Things that make you love and hate MS resolutions

strong-women

“I must work towards a new set of ears,” I thought, blissfully unaware that getting these would be a herculean feat of biomechanical engineering. No matter how much I wished to exchange one of my senses because of bouts of noise intolerance, I had to retort to the usual, “Ah, the joys of life with MS” when laughing about another one of my MS-induced naps the following day.

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Happy World MS Day!

Header doctor hallway hospital

Let’s do our bit to advance research until we find a cure. and be part of the solution instead of the problem!

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Oh my god, I am (so not) dying!

Life with MS can be awkward. It can be puzzling. It is unquestionably easier said than done. It’s the little things that are happening inside your central nervous system that can make you stumble as if your body reinvents and transforms itself without your consent as if the ‘old’ you is suddenly not good enough anymore.

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200 days

“To many, life with MS can seem like a book where letters have been replaced by numbers or where the cover can be too hard or too soft for its content. Because of this, I don’t want them to see what MS can turn into. I refuse to show them that there is no cure, I refuse to give them a reason to give up on me. In my view, it is very much a case of the illness being mine, but the tragedy theirs if I let them.”

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MS News: August 2016

Below are some MS-related topics that made the headlines this month. Do come back to check again, though, as the list will be updated every three days. Highlight! Guidelines for Neuropsychological Research in Multiple Sclerosis Multiple Sclerosis Journal Johns Hopkins Medicine: Multiple Sclerosis Benign MS Multiple System Atrophy Research $2 Million Grant to Study Fatigue in […]

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MS News: July 2016

The latest news on MS research, clinical trials, treatments, mental health, diet, exercise, lifestyle as well as business news and videos.

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MS News: May 2016

Highlight! People with MS Share How They Are Stronger Than MS and Maintain Independence on World MS Day May 25 Research Hebrew University and Aurum Ventures Team to Create a Diagnostic Blood Test for RRMS JC Virus Carries a Mutation in MS Patients That Amplifies Brain Disease Known as PML MS and Young Adult-onset Hodgkin […]

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World MS Day 2016

As each day passes with life with MS, it’s worth noting that quite often, there is still a large information gap to be filled on a medical, emotional, societal and political level. Like many other disease groups, the MS community wants to enhance “Life with…” once a year in a bid to give more insight […]

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MS News: April 2016

Highlight! New injectable multiple sclerosis drug given go-ahead  Smoking Cessation Decelerates Brain Volume Loss in Multiple Sclerosis Research Catching glandular fever can prevent multiple sclerosis Drug boosts myelin regeneration in mice raising hope of future treatments for MS Gut Bacteria Affects Myelin Content and Induces MS-Like Depression in Mice, Study Reportsultiple sclerosis development risk linked with […]

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MS News: March 2016

Highlight! Researchers spill the beans on coffee and MS Health Benefits Of Coffee: Multiple Sclerosis Risk Lower In People Who Drink More Java Daily Coffee may help combat Multiple Sclerosis (MS) Research Diabetic Oral Drugs Like Metformin Eased MS Symptoms in People with Both Diseases, Study Reports Signaling Molecule Seen to Induce CNS Remyelination in […]

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MS News: February 2016

Highlight! SHEMAR MOORE JOINS KISS GOODBYE ACTRIMS 2016 ACTRIMS 2016 Talk Weighs Clinical Differences, Similarities in 2 Major Forms of MS Results of New SPMS Study to Be Presented at ACTRIMS Effects of Specific Antibodies on MS Neurodegeneration to Be Presented at ACTRIMS Forum Treadmill Exercise Benefits MS Patients, According to Study Presented at ACTRIMS Forum […]

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MS News: January 2016

Highlight! Multiple sclerosis in 2015: Managing the complexity of multiple sclerosis Cancer Treatment Shows “Remarkable” Ability to Reverse Multiple Sclerosis Symptoms

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MS News: November 2015

Highlight! Multiple sclerosis health news roundup 2015: MS prevention and treatment breakthroughs Study To Test Impact Of Chocolate On Multiple Sclerosis Fatigue Oxford Brookes to Study if Chocolate Could Actually Help Cure Multiple Sclerosis Chocolate could ease multiple sclerosis symptoms

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MS News: October 2015

It was a busy month. ECTRIMS (European Committee for Treatment and Research in Multiple Sclerosis Congress; October 7 – 10, 2015 in Barcelona) came and went, with insight and data offered on existing and new therapies.

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]MS News: September 2015

Highlight! Less vitamin D and melatonin bad for multiple sclerosis Multiple sclerosis relapse risk influenced by melatonin levels Melatonin could help treat multiple sclerosis Melatonin Linked to Seasonal Relapses of Multiple Sclerosis

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MS News: August 2015

Vitamin D research was once again a recurring news story this month, with more studies linking lack of vitamin D to MS. Also widely reported was the news Novartis bought GlaxoSmithKline’s remaining rights to Ofatumumab, an investigational multiple sclerosis medicine, for up to $1 billion. Highlight! Gene study finds link between multiple sclerosis and low […]

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MS News: July 2015

Because of the summer holidays, less positive news has filtered through. Either way, enjoy, and hopefully more next month! Research Gene Regulating Treatment Response in Multiple Sclerosis Identified New Study Evaluates The Role of MRI in Monitoring MS Progression Multiple Sclerosis Nano-Drugs in Liposomes Could Treat Multiple Sclerosis Altered Immune Cells in Relapsing Remitting Multiple […]

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MS News: June 2015

There’s only one topic in the Highlight! part of the good news list this month. In my view, more private firms should be involved in clinical research, sponsorships of medical institutions etc. In essence, it’s in everyone’s best interests, i.e. everyone’s health, theirs included. What’s your view on this? Answer below!

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MS News: May 2015

New additions: news about MS and diet, exercise etc. More will follow soon! Highlight! Hawaii Legislature approves medical marijuana dispensaries Medical marijuana registry in Quebec called world’s first Texas Senate Approves Medical Marijuana Bill State health officials unveil new marijuana dispensary rules

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MS News: April 2015

Research news Miconazole and clobetasol may be effective as multiple sclerosis therapies Drug Derived From Sea Anemone Shows Promise Against Psoriasis, MS Novel Drug From Nature Shows Early Promise ‘Brainbow’ illuminates cellular connections MS Association of America releases 2015 multiple sclerosis research update B Vitamin Promising in Progressive Multiple Sclerosis Phenytoin protects against optical damage […]

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10 years: a lot to be thankful for

“MS itself? It took my job, but it doesn’t own me. MS doesn’t get praise for having me. No matter how bad MS treats me in the future, I am its CEO instead. I will never lose is the knowledge that I conquer MS every single day of the year. Perhaps not physically, but mentally I am stronger than MS.”

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MS News: March 2015

Yes, here’s the March edition already! I will try and update the post each week as it will be a busy month ahead with Brain Awareness Week in Ireland, National MS Education and Awareness Month is an effort by the Multiple Sclerosis Foundation (MSF) and the US National Multiple Sclerosis Society’s MS Awareness Week. The […]

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MS News: February 2015

Time flies, as we’re once again nearing the end of February. It’s been an attention-grabbing month, with several positive news stories about treatment and also, about a rather interesting collaboration between Google and Biogen Idec. First of all though, I wanted to add a link displaying how many clinical trials are ongoing as we speak. […]

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MS News: January 2015

The first month of 2015 has come and (almost) gone again. With that, it’s full steam ahead in the field of MS research, clinical trials, business news and interesting, general newsworthy bits and pieces. This month, the highlight was the news about MS and stem cell treatment, providing a decent outlook for those looking for […]

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MS News: December 2014

Well, it was a busy December, in more ways than one. I hope you all had a great Christmas and wish you the best for 2015. From the amount of research and clinical news we keep hearing about month after month, I can only be optimistic for the future. A cure will not happen tomorrow, […]

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MS News: November 2014 (*F)

“Hoping for a cure? Of course. I am realistic though, as it might not happen in my lifetime. Simply being part of the solution, is all I wish for right now. Whichever comes first, the 8,000 people with MS in Ireland, 100,000 in the UK, 400,000 in the US and many other people around the world are looking forward, and simply… hope.”

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MS News: October 2014

“54 New MS Research Projects to Receive Millions of Dollars in Funding.” I can only jump up and down like a child at Christmas reading about this. Even if or when we’re struggling with our illness, we know that lots is happening to help us forward in life. So please, enjoy the list with research & clinical trial news, updates on current medication and business & general news.”

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Ten happy MS years

A milestone like no other. A curious, strange one indeed. Ten years of living with MS. Ten. In fact, ten years and one week. Reality suddenly became a very different kind of living. As strange as it sounds, it became a more fulfilled life, a happier one also.

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MS News: September 2014

It has been a big and very busy September for researchers, clinical trials and pharmaceutical companies. Early this month, the Joint ACTRIMS/ECTRIMS Meeting took place in Boston. For more, please check the extensive website of the conference.

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MS in numbers

“Instead of going into the possibility of ending their life in a wheelchair, I refer to the opposite side of the scale. When they say “But 25% of people with MS will end up in a wheelchair!” I say “Perhaps, but that means that 75% of people with MS will not end up in one at all!”

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Tiredness ≠ fatigue

“Yes, I do know how to read calendars and clocks. I even know how to reset the microwave clock when Ireland changes to a new daylight saving time. Please don’t compare your healthy tiredness to unhealthy fatigue, it’s like comparing microwaves to planet Mars.”

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MS News: August 2014

August 2014 has been a great month for people with neurological illnesses, as they finally saw their type of illness broadcast, and indeed, doused by ALS ice bucket challenges. To quickly place ALS amongst other neurological illnesses, perhaps the most famous person with ALS is Stephen Hawking, a personal hero of mine since my teenage […]

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That twitching feeling

“Suffice to say that the type that I have, is stimulus-sensitive and is triggered by a variety of external events, including sound, touch, movement, and light. Just like MS’s unpredictability in general, myoclonus can vary in intensity as well as in frequency, and it cannot be controlled by the one experiencing it.”

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