Being a perfectionist, of course, it had to be precisely 200 days.
Six months and nineteen days between my first multiple sclerosis symptoms and its very diagnosis.
Little did I know that it would eventually transform my life.
It was September 2004, and I had just dropped off my mother at Dublin Airport for her return to Belgium. On the way home, a strange sensation took hold of the left side of my face, as if it had been injected with thick rubber. Thinking nothing of it, I went back to bed to catch up on lost ZZZs.
I slept for hours.
And hours. Continue reading “200 days”
Ten years ago today, and 2.5 years after moving to Ireland, I was diagnosed with MS, an incurable, neurodegenerative illness that would change my life in ways I never imagined. Needless to say, it was an unwelcome event. Little did I know, however, that it would eventually lead to a life well lived.
There was no manual that showed me how to adapt, accept and live with a chronic illness. MS, associated with 50+ different symptoms, impacts each patient differently. There are numerous symptoms I might never have at all, and that in itself gives hope. Continue reading “10 years: a lot to be thankful for”
A milestone like no other. A curious, strange one indeed.
Ten years of living with MS.
In fact, ten years and one week.
Reality suddenly became a very different kind of living. As strange as it sounds, it became a more fulfilled life, a happier one also. Continue reading “Ten happy MS years”
It has been a big and very busy September for researchers, clinical trials and pharmaceutical companies. Early this month, the Joint ACTRIMS/ECTRIMS Meeting took place in Boston. For more, please check the extensive website of the conference. Continue reading “Positive MS News: September 2014”
Because not every country has a MS register yet, it is difficult getting exact figures about how many people have MS. This means that some figures are estimates only. While the numbers below (taken from different websites), may sound frightening, it’s important to focus on the good. Continue reading “MS in numbers”
“Dwell on the beauty of life.
Watch the stars, and see
yourself running with them.”
(Marcus Aurelius, Meditations)
There’s no hiding when a MS relapse is in town. It arrived on my doorstep about 5 days ago, warts and all, and I’m still trying to hide. I could give you the nitty gritty technical bit of it, but I fear it wouldn’t read like a Booker prize novel. And that, is something I aspire to one day, just not today. Continue reading “Game, set, relapse!”
Sometimes things happen in life you never saw coming. And sometimes, you feel utterly defenseless because you simply couldn’t step in to help.
But what if you create something good out of something so bad?
Continue reading “Volunteering, a worthy cause”