Tag Archives: WPrightnow

MS News: April 2017

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Highlight!

  1. Canadian Study of MS-Prone Family Proves that in Rare Cases, Multiple Sclerosis is Inherited
  2. Large Family Study Strengthens Case for Inherited Multiple Sclerosis
  3. New Survey Finds Multiple Sclerosis Patients Struggle with Misdiagnosis and Invisible Symptoms

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MS News: March 2017

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Highlight still on American Healthcare Act, the replacement plan for the Patient Protection and Affordable Care Act (ACA) released by Congress on March 6, 2017

  1. Society Releases Statement on American Health Care Act
  2. National MS Society Urges Lawmakers to Oppose American Health Care Act
  3. Reducing Out-of-Pocket Cost Barriers to Specialty Drug Use Under Medicare Part D: Addressing
  4. Researchers find patients’ annual financial burden under Medicare Part D is ‘too much too soon’

 

New book by the honourable American/Irish author and friend Trevis Gleason!

  1. Chef Interrupted: Discovering Life’s Second Course in Ireland with Multiple Sclerosis

Highlight!

  1. Blood Diagnostic Test for Multiple Sclerosis to be Released in May 2017

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MS News: January 2017

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Go red to Kiss Goodbye to MS campaign!

  1. Supporters in County Donegal asked to Help Kiss Goodbye to MS
  2. Supporters in county Longford asked to Help Kiss Goodbye to MS
  3. Co Leitrim people are being asked to help ‘Kiss Goodbye to MS’

Highlight!

  1. The top 10 drug launches of 2017
  2. The year in new drugs

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Hell is other people

da11fbf1c3e131f6b8f0649409bf6001To write is to have a third eye on the world. You watch the world spin day after day, and in your mind, you write social commentary to give it a place in your life. Quite often, though, after reading your perceptions a few weeks later, you realise that what you witnessed has completely lost its meaning.

Like this, I have seen the best and the worst of what mankind had to offer the past six months.

There are people in today’s society who have the purest and most thoughtful minds you can wish for. They add serenity and integrity to your life, and they always bring out the best in you.

On the other hand, there are toxic people who have never learned what altruism and dignity is, and who lack insight into what makes people – including themselves – tick. They go on the attack without working out a game plan first and have a habit of calling you “oversensitive” or “you are just misinterpreting me” when you try to verbally counter their attack. Continue reading

MS News: September 2016

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Below are some MS-related topics that made the headlines this month. Do come back to check again, though, as the list will be updated every three to five days.

Highlight!

  1. #ECTRIMS2016 – Congress on Latest in MS Research and Treatment Opens Sept. 14
  2. #ECTRIMS2016 – Stay Up to Date with My Pick of Congress Highlights
  3. 25 American Athletes To Watch At The Paralympics
  4. MRI key to distinguishing multiple sclerosis from its many mimics
  5. Trending Topics in Multiple Sclerosis

Pediatric MS

  1. Pediatric multiple sclerosis: meeting the needs of the young patient and the family
  2. Pediatric multiple sclerosis: observational trials show promise for interferon-beta and glatiramer
  3. Pediatric multiple sclerosis associated with cognitive impairment in approximately a third of patients
  4. Legal Planning & Care Planning For Young Multiple Sclerosis Patients Video

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No Place for Extremism

I may have been critical of my native country Belgium in the past, but yesterday’s events in Brussels solidified friendships and my love for my people’s resilience and way of life.

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IS, ISIL, ISIS, Daesh (or whichever way they want to be called next) may think they won another war on foreign soil, but the western world is ready to shatter further illusions of jihadism and hatred harder, faster and louder. There simply is no place for extremism in our world.

Many thanks to the emergency services, fire department, police, Belgian army and all those who helped people caught up in the terror attacks.

For updates on the ongoing situation, please visit the BBC News website here.

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© Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2016. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner are strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

Trading pens and ink for bullets

Charlie image

(Republished on request on November 15th, 2015 in memory of those who lost their lives in the latest Paris attacks)

Like many other people this week, I was horrified by the barbaric Charlie Hebdo massacre. Twelve people were killed in the Paris office of the weekly newspaper, a strongly anti-racist and left-wing satirical paper, sometimes publishing controversial Muhammad cartoons. It’s been on my mind since, and I’m not finding any answers to why and how people can mindlessly and effortlessly kill others for holding a different belief system. Continue reading

10 years: a lot to be thankful for

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Ten years ago today, and 2.5 years after moving to Ireland, I was diagnosed with MS, an incurable, neurodegenerative illness that would change my life in ways I never imagined. Needless to say, it was an unwelcome event. Little did I know, however, that it would eventually lead to a life well lived.

There was no manual that showed me how to adapt, accept and live with a chronic illness. MS, associated with 50+ different symptoms, impacts each patient differently. There are numerous symptoms I might never have at all, and that in itself gives hope. Continue reading

Je Suis Charlie

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#JeSuisCharlie

World MS Day 2014 in Ireland

Photo ©Naoise Culhane

Photo ©Naoise Culhane

Wednesday, May 28th is World MS Day. All over the world, people will organise events, wear orange, volunteer, work and/or attend conferences to raise awareness about an illness that so far, still cannot be cured.

While 2014 is the ‘European Year of the Brain,’ this year’s World MS Day theme is ‘Access.’ Whether this means access to information, medication, support, buildings, rights or services, somewhere near you people with MS, their families and MS societies will step forward and express their need for more awareness, understanding and hope that one day, MS will be eradicated for good. Continue reading

World MS Day 2014

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We all have dreams, wishes, hopes and fears. Continue reading

MS Trust 21 Challenge

The MS Trust posed me a great question, asking me to help spread a word about the UK Awareness Week that runs from April 28th to May 4th. I do love a challenge,  so anyway I can help from my keyboard, I happily attack!

So, do you feel like a challenge? How about a fun way to raise awareness regarding MS? Check out the UK’s MS Trust website to be inspired, take a stance and do something worthwhile. MS Trust’s Awareness Week and we want you involved!

The trust was set up 21 years ago, and is celebrating this by inviting everyone to join their 21 day challenge and sponsor, shout and help others spread the word about MS Trust’s Awareness Week from April 28th to May 4th. Continue reading

Positive MS News: April 2014

Research results

  1. Enhanced uptake of multiple sclerosis-derived myelin by THP-1 macrophages and primary human
    7thSpace Interactive (press release) – The pathological hallmark of multiple sclerosis (MS) is myelin phagocytosis. It remains unclear why microglia and macrophages demyelinate axons in …
  2. Textured insoles could be a positive step for people with MS
    UQ News – University of Queensland research is investigating the effects textured shoe insoles have on walking problems associated with multiple sclerosis.
  3. ANP reports positive results from chronic toxicity study of ATL1102 in multiple sclerosis
    News-Medical.net – Antisense Therapeutics Limited (“ANP” or the “Company”) is pleased to advise that results from a chronic toxicity study in monkeys indicate that …

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9 years on…

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Positive MS News: March 2014

1376314586_multiple_sclerosisA little bit later than usual, for which I apologise, but here is the good news that graced global media in March 2014. Continue reading

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