Trigeminal Neuralgia Awareness Day

2013 Trigeminal Neuralgia Day image

Tomorrow is the first Trigeminal Neuralgia Awareness Day, focused on bringing awareness about facial pain disorders.

This year I have gone through severe TN attacks myself and I therefore want to spread awareness about Trigeminal Neuralgia, also called “the suicide disease” because of the severity of pain experienced.

Please check out this video and these internet pages:

http://www.tnawarenessday.com/ :

“The presumed cause of TN is a blood vessel pressing on the trigeminal nerve as it exits the brainstem. This compression can wear away the protective coating around the nerve (the myelin sheath). TN symptoms can also occur in people with Multiple Sclerosis (MS), a disease caused by the deterioration of myelin throughout the body, or may be caused by damage to the myelin sheath by compression from a tumour.

There is no single test to diagnose TN. Diagnosis is generally based on the patient’s medical history, description of symptoms and a physical and thorough neurological examination by a physician. Because of overlapping symptoms and the large number of conditions that can cause facial pain (see ‘Facial Pain Disorders’ on the next page), obtaining a correct diagnosis is difficult, but finding the cause of the pain is important as the treatments for different types of pain may differ. However, whilst the trigeminal nerve might be involved, it does not automatically establish the diagnosis of TN.”

http://www.timescolonist.com/life/rare-nerve-disorder-causes-severe-facial-pain-1.635544 about rare nerve disorder causes severe facial pain

http://www.kidderminstershuttle.co.uk/news/10699606.My_battle_to_beat__suicide_disease_/?ref=rss&utm_source=twitterfeed&utm_medium=facebook about the battle to beat the ‘suicide disease

https://www.facebook.com/notes/end-trigeminal-neuralgia/new-to-trigeminal-neuralgia/399033016885544 explains TN in a short overview

https://www.facebook.com/Oct7thTNawareness?hc_location=timeline: Facebook page about International Trigeminal Neuralgia Awareness Day

Small 2013 Trigeminal Neuralgia Day image


©Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2013. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

Posted by

Quirky, tenacious and neurologically compromised female expat living in Ireland since 2002 ◾ MyTherapyApp Best MS Blog for Simplicity 2018 ◾ Everyday Health Top 10 MS Blog of 2018 ◾ WEGO Health Patient Leader Award Nominee 2018 ◾ Feedspot Top 50 MS Blog 2017, 2018 ◾ Ireland Blog Award Finalist 2014, 2015, 2017 & Shortlisted 2018 (competition ongoing) ◾ Contributor to the Novartis MS blog Living Like You ◾ Contributor to MS Ireland’s blog MS & Me ◾ Contributor to The Mighty ◾ Guest contributor to MyTherapyApp.com

9 thoughts on “Trigeminal Neuralgia Awareness Day

  1. Thank you for using my posts and the video to increase awareness. I’m a new follower :) I’ve added my blog in case you ever decide to take a look.

  2. Great to see this hope it can help people as my mum has TNA for many years and sad to see little support and awareness in Ireland. If any one knows of support groups in Dublin please post it as be grt to hear as I can seethe person can feel alone with this condition.

    1. It’s awful how little knowledge and indeed support there is in Ireland. I live in Dublin also and so far I haven’t heard of any support groups over here (I haven’t necessarily been looking hard but people do get lonely with this kind of symptom/illness). As soon as I find out more, I’ll post it here OK.

  3. Thank you for raising awareness about Trigeminal Neuralgia. I hope you can have more good days than bad. Keep hoping for something better….

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