Why I love advocacy (and you should too!)

No talking girl

No matter when you were diagnosed, there might be moments when you feel like screaming at the top of your lungs when symptoms take a little too long to disappear, or because people are just getting on your nerves.

Read More

MS News: January 2018

MRI brain scan

Your monthly MS news is back after spending a few months in the cooler. It will continue as before, with highlights, news on research and clinical trials as well as lifestyle, diet and mental and emotional health. If you found an article you want to add to this post, please let me know. Highlight! 5 […]

Read More

The paradox of our time

Is that we have taller buildings, but shorter tempers. Wider freeways, but narrower viewpoints. We spend more, but we have less. We buy more but enjoy it less. We have bigger houses, but smaller families. More conveniences, but less time. We have more degrees, but less sense. More knowledge, but less judgement. More experts, yet […]

Read More

Multiple Sclerosis Ireland & Novartis Blog awards!

I believe it’s fair to say so that the ‘Living Like You’ as well as the ‘MS & Me’ writers share the same gratitude. Being nominated by the public means you are owed a big thank you for not just having our back, but also for sharing our words with hundreds of people. Your voice – though often unheard – means that MS isn’t a lonely illness, but a shared concern.

Read More

UNCRPD, Ireland’s ten-year moral outrage

Having a neurodegenerative illness that cannot be cured has given me the best gift I could ever ask for, strength and meeting the most inspirational and brightest people with disabilities in Ireland and abroad. Yes, they might “be different” in the eyes of many, but they showed me that not everything in life has a price or a tag. They taught me that disability is about misinterpreted ability because they help other people with or without disabilities within their communities in a time when their government shows signs of deliberate discrimination.

Read More

Books? Great medicine!

All joking aside, I cannot even begin to count the number of books I have read since childhood or how many I handled while working in a library. Books become part of life, a friend I will remember forever, a gateway or hiding place where distraction reigns. Just holding them, turning page after page, waiting to be explored, conquered, talked about and put on a shelf waiting to be taken out again. And so the cycle begins again.

Read More

Man up!

“The more you struggle to live, the less you live. Give up the notion that you must be sure of what you are doing. Instead, surrender to what is real within you, for that alone is sure… you are above everything distressing.” (Baruch Spinoza)

Read More

Health Organisations – Ireland (2018)

Overview of health organisations for people with disabilities Health Service Executive (HSE) Department of Social Protection Press Office of the Department of Health, Ireland Disability Federation of Ireland National Disability Authority Neurological Alliance of Ireland (NAI) Health Information and Quality Authority (HIQA) Irish Medicines Board (IMB) Revenue Commissioners Information on Rights and Entitlements Medical Cards […]

Read More