Man up!
“The more you struggle to live, the less you live. Give up the notion that you must be sure of what you are doing. Instead, surrender to what is real within you, for that alone is sure... you are above everything distressing.” (Baruch Spinoza)
Ignorance
Oh, people will stalk you on Facebook on their smartphone, but do not ask them to find unprejudiced, trustworthy websites to learn something about your condition on that very smartphone. Quite often, they "will do so when they have time," despite having their phone in their hands 50 times a day.
World MS Day 2014
For more on World MS Day, please visit http://www.worldmsday.org/ This year’s tag-line is “One day…” where people with MS can add access-related mottos, questions and ideas to. Access is still a very important issue that needs more research, adaptation, laws, understanding, support and elimination of barriers before people with multiple sclerosis can lead a totally free, happy and healthy life. If you’re in Ireland, this is the place to be for more on life with MS: http://www.ms-society.ie/ ©Willeke Van Eeckhoutte and Ireland, MS and Me, 2011-2014. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, MS and Me…
A future without chronic illness
I could think of many dates, funny ones, productive ones and those that would mean to a lot of friends and family. If I could choose though, I’d want to be there when a cure for MS is found. Two million people worldwide are living with this incurable illness in their brain and spinal cord, leading to disabilities that maim them or make them withdraw from society, even life.
Relapse!
Yesterday I received an email from the Daily Post at WordPress that said ‘Competition: What activity, task, or game most brings out your competitive streak?’ Activity: having multiple sclerosis. Task: not going to bed when my body screams to should stop doing what I’m doing and make a triple Salchow backwards to land myself under my duvet instead. Game: enjoying life. Competitor: myself. It was an easy enough question to answer because I (still) consider myself my own worst competition, especially right now.
MS Awareness Week 2013
MS Awareness Week from Monday, March 11 2013 to Sunday, March 17th 2013. Tell us why you connect on: http://www.msconnection.org/ © Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2013. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.
The stalker called MS
In my job I often had to do “root cause analysis” assessments on what went wrong with a certain account and how we could “cure” it again. I miss the term “root cause analysis” and I thought I’d do a one on myself, or my life. What the heck, it’s not like I have anything better to do on another dreary summer’s day in Ireland! I suspect that my illness, the incredibly annoying stalker called Multiple Sclerosis, entered my system through a back door in the 1990s. I have to go back when I worked in a library and I was having the time of my life, so it couldn’t have come at a worse time. I had a period of extreme fatigue and it turned out to be glandular fever…