Happy World MS Day!

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Let’s do our bit to advance research until we find a cure. and be part of the solution instead of the problem!

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Oh my god, I am (so not) dying!

Life with MS can be awkward. It can be puzzling. It is unquestionably easier said than done. It’s the little things that are happening inside your central nervous system that can make you stumble as if your body reinvents and transforms itself without your consent as if the ‘old’ you is suddenly not good enough anymore.

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💋 Kiss Goodbye to MS 2017 💋

I agree it has been fairly quiet here. A lot has happened the past few months which required the usual RRS, the almighty Rest, Relaxation, and Sleep. New things are still taking shape, so do hang around or drop me an email. 💋💋💋 Pucker up in the meantime in February! Go RED to KISS GOODBYE […]

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Then & now

“Following that, I hit writer’s block faster than you can say ‘ABC’. That writer’s block has reached the ‘XYZ’ stage, so I’m nearing a muse that sounds, tastes and smells like coffee.

Starbucks.

Where I am funnily always full of ideas.

Away from notebooks and pens, I scrapped another item from my bucket list in September.”

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disABILITY

© Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2016. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner are strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific […]

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World MS Day 2016

As each day passes with life with MS, it’s worth noting that quite often, there is still a large information gap to be filled on a medical, emotional, societal and political level. Like many other disease groups, the MS community wants to enhance “Life with…” once a year in a bid to give more insight […]

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Come on, go red & kiss goodbye to MS!

From February 1st to March 18th MS Ireland, our national MS society, is taking part in Kiss Goodbye to MS, the first global major fundraising campaign that raises funds purely for multiple sclerosis research. Because of the reach of the initiative, it has the potential to accelerate around the world. Kiss Goodbye to MS started […]

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MS Ireland: Hope & Empowerment

It’s not the first time I sit back at night and go over past moments that left me inspired and willed me forward to do more, much more. As societies go, there’s a lot of goodwill in MS Ireland, our national MS society. There are also hard facts that tell you that this is a […]

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#strongerthanms with MS Ireland

“So, how’s the book,” friends often ask me. “Oh, it’s getting there,” I joke. “I’ve finished one page, the one with the title and my name!” I don’t lack the ambition to keep on writing, but I have an overabundance of low energy levels, so I must ask people to use their patience… patiently when […]

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#FestifyMS Christmas appeal

“If you’re in Ireland, text Festify to 50300 to donate €4 for Christmas. If you want to give a larger amount if you are living abroad, you can go to http://ms-society.ie/pages/donate to donate any amount you wish to the society. A lifetime membership costs €50 ($67 or £40), and ensures much-needed services to people with MS can be retained or improved.”

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My brother and The Camino

Originally posted on Accessibility Matters:
My brother Martin is going to walk the Camino de Santiago de Compostela. For those of you who may not be aware of the Camino, it starts in southern France, crosses into northern Spain and meanders down into Portugal. The total distance to be covered is just short of 800Km,…

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Irish public transport: access all areas?

“At this stage, I thought “Do I really have to walk with my coffin under my arm to get a seat when I’m physically leaning on a walking stick while holding the handrail as if it was my best friend?””

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Thank you

No man’s an island, we weave connections through waves of emotions, through faith and happy occasions. This month, I’ve been very lucky to have found waves meeting others, and to have found people with the kindest of hearts, the softest of voices but the strongest of minds. This is for them. Joan, Aoife, Niamh, Karen, […]

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EMSP Spring Conference 2014, Dublin

“For those reasons, the European MS Platform will host its Spring Conference in Ireland on the 8th and the 9th of May in the Gibson Hotel, Dublin. The theme of this year’s conference is “Care where it counts – in the journey with MS.””

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Meet your new MS Ireland writer!

“It has been a bit of a hectic, but a great time to write lately. Two bits of fantastic news came my way in regards to my writing, and I’ve been over the moon since.”

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MS Ireland National Meeting Day 2013

Last September, I was invited by the Irish MS Society to take part in a panel discussion at their National Day in Galway. I happily accepted because we all know that I never say no to having a good chat. The topic of the National Day was ‘being active and interactive’, and the panel discussion […]

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Slowing down

A friend sent me this picture this evening as a reminder that I need to take a step back from writing, reading, advocating and generally helping others so I can “get better” again. We all know people with MS do not “get better” but I understood his reasoning… I need to sleep more,  relax more […]

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Being active online

It’s two days after travelling 230km west for MS Ireland’s National Meeting Day in Galway, Ireland. It was a fantastic day, and I learned a lot, but it was just as great being able to share information on how to be interactive when you have a mountain of free time when you’re stuck at home. […]

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Perfectionism

Banjaxed, tired high and wrecked. That’s how yesterday unfolded. After being up till 3.30am writing, I managed to sleep only 3h. I was unable to sleep, and as a result, I was going over the things I still needed to do before Saturday’s National MS Day in Galway. One of the topics of the day […]

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World MS Day 2013

World MS Day 2013 today. While my diagnosis gave me a lot to think about, it gave back so many things to cherish and love: friends that care, family that supports and a medical team that is ready to tackle my every need. While there might not be a cure yet, I feel blessed to […]

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World MS Day 2012

Tomorrow is World MS Day, highlighting the need for more research, better medication and spreading awareness of what MS is and what it does to people who have it. I often think that MS is a “lonely” illness. Because a lot of symptoms are misunderstood and/or not taken seriously by people who don’t have multiple […]

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World MS Day 2012

Tomorrow is World MS Day, highlighting the need for more research, better medication and spreading awareness of what MS is and what it does to people who have it. I often think that MS is a “lonely” illness. Because a lot of symptoms are misunderstood and/or not taken seriously by people who don’t have multiple […]

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