Pull up your big girl panties!

On the beach

Let me count… Roughly speaking, I was diagnosed with MS about 5000 days ago. That’s one fair bit of experience under my hood, right? But… When talking to people, new or otherwise, it can be difficult telling them you’re living with an incurable neurodegenerative illness. Sometimes it feels like being in an uninterrupted car crash, minus the […]

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Single and chronically ill?

Couple holding hands

You can channel your inner delightfully, dazzling diva while wearing pyjamas, dog-shaped winter socks, leg warmers and your turban hair towel.

You can drag your duvet to the living room, watch Romeo + Juliet and cry for an hour afterward because Leo died when he shouldn’t have (Damn you William Shakespeare!)

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Being real!

Despite chronic pain and fatigue issues, I am making the best of my life, and I am doing everything possible to be the best version of myself as I can be. All I ask of you is some understanding of what I am going through, and know that every bad day is only making me stronger. Some days, though, I want you to hold my hand or hug me and tell me that everything will be OK.

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Proud

Mum, I’m a very proud daughter. The way you overcame many obstacles in your life before, during and after your pregnancy with me, made you into a woman who stands up for herself, who is very funny, intelligent and simply, a good soul. We often tell one another how proud we are of each other, […]

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Kids? Not right now, please…

Children and multiple sclerosis? Although life was good in my last relationship, I secretly decided that having children would probably not be on my list of things to do. Not because of the lack of love, but because I didn’t want to pass on my illness to my future son or daughter. When we eventually […]

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Thank you

No man’s an island, we weave connections through waves of emotions, through faith and happy occasions. This month, I’ve been very lucky to have found waves meeting others, and to have found people with the kindest of hearts, the softest of voices but the strongest of minds. This is for them. Joan, Aoife, Niamh, Karen, […]

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The first day

Change is good. So they say, anyway. I totally agree, in fact, I welcome change with open arms. Afraid of new challenges? No, not me. Because change is good.

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Liebster Award! (no. 4)

Here is the other Liebster Award that was sitting here idly without being forwarded. Tamie’s Realm kindly nominated me and needless to say, I am very happy about it! As always, nominations – which are winners in WordPress blog terminology – need to follow a few steps when passing on the award. Here are the […]

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Liebster Award (no. 3)!

Desperately behind writing new posts or replies to all your comments, I need to get my proverbial bum in action if I want to start writing properly again. Perfectionism is my middle name, but lately I’ve been slacking, oh yes I have. Allow me to hit myself on the hands in punishment… Ouch… That hurt! […]

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A future without chronic illness

I could think of many dates, selfish ones, productive ones and those that would mean a lot of friends and family. If I could choose though, I’d want to be there when a cure for MS is found. Two million people worldwide are living with this incurable illness in their brain and spinal cord, leading […]

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Christmas: The Paradox of Our Time

“The paradox of our time in history is that we have taller buildings but shorter tempers, wider freeways, but narrower viewpoints. We spend more, but have less, we buy more, but enjoy less. We have bigger houses and smaller families, more conveniences, but less time. We have more degrees but less sense, more knowledge, but […]

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Dissecting words

Sad image

“Billie… smile!” “Billie, this is a business company, not the beach!” “Oh Bee, you’re such a bad dancer!” “It must be great being on sick leave so much; it’s like being on a long holiday!” “Look at her, Monday morning and still drunk!” These sentences might just be background noise to some, but to a […]

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Single life?

“However, I am not MS and MS is not me. It may reside inside my brain but that is where the relationship ends. I accept it is there, but it will not make me long for a relationship just to be in a relationship, or to have someone present to care for me day in, day out. Quite independent, indeed.”

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Philosophy of Friendship

Don’t walk behind me; I may not lead. Don’t walk in front of me; I may not follow. Just walk beside me and be my friend. Albert Camus An empty white page on my laptop. Too warm to write, too warm to make sense out of nonsense on my own. In fact, even when I’m […]

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