Man up!

“The more you struggle to live, the less you live. Give up the notion that you must be sure of what you are doing. Instead, surrender to what is real within you, for that alone is sure… you are above everything distressing.” (Baruch Spinoza)

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Ignorance

Oh, people will stalk you on Facebook on their smartphone, but do not ask them to find unprejudiced, trustworthy websites to learn something about your condition on that very smartphone. Quite often, they “will do so when they have time,” despite having their phone in their hands 50 times a day.

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World MS Day 2014

For more on World MS Day, please visit http://www.worldmsday.org/ This year’s tag-line is “One day…” where people with MS can add access-related mottos, questions and ideas to. Access is still a very important issue that needs more research, adaptation, laws, understanding, support and elimination of barriers before people with multiple sclerosis can lead a totally […]

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A future without chronic illness

I could think of many dates, funny ones, productive ones and those that would mean to a lot of friends and family. If I could choose though, I’d want to be there when a cure for MS is found. Two million people worldwide are living with this incurable illness in their brain and spinal cord, […]

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Relapse!

Yesterday I received an email from the Daily Post at WordPress that said ‘Competition: What activity, task, or game most brings out your competitive streak?’ Activity: having multiple sclerosis. Task: not going to bed when my body screams to should stop doing what I’m doing and make a triple Salchow backwards to land myself under […]

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MS Awareness Week 2013

MS Awareness Week from Monday, March 11 2013 to Sunday, March 17th 2013. Tell us why you connect on: http://www.msconnection.org/ © Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2013. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, […]

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The stalker called MS

In my job I often had to do “root cause analysis” assessments on what went wrong with a certain account and how we could “cure” it again. I miss the term “root cause analysis” and I thought I’d do a one on myself, or my life. What the heck, it’s not like I have anything […]

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MS fatigue… the invisible monster

MS fatigue… The most common, yet most difficult to detect a symptom in multiple sclerosis. Aside from feeling exhausted, having to explain people over and over how different it is to normal tiredness, you often get a stigma assigned of “yeah, yeah, you’re just being lazy” or “sure, now keep walking, it’s probably not that […]

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