[Throwback Thursday] Balancing life and a chronic illness

Oh, you can bet I am willing, I am usually more than willing. When physical restraints curb your potential, you realise that you want so more from your own life, and out of your own reality. Life is moving forward outside your medically induced world, and you feel annoyed when healthy people don’t realise the worth of their bodies, their unused potential. It simply reminds you that being chronically ill sucks.

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Man up!

“The more you struggle to live, the less you live. Give up the notion that you must be sure of what you are doing. Instead, surrender to what is real within you, for that alone is sure… you are above everything distressing.” (Baruch Spinoza)

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While I was sleeping…

“If asked if I want to feel and be the ‘me’ before my diagnosis, I would reply this, “Of course I wish to be that person again, only, I simply cannot remember what ‘normal’ feels like.” Fatigue significantly interfered with daily life very early on in my road to diagnosis and was one of the reasons why, eventually, I was forced to retire four and a half years later.”

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Balancing life and a chronic illness

Reality. It’s what’s for breakfast. After some feeble attempts trying to write a few paragraphs the past few weeks, it was back to the drawing board each time. Not good enough. Already done this. Needs more research. Too tired. Not fit enough. You know moments like these, you sit down, determination almost physically squeezing ink […]

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I don’t miss myself

So… Rugby world cup. At last. England in a fashion faux-pas. Coin toss aside, they resembled players of Wales, China, Japan or Kyrgyzstan (Fijian, red is Fijian). Mum’s nine day visit to Ireland now over. Visited Dublin Zoo once again. New camera making me rather shutter-slow, hence prevalent photographic bonding with rear ends of several […]

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Ten happy MS years

A milestone like no other. A curious, strange one indeed. Ten years of living with MS. Ten. In fact, ten years and one week. Reality suddenly became a very different kind of living. As strange as it sounds, it became a more fulfilled life, a happier one also.

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Under-caffeinated writer. Please help.

“Ah ladies and lads, you know I can be a bit kooky at times; hell, I can even get a little annoyed as well when things don’t go my way. I therefore won’t do it on this page. At all.”

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Tiredness ≠ fatigue

“Yes, I do know how to read calendars and clocks. I even know how to reset the microwave clock when Ireland changes to a new daylight saving time. Please don’t compare your healthy tiredness to unhealthy fatigue, it’s like comparing microwaves to planet Mars.”

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10 bold myths about MS

Multiple sclerosis is an illness subject to many myths that turn out to be misconceptions believed by far too many. When you scratch the surface, you find stubborn tales that create unnecessary anxiety and sleepless nights for those just diagnosed. So let’s just throw some of the many misconceptions out the door, shall we?

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Wonder Woman Syndrome

“Having dissenting views on the verb ‘to pace,’ it is one I need to add seriousness as well as a lot more thought into. Having a Wonder Woman Syndrome is a term I sometimes carry with pride.”

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Kids? Not right now, please…

Children and multiple sclerosis? Although life was good in my last relationship, I secretly decided that having children would probably not be on my list of things to do. Not because of the lack of love, but because I didn’t want to pass on my illness to my future son or daughter. When we eventually […]

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Game, set, relapse!

“In short, if I’d have to sell myself with these words, I still wouldn’t receive a Booker prize. I could post “Another MS Relapse” award on the fireplace mantel, but they’re just a waste of space. I thought of referring to a relapse as something you just have to get your teeth in, but I don’t want to steal Luis Suárez’s limelight.”

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Not my face!

In a world of selfies and size zero clothing, a negative body image can weigh heavily on healthy people, never mind disabled people. Being ill in itself often makes you feel less desirable. In the world of MS, where wheelchairs spread doom and gloom to those that get hit with that tag, body-image requires a whole new level of acceptance.
I firmly believe beauty is limited to time and space. In addition, it only runs skin deep and definitely doesn’t reveal true worth.

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Positive MS News: May 2014

With a 14-day delay in posting some positive news about MS, I’d like to offer my apologies and no, I absolutely haven’t forgotten about you. As many people with MS know, May is about the busiest month for those who advocate and volunteer. World MS Day is the main day of the year for MSers, […]

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Defined by myself, not my illness

“As you can tell, I have lots that strengthens me and drives me forward. I also have (dis)abilities: severe bouts of pain and fatigue, which I bent into a positive writing tool for others to lean on. My limitations serve as other people’s motivation. Their motivation became my inspiration.”

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Giving up is not an option

“We are all different – but we share the same human spirit. Perhaps it’s human nature that we adapt – and survive.” (Stephen Hawking) Just realised a startling… well… realisation. In three years of online writing, I’ve never as much wrote one blog post about the possibility of ending up in a wheelchair. Is it denial? Simply […]

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Meet your new MS Ireland writer!

“It has been a bit of a hectic, but a great time to write lately. Two bits of fantastic news came my way in regards to my writing, and I’ve been over the moon since.”

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The first day

Change is good. So they say, anyway. I totally agree, in fact, I welcome change with open arms. Afraid of new challenges? No, not me. Because change is good.

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A powerful letter to my MS

“I thought you were just another Monday morning case when you walked in,” my consultant said, followed by lots of apologies and the promise that I would be very well taken care of.”

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