Tag Archives: MS Ireland

💋 Kiss Goodbye to MS 2017 💋

s3dmvsjpwzpbtbpf2yepqgcsovic3hfh_gblfgsfq4m-300x252I agree it has been fairly quiet here. A lot has happened the past few months which required the usual RRS, the almighty Rest, Relaxation, and Sleep. New things are still taking shape, so do hang around or drop me an email.

💋💋💋 Pucker up in the meantime in February! Go RED to KISS GOODBYE TO MS, the global fundraising campaign, supported by MS Ireland also. Donate €4 to MS research when you text Smooch to 50300 💋💋💋

New posts will appear soon, though, so keep an eye on your email or WordPress account!

Talk soon!

Willeke

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©WVE and Ireland, Multiple Sclerosis & Me, 2011-2017. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner are strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

Then & now

While events on the political world stage the last few months weren’t exactly vivacious or dignified, a lot has happened in and outside my own colourful, little Irish bubble also. I didn’t have a foul-mouthed Donald Trump breaking down my every word, but I equally didn’t have an eloquent Obama and Air Force One to drag me away from crime-ridden, questionable places. “Life,” in a way was, just like Einstein once said, “like riding a bicycle. To keep your balance, you must keep moving.”

Even while moving, however, at times I felt the pedals slip from under my feet, resulting in losing balance mid-air. Ungracefully, so. Continue reading

disABILITY

Disable Inequality

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© Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2016. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner are strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

World MS Day 2016

c42bdf6a253c4de6518ad04cbfc60affAs each day passes with life with MS, it’s worth noting that quite often, there is still a large information gap to be filled on a medical, emotional, societal and political level. Like many other disease groups, the MS community wants to enhance “Life with…” once a year in a bid to give more insight in what people without MS may otherwise take for granted.

In the past, I’ve written about World MS Day on my blog, as well as on the Irish MS Society’s blog and on Novartis’s MS blog. As a person living with the illness day in, day out, highlighting it has become a moral obligation. Continue reading

Come on, go red & kiss goodbye to MS!

12647318_1067388569948449_4596931838609970428_nFrom February 1st to March 18th MS Ireland, our national MS society, is taking part in Kiss Goodbye to MS, the first global major fundraising campaign that raises funds purely for multiple sclerosis research. Because of the reach of the initiative, it has the potential to accelerate around the world.

Kiss Goodbye to MS started in Australia a few years ago and finally went global. Big names have added some clout to the events, like Shemar Moore of Criminal Minds whose mother lives with MS. Also, US actress Amy Schumer has spoken up about her father’s MS while Odile Frosini in France encouraged her students to go ‘red’. In Ireland, our own Rosanna Davison, Irish Ambassador, nutritional therapist, chart-topping author as well as ex-Miss World is helping spread the word to literally, kiss goodbye to MS.   Continue reading

Are you Cinderella yet?

Almog albalach_Clock Flares_YEJqQwSome days I feel like a half-baked Cinderella. There’s some promise at 8am, but by 10am my fairy tale book is closed until further notice. In the background, that all-important Cinderella clock keeps ticking forward. My body is in a rut: sleeping, eating, exercising, resting, eating, sleeping and back again.

And that Cinderella shoe?

Taken by someone else altogether.

In other words, and very much like  a psychological broken record, I keep finding out that I am 100% present, but physically I am a goner. Continue reading

MS Ireland: Hope & Empowerment

0480eb81-cea2-43aa-a6ba-7e028db14c361It’s not the first time I sit back at night and go over past moments that left me inspired and willed me forward to do more, much more.

As societies go, there’s a lot of goodwill in MS Ireland, our national MS society. There are also hard facts that tell you that this is a group of outstanding people working towards one goal only: to significantly improve the lives of those living with multiple sclerosis, including their families. Continue reading

#strongerthanms with MS Ireland

World MS Day image 2015

“So, how’s the book?”

I don’t lack ambition to keep on writing, but I have an over-abundance of low energy levels, so I must ask people to use their patience… patiently when dealing with me.

Like all cowards, the illness I write about lurks in the dark within my central nervous system, and it sometimes rises to the surface in unflattering ways. My body does a good job in concealing it for now, but every so often I worry about it rising to the surface and staying there… permanently. Continue reading

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