Seeing your neurologist can often make you feel anxious or afraid to speak up. Each appointment should be about exploring options, not about being bulldozed by a standardised litany of things you don’t want. Going in prepared will make you feel more at ease, so why not make a list of vital questions and things you need to discuss?
When you organise your thoughts, you feel more in control of the situation and sure of where you want to see your treatment go. After all, you are the one living with your illness. Don’t feel ashamed either in what you want to ask your neurologist, chances are they have heard similar things before, and they will be the least likely people to attack you for asking. Remember, the only silly question is the one that hasn’t been asked yet! Continue reading “Preparing for your neurological appointment”
It was a busy month. ECTRIMS (European Committee for Treatment and Research in Multiple Sclerosis Congress; October 7 – 10, 2015 in Barcelona) came and went, with insight and data offered on existing and new therapies. Continue reading “Positive MS News: October 2015”
Rugby world cup.
England in a fashion faux-pas. Coin toss aside, they resembled players of Wales, China, Japan or Kyrgyzstan (Fijian, red is Fijian).
Mum’s nine day visit to Ireland now over.
Visited Dublin Zoo once again. New camera making me rather shutter-slow, hence prevalent photographic bonding with rear ends of several animals.
Otherwise, hardly left the house.
Thank you, MS. Living with a chronic illness is not all it’s cracked up to be. Chronic means chronic. I don’t get to choose the days, the hours, the moments.
Hence, a triad of medical events in the space of twelve days, now extended into a three-week period.
Flu. Impatient, it could not wait landing on my doorstep before that all important flu jab. Must remember that viruses follow idiotic timetables and adapt accordingly.
Seriously. Continue reading “I don’t miss myself”
Needle anxiety. We all went through childhood being afraid of injections.
But why would someone have needle anxiety when what you’re about to self-inject every day, in fact slows down the progression of your chronic illness?
Although my emotions regarding needles does not amount to belonephobia, I have gone through moments where I simply could not press a needle in my skin. Using an Autoinject only made it worse. Pain doesn’t scare me (anymore). In fact, I’m going through a pretty rough time right now because of trigeminal pain. Knowing however, what the prerequisite was for having to inject myself on a daily basis, has, on occasion kept me from self-medicating. Continue reading “What a difference a needle makes”