Being a perfectionist, of course, it had to be precisely 200 days.
Six months and nineteen days between my first multiple sclerosis symptoms and its very diagnosis.
Little did I know that it would eventually transform my life.
It was September 2004, and I had just dropped off my mother at Dublin Airport for her return to Belgium. On the way home, a strange sensation took hold of the left side of my face, as if it had been injected with thick rubber. Thinking nothing of it, I went back to bed to catch up on lost ZZZs.
Thirteen years ago today I moved to Ireland. A teenage dream turned reality.
Little did I know that 2,5 years later, my life would be transformed in a way I had never imagined. Still, there are no regrets, and where anger could have resided, none is left for two chronic illnesses that could easily have been my downfall.
Not one to dwell on issues past, I never allowed myself to live in Oscar Wilde’s famous gutter for a long period. When he said, “We are all in the gutter, but some of us are looking at the stars,” I realise I still am that stargazer, that dreamer, that person who loves Irish history and sociology, nature and literature, photography and psychology.
I am also still that believer in historical and moral justice, a dreamer who wants to see eight centuries of domination over Ireland undone, but knowing all too well that from a political and royal viewpoint, this is dream one dream too many. Continue reading “13!”→
Neurologically challenged by MS and personally by her will to succeed, Willeke is a disability awareness advocate seeking to improve neurological/MS services in Ireland. By highlighting difficult issues that come with such a diagnosis, she hopes her tenacity can bring some dignity to people most in need of a modern, inclusive healthcare system that looks after every aspect of life.
Ah, public transport in Ireland… Two-track train stations without elevators or escalators. Buses with seats for supposedly elderly or people with disabilities. Crutches or walking sticks that should indicate some form of disability…
People with disabilities have all been there. Literally too tired to walk another mile, they find high, rusty, wet and windy staircases over train tracks instead of escalators and/or elevators in train stations. Absolutely, publictransport in Ireland is slowly moving into the 21stcentury, with new footbridges being built with elevators inside them, but still… constructing and/or adapting them is not happening fast enough. Continue reading “Irish public transport: access all areas?”→
This year is the European Year of the Brain, and 2014 also marks the 25thbirthday of the EMSP, the European MS Platform.
Unequivocally and visibly astonished, that’s what I am right this minute. The quality of yet another MS organisation and the hard work they do, makes me want to jump up and down. Digging deeper into the work of the EMSP because of their upcoming two-day conference in Dublin, I can only say one thing: ‘People with MS are in very, very good hands, with people with- or without MS standing up for them wherever they are.’
In a recent visit to Dublin Zoo, I sat next to a snow leopard who seemed to be contemplating life. It was still early morning, and nobody was around. I sat down right next to the snow leopard for about five minutes, although it could have been longer.
We were taking in each other’s presence and it was a fantastic, soul-searching experience. While sitting there, I thought that so many bad people still roam around freely, creating problems with or for other people who mean well. On the other side of that coin, so many fantastic animals like the snow leopard only seem to have a future on Planet Earth when they’re protected and looked up behind a fence or a window. Continue reading “Caged”→
Last September, I was invited by the Irish MS Society to take part in a panel discussion at their National Day in Galway. I happily accepted because we all know that I never say no to having a good chat.
The topic of the National Day was ‘being active and interactive’, and the panel discussion covered employment, exercise, being online and volunteering. Trevis Gleason, well-known in the MS stratosphere and a newly addition to the Irish population, interviewed four people with MS: Grace, Anne-Marie, Mark and myself.