MS News: January 2018

MRI brain scan

Your monthly MS news is back after spending a few months in the cooler. It will continue as before, with highlights, news on research and clinical trials as well as lifestyle, diet and mental and emotional health. If you found an article you want to add to this post, please let me know. Highlight! 5 […]

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The paradox of our time

(This essay appeared under the title “The Paradox of Our Age” in Words Aptly Spoken, Dr. Moorehead, 1995) The paradox of our times Is that we have taller buildings, but shorter tempers. Wider freeways, but narrower viewpoints. We spend more, but we have less. We buy more but enjoy it less. We have bigger houses, but smaller […]

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Multiple Sclerosis Ireland & Novartis Blog awards!

I believe it’s fair to say so that the ‘Living Like You’ as well as the ‘MS & Me’ writers share the same gratitude. Being nominated by the public means you are owed a big thank you for not just having our back, but also for sharing our words with hundreds of people. Your voice – though often unheard – means that MS isn’t a lonely illness, but a shared concern.

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UNCRPD, Ireland’s ten-year moral outrage

Having a neurodegenerative illness that cannot be cured has given me the best gift I could ever ask for, strength and meeting the most inspirational and brightest people with disabilities in Ireland and abroad. Yes, they might “be different” in the eyes of many, but they showed me that not everything in life has a price or a tag. They taught me that disability is about misinterpreted ability because they help other people with or without disabilities within their communities in a time when their government shows signs of deliberate discrimination.

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Books? Great medicine!

All joking aside, I cannot even begin to count the number of books I have read since childhood or how many I handled while working in a library. Books become part of life, a friend I will remember forever, a gateway or hiding place where distraction reigns. Just holding them, turning page after page, waiting to be explored, conquered, talked about and put on a shelf waiting to be taken out again. And so the cycle begins again.

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Man up!

“The more you struggle to live, the less you live. Give up the notion that you must be sure of what you are doing. Instead, surrender to what is real within you, for that alone is sure… you are above everything distressing.” (Baruch Spinoza)

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Health Organisations – Ireland

NOTE: for mental health organisations in Ireland, please go to this webpage Overview of health services for people with disabilities Entitlements for people with disabilities in Ireland Disability Federation of Ireland Neurological Alliance of Ireland (NAI) Disability Consultancy Services disAbility.ie Enable Ireland Inclusion Ireland Irish Wheelchair Association (IWA) Leap Ireland Rehab Ireland (Rehabilitation for Disabled […]

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Ireland Speaks No Language

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Ireland speaks no language I cannot hear with my heart. Sings no songs I cannot feel by their touch on my lips. Holds no love I cannot embrace with my thoughts. Ireland listens quietly, Unconditionally. ©Willeke Van Eeckhoutte, 2013, 2016 #1916 #Ireland1916 #EasterMonday #RTE1916 #Easter1916 #1916Rising #EasterRising Also see Kick-Ass Ireland! © Willeke Van Eeckhoutte and […]

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Disable Inequality

It’s been rather quiet down here. The past four to five months, I’ve been involved in disability rights campaigns and had a long much-needed Christmas and New Year’s break. I’m now back to passive campaigning in some form or another while having the flu… it’s never boring in MS-land. With the Irish election campaign in […]

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Whát?! 2015 in review!

The WordPress.com statistics monkeys prepared a 2015 annual report for this blog. With a total of 22,599 views from 13,765 visitors in 137 countries in 2015 and with 1,857 followers so far, I cannot be any happier. Writing and posting has been slow the last few months, but I will be back soon enough with […]

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Balancing life and a chronic illness

Reality. It’s what’s for breakfast. After some feeble attempts trying to write a few paragraphs the past few weeks, it was back to the drawing board each time. Not good enough. Already done this. Needs more research. Too tired. Not fit enough. You know moments like these, you sit down, determination almost physically squeezing ink […]

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13!

Thirteen years ago today I moved to Ireland. A teenage dream turned reality. Little did I know that 2,5 years later, my life would be transformed in a way I had never imagined. Still, there are no regrets, and where anger could have resided, none is left for two chronic illnesses that could easily have […]

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I don’t miss myself

So… Rugby world cup. At last. England in a fashion faux-pas. Coin toss aside, they resembled players of Wales, China, Japan or Kyrgyzstan (Fijian, red is Fijian). Mum’s nine day visit to Ireland now over. Visited Dublin Zoo once again. New camera making me rather shutter-slow, hence prevalent photographic bonding with rear ends of several […]

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PLEASE VOTE! MS Ireland company blog shortlisted!

MS & Me, the group blog of MS Ireland for which I also write, has been shortlisted for the Blog Awards 2015 edition in the company Best Health and Wellbeing category! We need YOUR vote though to become a finalist. *** The PUBLIC VOTE is now open for the 2015 Blog Awards Ireland! *** Voting will be […]

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