Tag Archives: MS Ireland

Oh my god, I am (so not) dying!

WMSD logo

You know you’re on to something when you recognise your medical file from afar, even when it’s tucked between 15 other colourful medical records.

Sadly, this is a fact that even World MS Day on Wednesday, May 30th can’t heal. Nevertheless, as a global community of approximately 2.3 million people with MS, being part of the solution – a.k.a. spreading awareness and pushing for a cure – can be infinitely rewarding. On WMSD, I feel an even greater purpose to be part of that solution, whether it is by attending disability-related meetings and spreading the word afterwards, or simply by becoming more conscious of the problems people with MS and other disabilities are facing in the world today.

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Jammed filter!

Image memory thinking

For more on memory and thinking, click on the above image (©MS Ireland)

Every so often, people say things that shouldn’t be said.

Literally.

Some things just shouldn’t.

Us humans – living, breathing, excessively addictive to social media – have to endure the result of a very selfishly applied verb.

We communicate. And not always very well.

In fact, I am sure your brain-to-mouth filter runs into trouble every so often, and you have suffered from that same technical glitch just as much as I have.

We just cannot take back our words.

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💋 Kiss Goodbye to MS 2017 💋

s3dmvsjpwzpbtbpf2yepqgcsovic3hfh_gblfgsfq4m-300x252I agree it has been fairly quiet here. A lot has happened the past few months which required the usual RRS, the almighty Rest, Relaxation, and Sleep. New things are still taking shape, so do hang around or drop me an email.

💋💋💋 Pucker up in the meantime in February! Go RED to KISS GOODBYE TO MS, the global fundraising campaign, supported by MS Ireland also. Donate €4 to MS research when you text Smooch to 50300 💋💋💋

New posts will appear soon, though, so keep an eye on your email or WordPress account!

Talk soon!

Willeke

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©WVE and Ireland, Multiple Sclerosis & Me, 2011-2017. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner are strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

Then & now

While events on the political world stage the last few months weren’t exactly vivacious or dignified, a lot has happened in and outside my own colourful, little Irish bubble also. I didn’t have a foul-mouthed Donald Trump breaking down my every word, but I equally didn’t have an eloquent Obama and Air Force One to drag me away from crime-ridden, questionable places. “Life,” in a way was, just like Einstein once said, “like riding a bicycle. To keep your balance, you must keep moving.”

Even while moving, however, at times I felt the pedals slip from under my feet, resulting in losing balance mid-air. Ungracefully, so. Continue reading

disABILITY

Disable Inequality

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© Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2016. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner are strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

World MS Day 2016

c42bdf6a253c4de6518ad04cbfc60affAs each day passes with life with MS, it’s worth noting that quite often, there is still a large information gap to be filled on a medical, emotional, societal and political level. Like many other disease groups, the MS community wants to enhance “Life with…” once a year in a bid to give more insight in what people without MS may otherwise take for granted.

In the past, I’ve written about World MS Day on my blog, as well as on the Irish MS Society’s blog and on Novartis’s MS blog. As a person living with the illness day in, day out, highlighting it has become a moral obligation. Continue reading

Come on, go red & kiss goodbye to MS!

12647318_1067388569948449_4596931838609970428_nFrom February 1st to March 18th MS Ireland, our national MS society, is taking part in Kiss Goodbye to MS, the first global major fundraising campaign that raises funds purely for multiple sclerosis research. Because of the reach of the initiative, it has the potential to accelerate around the world.

Kiss Goodbye to MS started in Australia a few years ago and finally went global. Big names have added some clout to the events, like Shemar Moore of Criminal Minds whose mother lives with MS. Also, US actress Amy Schumer has spoken up about her father’s MS while Odile Frosini in France encouraged her students to go ‘red’. In Ireland, our own Rosanna Davison, Irish Ambassador, nutritional therapist, chart-topping author as well as ex-Miss World is helping spread the word to literally, kiss goodbye to MS.   Continue reading

Are you Cinderella yet?

Almog albalach_Clock Flares_YEJqQwSome days I feel like a half-baked Cinderella. There’s some promise at 8am, but by 10am my fairy tale book is closed until further notice. In the background, that all-important Cinderella clock keeps ticking forward. My body is in a rut: sleeping, eating, exercising, resting, eating, sleeping and back again.

And that Cinderella shoe?

Taken by someone else altogether.

In other words, and very much like  a psychological broken record, I keep finding out that I am 100% present, but physically I am a goner. Continue reading

MS Ireland: Hope & Empowerment

0480eb81-cea2-43aa-a6ba-7e028db14c361It’s not the first time I sit back at night and go over past moments that left me inspired and willed me forward to do more, much more.

As societies go, there’s a lot of goodwill in MS Ireland, our national MS society. There are also hard facts that tell you that this is a group of outstanding people working towards one goal only: to significantly improve the lives of those living with multiple sclerosis, including their families. Continue reading

#strongerthanms with MS Ireland

World MS Day image 2015

“So, how’s the book?”

I don’t lack ambition to keep on writing, but I have an over-abundance of low energy levels, so I must ask people to use their patience… patiently when dealing with me.

Like all cowards, the illness I write about lurks in the dark within my central nervous system, and it sometimes rises to the surface in unflattering ways. My body does a good job in concealing it for now, but every so often I worry about it rising to the surface and staying there… permanently. Continue reading

#FestifyMS your desk Christmas appeal

Image Festify MS Ireland

You might think, “Not another picture about MS!?”

You’re right. It is another picture about MS. This one however, is different.

I hope that after reading this article, you will have learned how the Irish MS society (also called MS Ireland), is able to provide hope where there’s none, not only through utter commitment and hard work, but also with quiet strength. Continue reading

My brother and The Camino de Santiago de Compostella

I usually don’t reblog posts, but this one is special as it regards the brother of a friend of mine. Martin will be walking the Camino de Santiago de Compostela to raise funds for the Multiple Sclerosis Society of Ireland.

Declan and myself are lifetime members of MS Ireland and you know how much I’ve written about them in the past. It’s an absolutely astonishing society who does the utmost for people and family members of those with MS. Through my advocating with and for them, I see the efforts they make to try to help everyone affected, but having budget cuts year after year, the society can’t do everything they would love to do.

I would therefore absolutely love it if anyone would want to sponsor Martin Groeger. To do so, please check Declan’s blog.

Thank you very much in advance!

Accessibility Matters

My brother Martin Martin for The Caminois going to walk the Camino de Santiago de Compostela. For those of you who may not be aware of the Camino, it starts in southern France, crosses into northern Spain and meanders down into Portugal. The total distance to be covered is just short of 800Km, that’s 500 miles in old money. It really is a massive undertaking both in time and energy. There are no 5 star hotels along the way, just hostels with fairly basic facilities. It is not a journey that he is taking on lightly and he has been training for many months. His friends and neighbours have been watching him pound the footpaths with a weighted rucksack on his back. The thought of walking 25+ Km once is enough to send shivers down my spine but facing the same distance every day for 30 days is just unimaginable. What an undertaking?…

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Thank you

No man’s an island, we weave connections through waves of emotions, through faith and happy occasions. This month, I’ve been very lucky to have found waves meeting others, and to have found people with the kindest of hearts, the softest of voices but the strongest of minds. This is for them.

Joan, Aoife, Niamh, Karen, Declan, Trevis, Lucina, Miriam, Diana, Natalia, Ava, Ruth

My GP, MS nurse, neurologist, ophthalmologist and many others in the two hospitals I attend

The many friends back in Belgium and in Ireland, especially Claudia, Dirk, Susie, Jean, Audrey and Gratiane

and as always:

My mom who never gives up, even in the strongest of seas, every single day.

10155726_567734903324541_6254693841274862608_n© WVE and Ireland, MS and Me, 2011-2014. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, MS and Me with appropriate and specific direction to the original content.

EMSP Spring Conference 2014, Dublin

emspThis year is the European Year of the Brain, and 2014 also marks the 25th birthday of the EMSP, the European MS Platform.

Unequivocally and visibly astonished, that’s what I am right this minute. The quality of yet another MS organisation and the hard work they do, makes me want to jump up and down. Digging deeper into the work of the EMSP because of their upcoming two-day conference in Dublin, I can only say one thing: ‘People with MS are in very, very good hands, with people with- or without MS standing up for them wherever they are.’

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H.O.P.E. (Hold On, Pain Ends)

“The best way to not feel hopeless is to get up and do something.
Don’t wait for good things to happen to you.
If you go out and make some good things happen,
you will fill the world with hope,
you will fill yourself with hope.”
(Barack Obama)

It has been a bit of a hectic, but a great time to write lately. Two bits of fantastic news came my way in regards to my writing, and I’ve been over the moon since.

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