Bliss, the MS-way

Apple autumn

I long for autumn since the first few warm days. I long to walk in Phoenix Park, kicking up fallen leaves that have been building up under large oak trees. The changing of colours in nature is invigorating, it serves as a token that life goes on, that seasons come and go, each year bringing new fragrances and new stories waiting to unfold.

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The five-second MS rant

Girl sad on a rock

When physical restraints curb your potential, you realise that you want so more from your life. Life is moving forward outside your medically induced world, and you feel annoyed when healthy people don’t realise the worth of their bodies, their unused potential.

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TN triggers, symptoms & diagnosis

“Other disorders that cause facial pain should be ruled out before trigeminal neuralgia is diagnosed. Some disorders that cause facial pain include postherpetic neuralgia (nerve pain following an outbreak of shingles), cluster headaches, and temporomandibular joint disorder (TMJ, which causes pain and dysfunction in the jaw joint and muscles that control jaw movement). Most people with TN eventually will undergo a magnetic resonance imaging (MRI) scan to rule out a tumour or multiple sclerosis as the cause of their pain.”

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Life’s meant to be…

Talking down on people’s illness is something I avoid at all costs, as everyone has some cross to bear. Because of other people’s reactions towards my own illnesses, character and lifestyle, I simply know that blaming an ill person for being sick can destroy many things. Whatever people may get up to in their life, never attack them on their weakest point, i.e. an incurable illness they never asked for. It’s low, it’s patronising and it doesn’t speak well of the person doing it. In fact, it says more about the person being this offensive than the person they blame.

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Death: a fearful thing?

Header IMSM

“Within Gandhi’s description of strength, however, was some fear also, and within that fear, there was indignity. That superbug wasn’t meant for me. I wasn’t an elderly person, I didn’t live in unclean housing and I hardly ever used antibiotics.

I could’ve continued listing pessimism, unhappiness and disaster, only, I unconditionally refused to. Clostridium Difficile wasn’t indeed mine to get, or to give in to, so I fought my way back. I am not now, have never been and will never be one to give up without at least trying five different ways to solve a riddle of life. I wasn’t ready to go. I had lived enough for two lives, but I wanted a third.”

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Big pharma’s friendship

“I’ve never been one of those anti-pharmaceutical protestors who claim that all medication is just a load of sugar-coated candy. It’s extremely unlikely I’ll ever take sides with those who protest. My view is that sometimes you just have to get off the warpath and look after yourself, even if it means bombarding your body with chemicals in order to get healthy, or better at least.”

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No end to trigeminal neuralgia

“While I’m sitting here, typing fine long sentences, I’m almost giddy of pain, and the left side of my face feels like it’s being pulled way west in the direction of the Atlantic Ocean. My left eye feel like closing up shop for a week or two, and my brain is slowly being stir-fried. Yes, that is what trigeminal neuralgia feels like.”

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Not my face!

In a world of selfies and size zero clothing, a negative body image can weigh heavily on healthy people, never mind disabled people. Being ill in itself often makes you feel less desirable. In the world of MS, where wheelchairs spread doom and gloom to those that get hit with that tag, body-image requires a whole new level of acceptance.
I firmly believe beauty is limited to time and space. In addition, it only runs skin deep and definitely doesn’t reveal true worth.

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Defined by myself

“As you can tell, I have lots that strengthens me and drives me forward. I also have (dis)abilities: severe bouts of pain and fatigue, which I bent into a positive writing tool for others to lean on. My limitations serve as other people’s motivation. Their motivation became my inspiration.”

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Fierce Friday

Ah yes, sometimes my nerves – not nervous system – sometimes my nerves get on my nerves as it were. I happen to coexist with a messed up central nervous system, overly active heartbeat, breathing problems and every now and then I find myself covered with a nice infection or two. If that wasn’t enough, […]

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It’s OK not to be OK

Chronic pain. Those who have it, can’t wait to get rid of it. Those who don’t, often do not understand what is going on in people’s bodies filled with chronic pain 24/7. Not to reminiscence too much about the good old days – those where the pain was not a constant, unwanted house guest – […]

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The road to diagnosis

It was a cold, dark February morning and once again, my eye and facial pain were back. The antibiotics my GP gave me the week before did not work at all, and he seemed clueless about what could be wrong with me. I had been on several rounds of antibiotics, I had seen a dentist, […]

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Captain Jack is back!

Oh yes he is… or rather: she is! Or I am… With quite a captain-look. Black eye patch hiding an eye so desperate to jump out of its socket and an eye that is telling me to stay away from reading, writing and watching television. Hhmm… somehow that is quite hard to do in this […]

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W.B. Yeats’ pain

“If suffering brings wisdom, I would wish to be less wise” (William Butler Yeats) © Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2013. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and […]

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W.B. Yeats’ pain

“If suffering brings wisdom, I would wish to be less wise” (William Butler Yeats) © Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2012. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full […]

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