MS News: January 2018
Your monthly MS news is back after spending a few months in the cooler. It will continue as before, with highlights, news on research and clinical trials as well as lifestyle, diet and mental and emotional health. If you found an article you want to add to this post, please let me know. Highlight! 5 Tips Managing Cold and Flu Season with MS A UCL Special Grand Round: Recent Advances in Multiple Sclerosis Predicting MS in Patients With Clinically Isolated Syndrome: MAGNIMS vs McDonald Criteria Online Video Aims to Show How ‘Invisible’ Disabilities Affect Lives Video on Invisible Disabilities Breaks Down Barriers and Helps Make Connections Research in Ireland Five leading Irish-based researchers to share SFI prize of €7m Two Trinity Researchers Among Five Winners of €7m in Funding
The paradox of our time
Is that we have taller buildings, but shorter tempers. Wider freeways, but narrower viewpoints. We spend more, but we have less. We buy more but enjoy it less. We have bigger houses, but smaller families. More conveniences, but less time. We have more degrees, but less sense. More knowledge, but less judgement. More experts, yet more problems. We have more gadgets, but less satisfaction. More medicines, but less wellness. We take more vitamins but see fewer results. We drink too much; smoke too much; spend too recklessly; laugh too little; drive too fast; get too angry quickly; stay up too late; get up too tired; read too seldom; watch TV too much and pray too seldom. We have multiplied our possessions but reduced our values. We fly in faster planes…
Top 10 MS support pages on Facebook
Searching for a Facebook support page for people with MS? Look no further!
UNCRPD, Ireland’s ten-year moral outrage
Having a neurodegenerative illness that cannot be cured has given me the best gift I could ever ask for, strength and meeting the most inspirational and brightest people with disabilities in Ireland and abroad. Yes, they might "be different" in the eyes of many, but they showed me that not everything in life has a price or a tag. They taught me that disability is about misinterpreted ability because they help other people with or without disabilities within their communities in a time when their government shows signs of deliberate discrimination.
Books? Great medicine!
All joking aside, I cannot even begin to count the number of books I have read since childhood or how many I handled while working in a library. Books become part of life, a friend I will remember forever, a gateway or hiding place where distraction reigns. Just holding them, turning page after page, waiting to be explored, conquered, talked about and put on a shelf waiting to be taken out again. And so the cycle begins again.
Man up!
“The more you struggle to live, the less you live. Give up the notion that you must be sure of what you are doing. Instead, surrender to what is real within you, for that alone is sure... you are above everything distressing.” (Baruch Spinoza)
Health Organisations – Ireland
Overview of health organisations for people with disabilities Health Service Executive (HSE) Department of Social Protection Press Office of the Department of Health, Ireland Disability Federation of Ireland National Disability Authority Neurological Alliance of Ireland (NAI) Health Information and Quality Authority (HIQA) Irish Medicines Board (IMB) Revenue Commissioners Information on Rights and Entitlements Medical Cards Private Health Insurance Housing Adaptation Grant for People with a Disability Mobility Aids Grant Scheme Seniors Alert Scheme Other support from the HSE Education Schemes to Support People with Disabilities in the Workplace Transport and Mobility VAT Refunds Tax Credits Relevant Legislation Useful Organisations Citizens Information Board Money Advice and Budgeting Service (MABS) Health Services in Ireland Arthritis Ireland Association for Higher Education Access and Disability (AHEAD) Association of Occupational Therapists in Ireland (AOTI) Central Remedial…
