MS News: February 2017

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Highlight! What if Obamacare (Affordable Care Act) is repealed?

  1. Big Pharma’s offer to Trump: Discounts when drugs don’t work
  2. Advanced Curriculum for Multiple Sclerosis ’17: ACTRIMS Forum
  3. Patients Value Obamacare More Than General Public and Oppose Its Repeal, Survey Says
  4. Patient groups fear Obamacare repeal could undo protections for sickest Americans
  5. Most with Chronic Conditions Find Affordable Care Act Beneficial, Poll Shows
  6. Travel ban has serious medical consequences (Opinion)

Continue reading “MS News: February 2017”

Preparing for your neurological appointment

multiple-sclerosis-s14-doctor-speaking-with-patientSeeing your neurologist can often make you feel anxious or afraid to speak up. Each appointment should be about exploring options, not about being bulldozed by a standardised litany of things you don’t want. Going in prepared will make you feel more at ease, so why not make a list of vital questions and things you need to discuss?

When you organise your thoughts, you feel more in control of the situation and sure of where you want to see your treatment go. After all, you are the one living with your illness. Don’t feel ashamed either in what you want to ask your neurologist, chances are they have heard similar things before, and they will be the least likely people to attack you for asking. Remember, the only silly question is the one that hasn’t been asked yet! Continue reading “Preparing for your neurological appointment”

MS News: May 2016

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Highlight!

  1. People with MS Share How They Are Stronger Than MS and Maintain Independence on World MS Day May 25

Research

  1. Hebrew University and Aurum Ventures Team to Create a Diagnostic Blood Test for RRMS
  2. JC Virus Carries a Mutation in MS Patients That Amplifies Brain Disease Known as PML
  3. MS and Young Adult-onset Hodgkin Lymphoma May Share Underlying Causes, Study Says
  4. Gut Microbiota in Young MS Patients Is Higher in Pro-Inflammatory Bacteria Than Usual, Study Finds
  5. Sanofi Genzyme and Johns Hopkins Partner on MS Research Projects into Disease Progression
  6. Study of Immune System Response to Viral Infection Revives Possibility of Link Between MS and Viruses
  7. Gut Bacteria Affects Myelin Content and Induces MS-Like Depression in Mice, Study Reports
  8. Modern Medicine’s Promising Future for MS Treatment: Stem Cell Therapy
  9. Fluorosamine Seen to Boost Remyelination in MS Mouse Model by Blocking Scarring Molecules
  10. Combined Use of Imaging Techniques Allows Scientists to Peer Into Myelin Formation
  11. High Glutamate Levels in Brain Seen to Drive MS Progression
  12. MS Patients May Be Prone to Other Chronic Illnesses, Study Finds
  13. Key Pathway in Antibody B-Cell Production Identified, Important to Diseases Like MS
  14. Cognitive Difficulties Known to MS Traced to Problems in Nerve Cell Activity in Hippocampus
  15. Low Prenatal Vitamin D Linked to Later MS in Offspring

Continue reading “MS News: May 2016”

Positive MS News: October 2015

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It was a busy month. ECTRIMS (European Committee for Treatment and Research in Multiple Sclerosis Congress; October 7 – 10, 2015 in Barcelona) came and went, with insight and data offered on existing and new therapies. Continue reading “Positive MS News: October 2015”

I don’t miss myself

So…

Rugby world cup.

At last.

England in a fashion faux-pas. Coin toss aside, they resembled players of Wales, China, Japan or Kyrgyzstan (Fijian, red is Fijian).

Mum’s nine day visit to Ireland now over.

Visited Dublin Zoo once again. New camera making me rather shutter-slow, hence prevalent photographic bonding with rear ends of several animals.

Otherwise, hardly left the house.

Sniff.

Thank you, MS. Living with a chronic illness is not all it’s cracked up to be. Chronic means chronic. I don’t get to choose the days, the hours, the moments.

Hence, a triad of medical events in the space of twelve days, now extended into a three-week period.

Flu. Impatient, it could not wait landing on my doorstep before that all important flu jab. Must remember that viruses follow idiotic timetables and adapt accordingly.

Seriously. Continue reading “I don’t miss myself”

What a difference a needle makes

Copaxone imageNeedle anxiety. We all went through childhood being afraid of injections.

But why would someone have needle anxiety when what you’re about to self-inject every day, in fact slows down the progression of your chronic illness?

Although my emotions regarding needles does not amount to belonephobia, I have gone through moments where I simply could not press a needle in my skin. Using an Autoinject only made it worse. Pain doesn’t scare me (anymore). In fact, I’m going through a pretty rough time right now because of trigeminal pain. Knowing however, what the prerequisite was for having to inject myself on a daily basis, has, on occasion kept me from self-medicating. Continue reading “What a difference a needle makes”