled For September in Boston
    Multiple Sclerosis News Today – President of the Americas Committee for Treatment and Research in Multiple Sclerosis (ACTRIMS), Suhayl Dhib-Jalbut, publicly announced the details of this year’s MSBoston2014 conference, in collaboration with the European Committee for Treatment and Research in Multiple Sclerosis (ECTRIMS).

Business news

  1. Regulus Enters Into New Collaboration Agreement with Biogen Idec to Identify microRNA …
    MarketWatch – “Our collaboration has made significant progress to date and we are hopeful to continue to help advance Biogen Idec’s leading multiple sclerosis the discovery and development of innovative medicines.
  2. Global Market for Multiple Sclerosis Disease-Modifying Products to Reach Nearly $142 Billion by …
    IT Business Net – MULTIPLE SCLEROSIS (MS) DRUGS AND BIOLOGICS: TECHNOLOGIES AND GLOBAL MARKETS, the global market for multiple sclerosis (MS) disease-modifying products reached nearly $10.9 billion in 2013.
  3. 5 companies that will get a boost from Ice Bucket Challenge
    New York Post – Biogen’s second-quarter profit blew past expectations in July due to demand for its multiple sclerosis treatments. Its shares are up 12.5 percent over the last month and 22 percent since January.

For more postive MS news, please check the menu bar for news from September 2013 onwards.

If you find a website you think might or should be added here, please email me on billie@ireland-ms.com

© Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2014. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

8 thoughts on “Positive MS News: August 2014

  1. Reblogged this on Outside The Box and commented:
    Hi Billie
    Thanks so much for all this information. Could I ask a favour please? Do you know of anything at all that can help ladies with MS who are on the menopause? You know how heat floors PWMS? Well dear God these hot flushes are flooring me literally, every 15 to 20 minutes now and that is 24/7 every single day. It wakes me at night, can’t remember the last time I had more than an hours sleep. I can cope with all the other symptoms but each hot flush brings nausea, dizziness, and whole body weakness. I try and put on a brave face around others but I’m really suffering badly. I just wondered if you knew of anything natural that may help alleviate it. No prescription drugs. Please don’t worry at all if you don’t know of anything. Thanks Billie, love Su x

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  2. Hi Billie
    Thanks so much for all this information. Could I ask a favour please? Do you know of anything at all that can help ladies with MS who are on the menopause? You know how heat floors PWMS? Well dear God these hot flushes are flooring me literally, every 15 to 20 minutes now and that is 24/7 every single day. It wakes me at night, can’t remember the last time I had more than an hours sleep. I can cope with all the other symptoms but each hot flush brings nausea, dizziness, and whole body weakness. I try and put on a brave face around others but I’m really suffering badly. I just wondered if you knew of anything natural that may help alleviate it. No prescription drugs. Please don’t worry at all if you don’t know of anything. Thanks Billie, love Su x

    Like

    1. So sorry to hear that, Su. It’s quite annoying when this happens. What I can remember from other people with MS and menopause is that it’s often difficult to differentiate between menopause-induced hot flushes, or between MS-induced Uhthoff’s symptoms.

      Taking sage (scientific name Salvia officinalis) herbs in tea form as well as tablet form can help (http://www.34-menopause-symptoms.com/night-sweats/articles/can-sage-help-night-sweats.htm)

      This is what I could find on the Women with Disabilities Australia website: “Coping strategies included exercise, diet, spirituality, meditation, rest, lots of cool showers, hormone replacement therapy, and remedies like acupuncture, dong quai, algae and vitamin B complex.”

      Also, “For hot flashes, these could include dressing in layers of natural fibres, sipping cool drinks and using a fan. Avoid alcohol, smoking, hot beverages and highly spiced food. Vitamin E, evening primrose oil, wild yam cream, motherwort and ginseng may assist.” (http://wwda.org.au/issues/health/health1995/menop1/)

      Something else that might help is a cooling vest; I know people who wear them and they say it’s the best way to cool down quickly: http://www.veskimo.com/cooling-vest-ms-medical.php

      Otherwise I’d suggest talking to your GP or nurse to see if there is something else you can do. I know from experience that sweating can be awful (I have them as side effects from medication) so it might be good to talk to a doctor.

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      1. Ahh Billie thank you so very very much for all this information, I can’t access my notifications from my iPad, I’m on my friends phone ATM and have just got all this. Thank you again, you are one in an MS million, such an inspiration. Are you keeping well? Last time I caught up with you, you were not too good. I do hope things have calmed down inside and the attack hasn’t done too much damage. On the 19th Sept I’m seeing an MS nurse for the 1st time.Ive been trying to get to see a neurologist since March as I have other neuro probs not just MS and I’ve been told no, not until I’ve seen a nurse. The world’s gone bonkers. I haven’t seen a neurologist for about 4 years. Take good care lovely lady and thank you so much. Su x

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