Tag Archives: Neurological Illnesses

MS News: March 2017

Please allow me some nepotism and introduce you to the honourable American/Irish author and my friend Trevis Gleason! He penned a fantastic, witty, humorous and moving memoir about a very unexpected MS diagnosis, ending an old and starting a new career and fulfilling his dream of living in Ireland. You can buy his book here:

  1. Chef Interrupted: Discovering Life’s Second Course in Ireland with Multiple Sclerosis

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clinical-trials

Highlight still on American Healthcare Act, the replacement plan for the Patient Protection and Affordable Care Act (ACA) released by Congress on March 6, 2017

  1. Society Releases Statement on American Health Care Act
  2. National MS Society Urges Lawmakers to Oppose American Health Care Act
  3. Reducing Out-of-Pocket Cost Barriers to Specialty Drug Use Under Medicare Part D: Addressing
  4. Researchers find patients’ annual financial burden under Medicare Part D is ‘too much too soon’

New book by the honourable American/Irish author and friend Trevis Gleason!

  1. Chef Interrupted: Discovering Life’s Second Course in Ireland with Multiple Sclerosis

Highlight!

  1. Blood Diagnostic Test for Multiple Sclerosis to be Released in May 2017

Continue reading

MS News: January 2017

clinicaltrials

Go red to Kiss Goodbye to MS campaign!

  1. Supporters in County Donegal asked to Help Kiss Goodbye to MS
  2. Supporters in county Longford asked to Help Kiss Goodbye to MS
  3. Co Leitrim people are being asked to help ‘Kiss Goodbye to MS’

Highlight!

  1. The top 10 drug launches of 2017
  2. The year in new drugs

Continue reading

200 days

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200 days.

Being a perfectionist, of course, it had to be precisely 200 days.

Six months and nineteen days between my first multiple sclerosis symptoms and its very diagnosis.

Little did I know that it would eventually transform my life.

It was September 2004, and I had just dropped off my mother at Dublin Airport for her return to Belgium. On the way home, a strange sensation took hold of the left side of my face, as if it had been injected with thick rubber. Thinking nothing of it, I went back to bed to catch up on lost ZZZs.

I slept for hours.

And hours. Continue reading

10 years: a lot to be thankful for

Inspirational Quotes 4

Ten years ago today, and 2.5 years after moving to Ireland, I was diagnosed with MS, an incurable, neurodegenerative illness that would change my life in ways I never imagined. Needless to say, it was an unwelcome event. Little did I know, however, that it would eventually lead to a life well lived.

There was no manual that showed me how to adapt, accept and live with a chronic illness. MS, associated with 50+ different symptoms, impacts each patient differently. There are numerous symptoms I might never have at all, and that in itself gives hope. Continue reading

Ten happy MS years

Dodinsky quote with red flower

A milestone like no other. A curious, strange one indeed.

Ten years of living with MS.

Ten.

In fact, ten years and one week.

Reality suddenly became a very different kind of living. As strange as it sounds, it became a more fulfilled life, a happier one also. Continue reading

Positive MS News: September 2014

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It has been a big and very busy September for researchers, clinical trials and pharmaceutical companies. Early this month, the Joint ACTRIMS/ECTRIMS Meeting took place in Boston. For more, please check the extensive website of the conference. Continue reading

MS in numbers

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Because not every country has a MS register yet, it is difficult getting exact figures about how many people have MS. This means that some figures are estimates only. While the numbers below (taken from different websites), may sound frightening, it’s important to focus on the good. Continue reading

Game, set, relapse!

“Dwell on the beauty of life.
Watch the stars, and see
yourself running with them.”
(Marcus Aurelius, Meditations)

There’s no hiding when a MS relapse is in town. It arrived on my doorstep about 5 days ago, warts and all, and I’m still trying to hide. I could give you the nitty gritty technical bit of it, but I fear it wouldn’t read like a Booker prize novel. And that, is something I aspire to one day, just not today. Continue reading

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