Perhaps losing my only sibling over a decade ago recreated the perspective on life I once held. It poured resilience into a mind that required to be strengthened for the many years ahead. Hope became the antidote to being tired of always being sick and tired.Read More
Some days I go through life like a half-baked version of Cinderella. There’s promise at 8 AM, but by 11 AM my fairytale book is closed until further notice. In the background, that all-important clock keeps ticking forward, but my body is in a rut: sleeping, eating, exercising, resting, more eating, more sleeping and back again. And […]Read More
I believe it’s fair to say so that the ‘Living Like You’ as well as the ‘MS & Me’ writers share the same gratitude. Being nominated by the public means you are owed a big thank you for not just having our back, but also for sharing our words with hundreds of people. Your voice – though often unheard – means that MS isn’t a lonely illness, but a shared concern.Read More
Life with MS can be awkward. It can be puzzling. It is unquestionably easier said than done. It’s the little things that are happening inside your central nervous system that can make you stumble as if your body reinvents and transforms itself without your consent as if the ‘old’ you is suddenly not good enough anymore.Read More
Either ‘the birds were lying flow’, or ‘foreign pilitocs’ greatly interested me. Some, in fact, wondered if all of planet Mars just invaded my bloodstream. Involuntary spoonerisms like these have caused laughter and memories that needless to say, others have a far better recollection of that I have.
Me? I thought my newly acquired talent for involuntary creating weird words out of ridiculously dull ones was hilarious. I had it down to a tee.Read More
I agree it has been fairly quiet here. A lot has happened the past few months which required the usual RRS, the almighty Rest, Relaxation, and Sleep. New things are still taking shape, so do hang around or drop me an email. 💋💋💋 Pucker up in the meantime in February! Go RED to KISS GOODBYE […]Read More
“Following that, I hit writer’s block faster than you can say ‘ABC’. That writer’s block has reached the ‘XYZ’ stage, so I’m nearing a muse that sounds, tastes and smells like coffee.
Where I am funnily always full of ideas.
Away from notebooks and pens, I scrapped another item from my bucket list in September.”Read More
© Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2016. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner are strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific […]Read More
As each day passes with life with MS, it’s worth noting that quite often, there is still a large information gap to be filled on a medical, emotional, societal and political level. Like many other disease groups, the MS community wants to enhance “Life with…” once a year in a bid to give more insight […]Read More
From February 1st to March 18th MS Ireland, our national MS society, is taking part in Kiss Goodbye to MS, the first global major fundraising campaign that raises funds purely for multiple sclerosis research. Because of the reach of the initiative, it has the potential to accelerate around the world. Kiss Goodbye to MS started […]Read More
“Seeing the world with fresh eyes every morning is something other people do. I try to get my innate sense of curiosity and wonder going when I wake up, but my enthusiasm only reaches as far as, “Oh look, both my eyes are open!” I re-evaluated my night-time activities, so, as those dubious sleep and pretend-to-be-awake-games only lead to more excessive MS fatigue.”Read More
It’s not the first time I sit back at night and go over past moments that left me inspired and willed me forward to do more, much more. As societies go, there’s a lot of goodwill in MS Ireland, our national MS society. There are also hard facts that tell you that this is a […]Read More
“So, how’s the book,” friends often ask me. “Oh, it’s getting there,” I joke. “I’ve finished one page, the one with the title and my name!” I don’t lack the ambition to keep on writing, but I have an overabundance of low energy levels, so I must ask people to use their patience… patiently when […]Read More
“If you’re in Ireland, text Festify to 50300 to donate €4 for Christmas. If you want to give a larger amount if you are living abroad, you can go to http://ms-society.ie/pages/donate to donate any amount you wish to the society. A lifetime membership costs €50 ($67 or £40), and ensures much-needed services to people with MS can be retained or improved.”Read More
Originally posted on Accessibility Matters:
My brother Martin is going to walk the Camino de Santiago de Compostela. For those of you who may not be aware of the Camino, it starts in southern France, crosses into northern Spain and meanders down into Portugal. The total distance to be covered is just short of 800Km,…
No man’s an island, we weave connections through waves of emotions, through faith and happy occasions. This month, I’ve been very lucky to have found waves meeting others, and to have found people with the kindest of hearts, the softest of voices but the strongest of minds. This is for them. Joan, Aoife, Niamh, Karen, […]Read More
“For those reasons, the European MS Platform will host its Spring Conference in Ireland on the 8th and the 9th of May in the Gibson Hotel, Dublin. The theme of this year’s conference is “Care where it counts – in the journey with MS.””Read More
“It has been a bit of a hectic, but a great time to write lately. Two bits of fantastic news came my way in regards to my writing, and I’ve been over the moon since.”Read More
Last September, I was invited by the Irish MS Society to take part in a panel discussion at their National Day in Galway. I happily accepted because we all know that I never say no to having a good chat. The topic of the National Day was ‘being active and interactive’, and the panel discussion […]Read More
A friend sent me this picture this evening as a reminder that I need to take a step back from writing, reading, advocating and generally helping others so I can “get better” again. We all know people with MS do not “get better” but I understood his reasoning… I need to sleep more, relax more […]Read More