MS News: April 2017

The latest MS news about clinical trials, research, treatments, mental & emotional health, diet and lifestyle, including highlights from Barts MS Blog

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MS News: March 2017

Highlight still on American Healthcare Act, the replacement plan for the Patient Protection and Affordable Care Act (ACA) released by Congress on March 6, 2017 Society Releases Statement on American Health Care Act National MS Society Urges Lawmakers to Oppose American Health Care Act Reducing Out-of-Pocket Cost Barriers to Specialty Drug Use Under Medicare Part […]

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MS News: January 2017

Go red to Kiss Goodbye to MS campaign! Supporters in County Donegal asked to Help Kiss Goodbye to MS Supporters in county Longford asked to Help Kiss Goodbye to MS Co Leitrim people are being asked to help ‘Kiss Goodbye to MS’ Highlight! The top 10 drug launches of 2017 The year in new drugs

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200 days

“To many, life with MS can seem like a book where letters have been replaced by numbers or where the cover can be too hard or too soft for its content. Because of this, I don’t want them to see what MS can turn into. I refuse to show them that there is no cure, I refuse to give them a reason to give up on me. In my view, it is very much a case of the illness being mine, but the tragedy theirs if I let them.”

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10 years: a lot to be thankful for

“MS itself? It took my job, but it doesn’t own me. MS doesn’t get praise for having me. No matter how bad MS treats me in the future, I am its CEO instead. I will never lose is the knowledge that I conquer MS every single day of the year. Perhaps not physically, but mentally I am stronger than MS.”

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Ten happy MS years

A milestone like no other. A curious, strange one indeed. Ten years of living with MS. Ten. In fact, ten years and one week. Reality suddenly became a very different kind of living. As strange as it sounds, it became a more fulfilled life, a happier one also.

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Positive MS News: September 2014

It has been a big and very busy September for researchers, clinical trials and pharmaceutical companies. Early this month, the Joint ACTRIMS/ECTRIMS Meeting took place in Boston. For more, please check the extensive website of the conference.

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MS in numbers

“Instead of going into the possibility of ending their life in a wheelchair, I refer to the opposite side of the scale. When they say “But 25% of people with MS will end up in a wheelchair!” I say “Perhaps, but that means that 75% of people with MS will not end up in one at all!”

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Game, set, relapse!

“In short, if I’d have to sell myself with these words, I still wouldn’t receive a Booker prize. I could post “Another MS Relapse” award on the fireplace mantel, but they’re just a waste of space. I thought of referring to a relapse as something you just have to get your teeth in, but I don’t want to steal Luis Suárez’s limelight.”

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Volunteering, a worthy cause

“In fact, for anyone interested in volunteering, research shows it can be beneficial in improving mood, self-esteem and quality of life, and in reducing stress, pain and depression. It also shows that ill people who volunteer, become better at managing their own illness in turn and volunteering can strengthen their immune system.”

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MS Organisations

On European level European Committee for Treatment and Research in Multiple Sclerosis European Multiple Sclerosis Platform MS Trust Multiple Sclerosis International Federation Updated: September 8th, 2017 ©Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2017. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner are strictly prohibited. Excerpts […]

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Relentless relapse

Why? A relapse decided to visit me. I pretended it wasn’t there. Until this morning.

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Positive MS News: December 2013

With a bit of a delay, here is the good news in MS-world that found its way to the media in December 2013! Provincial MS strategy applauded Announced Nov. 25, Health Minister Fred Horne said the strategy – The Way Forward – “connects the dots” in the health care system so that Alberta’s almost 14,000 […]

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Beware of the thief!

In between trying to set up a new laptop today and resting enough before another batch of daily tasks comes my way, I came across an email about MS and the question what MS has stolen from us. In her blog post, Nicole Lemelle says “Multiple Sclerosis robs us of our outside roles and independence. […]

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Dissecting words

“Billie… smile!” “Billie, this is a business company, not the beach!” “Oh Bee, you’re such a bad dancer!” “It must be great being on sick leave so much; it’s like being on a long holiday!” “Look at her, Monday morning and still drunk!” These sentences might just be background noise to some, but to a […]

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Hot town!

“There’s always the floor?” my mum asked. With a brain fried like a piece of KFC garbage, thinking intelligently seemed hard to do. “Of course there is always a floor, go figure!” But I was getting desperate, water streaming from me and no place to cool down. Aside from the floor, that is. Being away […]

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Every leaf speaks bliss to me

As the days grow shorter and temperatures colder, it is time to welcome autumn, and indeed, what should be a small new lease of life. There is nothing more comforting and relaxing than seeing daylight fade early in the evening. Darkness captures me, telling me that time has come to cuddle up on the couch, […]

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World MS Day 2013

World MS Day 2013 today. While my diagnosis gave me a lot to think about, it gave back so many things to cherish and love: friends that care, family that supports and a medical team that is ready to tackle my every need. While there might not be a cure yet, I feel blessed to […]

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