MS, here today, gone tomorrow?
Degeneration happens, yet it forgets to enlighten you in which physical state you will wake up in the morning, and how you will eventually go to sleep at night. If your persistent MS fatigue is anything like mine, powernaps are overrated, and you go for XXX-large naps.
Where is my left cheek?!
Trigeminal neuralgia feels like a vicious affair, and it is still hard to know who came first, TN or MS. Being a lover of Shakespearean drama, they would tell you they arrived around the same time.
The truth about Cinderella
Some days I go through life like a half-baked version of Cinderella. There’s promise at 8 AM, but by 11 AM my fairytale book is closed until further notice. In the background, that all-important clock keeps ticking forward, but my body is in a rut: sleeping, eating, exercising, resting, more eating, more sleeping and back again. And that Cinderella shoe? Taken by someone else altogether. Very much like the 11 AM dip in your energy levels, mine resembles a psychologically broken record: I keep finding out I am 100% present, but physically I’m not all there.
MS Anxiety
Research shows that MS-related anxiety usually happens shortly after being diagnosed, while some doubt it does not result from the physical process of MS itself. Not so fast, buster! I begged to differ.
Ignorance
Oh, people will stalk you on Facebook on their smartphone, but do not ask them to find unprejudiced, trustworthy websites to learn something about your condition on that very smartphone. Quite often, they "will do so when they have time," despite having their phone in their hands 50 times a day.
Are you Cinderella yet?
"Seeing the world with fresh eyes every morning is something other people do. I try to get my innate sense of curiosity and wonder going when I wake up, but my enthusiasm only reaches as far as, “Oh look, both my eyes are open!” I re-evaluated my night-time activities, so, as those dubious sleep and pretend-to-be-awake-games only lead to more excessive MS fatigue."
I don’t miss myself
So… Rugby world cup. At last. England in a fashion faux-pas. Coin toss aside, they resembled players of Wales, China, Japan or Kyrgyzstan (Fijian, red is Fijian). Mum’s nine-day visit to Ireland now over. Visited Dublin Zoo once again. New camera making me rather shutter-slow, hence prevalent photographic bonding with rear ends of several animals. Otherwise, hardly left the house. Sniff. Thank you, MS. Living with a chronic illness is not all it’s cracked up to be. Chronic means chronic. I don’t get to choose the days, the hours, the moments. Hence, a triad of medical events in the space of twelve days now extended into a three-week period. Flu. Impatient, it could not wait to land on my doorstep before that all-important flu jab. Must remember that viruses follow…
