Trigeminal Neuralgia Awareness Day
Tomorrow is the first Trigeminal Neuralgia Awareness Day, focused on bringing awareness about facial pain disorders.
This year I have gone through severe TN attacks myself and I therefore want to spread awareness about Trigeminal Neuralgia, also called “the suicide disease” because of the severity of pain experienced.
[youtube=http://www.youtube.com/watch?v=H-8PCv4UWJo&w=420&h=315]
“The presumed cause of TN is a blood vessel pressing on the trigeminal nerve as it exits the brainstem. This compression can wear away the protective coating around the nerve (the myelin sheath). TN symptoms can also occur in people with Multiple Sclerosis (MS), a disease caused by the deterioration of myelin throughout the body, or may be caused by damage to the myelin sheath by compression from a tumour.
There is no single test to diagnose TN. Diagnosis is generally based on the patient’s medical history, description of symptoms and a physical and thorough neurological examination by a physician. Because of overlapping symptoms and the large number of conditions that can cause facial pain (see ‘Facial Pain Disorders’ on the next page), obtaining a correct diagnosis is difficult, but finding the cause of the pain is important as the treatments for different types of pain may differ. However, whilst the trigeminal nerve might be involved, it does not automatically establish the diagnosis of TN.”
Rare nerve disorder causes severe facial pain, Richard Watts, Times Colonist
My battle to beat the ‘suicide disease, by Cadisha Brown
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©Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2013. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

9 Comments
Liz
Thank you for raising awareness about Trigeminal Neuralgia. I hope you can have more good days than bad. Keep hoping for something better….
Billie
Thanks Liz! You learn to live with the pain, but quite often TN shows up at the wrong time. Adaptation is key so 🙂
mymshero
Thankyou for bringing awareness to this hidden and horrible condition. My husband had this for 10 yrs, with his MS.
Now it its completely vanished thanks to his bonmarrowtransplant where he used his own stemcells to halt his MS. Read first
http://mymshero.com/pains/
http://mymshero.com/2013/10/05/how-beautiful-life-is/
It is my great wish to see this treatment given trough the general healthcare in near future.
All the best to you <3
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M
Great to see this hope it can help people as my mum has TNA for many years and sad to see little support and awareness in Ireland. If any one knows of support groups in Dublin please post it as be grt to hear as I can seethe person can feel alone with this condition.
Billie
It’s awful how little knowledge and indeed support there is in Ireland. I live in Dublin also and so far I haven’t heard of any support groups over here (I haven’t necessarily been looking hard but people do get lonely with this kind of symptom/illness). As soon as I find out more, I’ll post it here OK.
Nikki
Thank you for using my posts and the video to increase awareness. I’m a new follower 🙂 I’ve added my blog in case you ever decide to take a look.
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