Single and chronically ill on Valentine’s Day?

You can channel your inner delightfully, dazzling diva while wearing pyjamas, dog-shaped winter socks, leg warmers and your turban hair towel.

You can drag your duvet to the living room, watch Romeo + Juliet and cry for an hour afterward because Leo died when he shouldn’t have (Damn you William Shakespeare!)

You can even binge-watch all six episodes of Pride & Prejudice –with Colin Firth- and think, “He may be cute, but thank god I don’t have to live with Mr. Darcy!”

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Being real!

Despite chronic pain and fatigue issues, I am making the best of my life, and I am doing everything possible to be the best version of myself as I can be. All I ask of you is some understanding of what I am going through, and know that every bad day is only making me stronger. Some days, though, I want you to hold my hand or hug me and tell me that everything will be OK.

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Proud

Mum, I’m a very proud daughter. The way you overcame many obstacles in your life before, during and after your pregnancy with me, made you into a woman who stands up for herself, who is very funny, intelligent and simply, a good soul. We often tell one another how proud we are of each other, […]

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Thank you

No man’s an island, we weave connections through waves of emotions, through faith and happy occasions. This month, I’ve been very lucky to have found waves meeting others, and to have found people with the kindest of hearts, the softest of voices but the strongest of minds. This is for them. Joan, Aoife, Niamh, Karen, […]

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The first day

“Change is good,” so they say. I totally agree, in fact, I welcome change with open arms. Afraid of new challenges? No, not me. Because change is good.

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Liebster Award! (no. 4)

Here is the other Liebster Award that was sitting here idly without being forwarded. Tamie’s Realm kindly nominated me and needless to say, I am very happy about it! As always, nominations – which are winners in WordPress blog terminology – need to follow a few steps when passing on the award. Here are the […]

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Liebster Award (no. 3)!

Desperately behind writing new posts or replies to all your comments, I need to get my proverbial bum in action if I want to start writing properly again. Perfectionism is my middle name, but lately I’ve been slacking, oh yes I have. Allow me to hit myself on the hands in punishment… Ouch… That hurt! […]

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A future without chronic illness

I could think of many dates, selfish ones, productive ones and those that would mean a lot of friends and family. If I could choose though, I’d want to be there when a cure for MS is found. Two million people worldwide are living with this incurable illness in their brain and spinal cord, leading […]

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Christmas: The Paradox of Our Time

“The paradox of our time in history is that we have taller buildings but shorter tempers, wider freeways, but narrower viewpoints. We spend more, but have less, we buy more, but enjoy less. We have bigger houses and smaller families, more conveniences, but less time. We have more degrees but less sense, more knowledge, but […]

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Playing God

We all have good friends and we all have fantastic friends. You know the type, the ones that will stick around for an hour when nobody else will. Every now and then, however, we realise we have insanely outstanding friends, and feel how one simple sentence they say, can change days, if not weeks, of […]

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Single life?

“However, I am not MS and MS is not me. It may reside inside my brain but that is where the relationship ends. I accept it is there, but it will not make me long for a relationship just to be in a relationship, or to have someone present to care for me day in, day out. Quite independent, indeed.”

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Time heals

People have referred to me as what they would call a gentle soul. Animals are my biggest love, I love campaigning against unfairness in society and I love the company of books over that of certain people. Being kind, caring and having empathy is something my mum always told me to be, because not everyone […]

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Philosophy of Friendship

Don’t walk behind me; I may not lead. Don’t walk in front of me; I may not follow. Just walk beside me and be my friend. Albert Camus An empty white page on my laptop. Too warm to write, too warm to make sense out of nonsense on my own. In fact, even when I’m […]

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MS: a social disconnect

Therein lies the disconnect: the way others want me to be, and me not being able to keep up. How many of us have pretended to be well enough to walk another 500 meters? How many say they are OK when they feel pain in their limbs, their eyes and in their soul? How many say they will be able to go to work when they were awake half the night because of pain?
Unwillingly we are put in a non-self-imposed isolation; we are put there by our illness, and quite often by the outside world. Our mental functioning is now processed differently because of our illness.

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