Single and chronically ill on Valentine’s Day?

Valentine'sDay Image

So, you’re single.

And chronically ill.

On Valentine’s Day.

But, what the heck, you don’t care.

You don’t care because you’re an alpha-woman even when you sometimes feel like a z-woman… zonked out on meds on the couch.

You don’t care because, seriously, you don’t have to go shopping to find sexy lingerie that’ll only cut off your air supply while wearing it.

You don’t care because you know that the only thing you can find in a chocolate box is a raised BMI.

You don’t care because you don’t thrive on baggage left behind by old flames. Continue reading “Single and chronically ill on Valentine’s Day?”

Being real!

beingrealImagine, you’re stuck with me in an utterly crazy, hilarious episode of The Big Bang Theory. Let your imagination run riot, especially since this post has some gender reversal role playing added to it.

There is the ditzy Penny-type of person who thinks along the lines of “Not seeing = questioning = perhaps, possibly, maybe believing”. She thinks it’s hard to value the worth of something when it’s not visible, but given time to learn, she might just try and see things your way.

And then there is Leonard, who knows that he’s not on the same score card as some of his contemporaries. He knows that there is truth in the world, and more importantly, inside him. He says, “Stop questioning me. It exists, I have tangible proof, and I will demonstrate it to you until you let go.”

Continue reading “Being real!”

GUEST POST: Using Social Media to Connect With Other MSers

Guest post by Debra Robert, contributor to the Canadian NewLifeOutlook MS website.


Twelve years ago I found myself at the bitter end of an unhealthy and tumultuous relationship.

I have always been pretty darn good at being alone. I like my own company. After a couple years on my own however, I began to lose sleep. I’d lie awake in bed wondering if I was to be alone for life.

Around that time, I instinctively began reaching my hand out the window beside my bed. I felt the need to feel the evening air, to play with the weight of the wind on my fingers. I consoled myself imagining that the gentle breeze that wrapped around my hand was actually the touch of a caring friend. The night air was my conduit to the rest of the world, and the feel of wind brushing against my hand got me through difficult nights of fitful unrest. Continue reading “GUEST POST: Using Social Media to Connect With Other MSers”



I’m a very proud daughter. The way you overcame many obstacles in your life before, during and after your pregnancy with me, made you into a woman who stands up for herself, who is very funny, intelligent and simply, a good soul.

We often tell one another how proud we are of each other, and I cannot think of a better person to be my mum. You are my confidante, my best friend and my rock.

Sometimes I wished I could give you the joy of being a grandmother. Sometimes I wished you could see me in a wedding dress. You would be quite OK with me wearing a feathery knee-length wedding dress matched with my tall, black Dr Martens boots. I know you would defend my alternative choice to anyone who questions my reasoning behind it.

You often tell me how proud you are of me in whatever I do. I cannot even begin telling you how proud I am of you instead.

Think of the many Skype sessions each morning. We have long chats about history, politics, society and religion at 8am most mornings, and can keep on talking about what we see happening around the world the following day too.

You taught me all about being independent, being true to myself, kindness, love, compassion, friendship, the Golden Rule, to work hard for what I believe in and/or dream of, to be proud of myself and to always say please or thank you.

So instead of telling others about the last time someone said they were proud of me, I wanted to thank you for all the goodness in the world that is… you.



Daily Prompt: Proud
When was the last time someone told you they were proud of you?


new image post

About Willeke

Neurologically challenged by MS and personally by her will to succeed, Willeke is a disability awareness advocate seeking to improve neurological services in Ireland. By highlighting difficult issues that come with a MS diagnosis, she hopes her words and tenacity can bring justice to people most in need of a modern, inclusive healthcare system that looks after every aspect of life.

©WVE and Ireland, Multiple Sclerosis & Me, 2011-2015. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

Thank you

No man’s an island, we weave connections through waves of emotions, through faith and happy occasions. This month, I’ve been very lucky to have found waves meeting others, and to have found people with the kindest of hearts, the softest of voices but the strongest of minds. This is for them.

Joan, Aoife, Niamh, Karen, Declan, Trevis, Lucina, Miriam, Diana, Natalia, Ava, Ruth

My GP, MS nurse, neurologist, ophthalmologist and many others in the two hospitals I attend

The many friends back in Belgium and in Ireland, especially Claudia, Dirk, Susie, Jean, Audrey and Gratiane

and as always:

My mom who never gives up, even in the strongest of seas, every single day.

10155726_567734903324541_6254693841274862608_n© WVE and Ireland, MS and Me, 2011-2014. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

The first day


“Change is good,” so they say.

I totally agree, in fact, I welcome change with open arms.

Afraid of new challenges? No, not me.

Change is good.

Continue reading “The first day”

Liebster Award! (no. 4)

liebster2Here is the other Liebster Award that was sitting here idly without being forwarded. Tamie’s Realm kindly nominated me and needless to say, I am very happy about it! As always, nominations – which are winners in WordPress blog terminology – need to follow a few steps when passing on the award.

Here are the rules for this particular Liebster Award:
1. Each nominee must link back the person who nominated them.
2. Answer the 10 questions which are given to you by the nominator.
3. Nominate 10 other bloggers for this award who have less than 200 followers.
4. Create 10 questions for your nominees to answer.
5. Let the nominees know that they have been nominated by going to their blog and notifying them. Continue reading “Liebster Award! (no. 4)”

Liebster Award (no. 3)!

liebster2Desperately behind writing new posts or replies to all your comments, I need to get my proverbial bum in action if I want to start writing properly again. Perfectionism is my middle name, but lately I’ve been slacking, oh yes I have. Allow me to hit myself on the hands in punishment… Ouch… That hurt!

The first award I need to send on, was given to me by Willow’s Corner. Do visit her blog because you will not be disappointed. As always, nominations – which are winners in WordPress blog terminology – need to follow a few steps when passing on the award. Continue reading “Liebster Award (no. 3)!”

A future without chronic illness


I could think of many dates, selfish ones, productive ones and those that would mean a lot of friends and family. If I could choose though, I’d want to be there when a cure for MS is found.

Two million people worldwide are living with this incurable illness in their brain and spinal cord, leading to disabilities that maim them or make them withdraw from society, even life. Continue reading “A future without chronic illness”

Christmas: The Paradox of Our Time

“The paradox of our time in history is that we have taller buildings but shorter tempers, wider freeways, but narrower viewpoints. We spend more, but have less, we buy more, but enjoy less. We have bigger houses and smaller families, more conveniences, but less time. We have more degrees but less sense, more knowledge, but less judgment, more experts, yet more problems, more medicine, but less wellness.

We drink too much, smoke too much, spend too recklessly, laugh too little, drive too fast, get too angry, stay up too late, get up too tired, read too little, watch TV too much, and pray too seldom. We have multiplied our possessions, but reduced our values. We talk too much, love too seldom, and hate too often.

We’ve learned how to make a living, but not a life. We’ve added years to life not life to years. We’ve been all the way to the moon and back, but have trouble crossing the street to meet a new neighbor. We’ve conquered outer space but not inner space. We’ve done larger things, but not better things.

We’ve cleaned up the air, but polluted the soul. We’ve conquered the atom, but not our prejudice. We write more, but learn less. We plan more, but accomplish less. We’ve learned to rush, but not to wait. We build more computers to hold more information, to produce more copies than ever, but we communicate less and less.

These are the times of fast foods and slow digestion, big men and small character, steep profits and shallow relationships.

These are the days of two incomes but more divorce, fancier houses, but broken homes. These are days of quick trips, disposable diapers, throwaway morality, one night stands, overweight bodies, and pills that do everything from cheer, to quiet, to kill. It is a time when there is much in the showroom window and nothing in the stockroom. A time when technology can bring this letter to you, and a time when you can choose to make a difference or to carry on as though you have never read it…

Remember, to spend some time with your loved ones, because they are not going to be around forever. Remember, say a kind word to someone who looks up to you in awe, because that little person soon will grow up and leave your side.

Remember, to give a warm hug to the one next to you, because that is the only treasure you can give with your heart and it doesn’t cost a cent.

Remember, to say, “I love you” to your loved ones, but most of all mean it. A kiss and an embrace will mend hurt when it comes from deep inside of you.

Remember to hold hands and cherish the moment for someday that person might not be there again. Give time to love, give time to speak! And give time to share the precious thoughts in your mind.”

Dr. Bob Moorehead

© WVE and Ireland, MS and Me, 2011-2013. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

Playing God

We all have good friends and we all have fantastic friends. You know the type, the ones that will stick around for an hour when nobody else will. Every now and then, however, we realise we have insanely outstanding friends, and feel how one simple sentence they say, can change days of feeling let down.

Last night I wrote this on my Facebook wall: “Take away. Rugby. Bed. Sleep. Approx. waking up 4 times before 8am. Get up 8.01am for meds. Go back to bed until noon. Wake up for meds. Sleep until 8pm tomorrow. Meds at 8.01pm. Back to bed. And the beat goes on. And on. And on.”

I know… It sounds intense, it was not my intention to come across so… ill (Which in all honesty, I am but then again… I’m not. In other words, I refuse to be ill, no matter what MRI scans and lumbar punctures say). Continue reading “Playing God”

Single life?

Waiting imageOne of my stranger quotes about life is “I would rather live with MS and be free, instead of being healthy and locked up in a cage.”

For people in healthy relationships, hearing my motto for life can be somewhat gloomy or worse, outright ridiculous.

After having been in a relationship where my feelings mattered less and less as time went on, I realised I would be better off single. When I finally made the break, I felt rejuvenated and as if I could carry the world on my shoulders. Atlas, one of the great Greek Titans, I am not, but it sure felt as if Hercules himself moved me forward.

After years of seeing friends or family stuck in relationships that should not be, my resolve is to remain single. Having said that, if there is a worthy male specimen out there who is able to look past my condition, finds my quirks hilarious, wants to feed me ice cream for breakfast, stare into my blue blinkers all night and wants to go for midnight strolls on the beach, I might just reassess my stance on singledom.

So yes, I admit, I am an old romantic soul, the type that for once wants the man to make the first step. I’ve done the chasing a few times in the past and it is so “Been there, done that!”

Questions in regards to having a relationship combined with my illness are present, though, as I often think of friends who have children, and who seem to struggle physically. On the other hand, I wonder if choosing a career over having a family was wise before life with MS. But it matters not. Continue reading “Single life?”