Mental or physical, your choice
"Is life with MS that comfortable, then? God, no. Absolutely not. You just have to learn how to live with it. Somehow I found a way to tap goodness from those negative connotations because I listened to its actual narrative by refusing to make a mountain out of a molehill. So, even when facial pain is also called “the suicide disease”, even when MS fatigue can knock me senseless in less than five minutes, and even when I feel awful inside despite not looking sick, I am just cool with the whole lot because there simply is no other way."
MS News: June 2016
Check June's main MS news stories and do not forget to share them!
GUEST POST: Using Social Media to Connect With Other MSers
Guest contributor Debra Robert: "The beauty of social media is that there is no right or wrong way to engage."
Preparing for your neurological appointment
Seeing your neurologist can often make you feel anxious or afraid to speak up. Each appointment should be about exploring options, not about being bulldozed by a standardised litany of things you don’t want. Going in prepared will make you feel more at ease, so why not make a list of vital questions and things you need to discuss? When you organise your thoughts, you feel more in control of the situation and sure of where you want to see your treatment go. After all, you are the one living with your illness. Don’t feel ashamed either in what you want to ask your neurologist, chances are they have heard similar things before, and they will be the least likely people to attack you for asking. Remember, the only silly question is the…
MS News: May 2016
Highlight! People with MS Share How They Are Stronger Than MS and Maintain Independence on World MS Day May 25 Research Hebrew University and Aurum Ventures Team to Create a Diagnostic Blood Test for RRMS JC Virus Carries a Mutation in MS Patients That Amplifies Brain Disease Known as PML MS and Young Adult-onset Hodgkin Lymphoma May Share Underlying Causes, Study Says Gut Microbiota in Young MS Patients Is Higher in Pro-Inflammatory Bacteria Than Usual, Study Finds Sanofi Genzyme and Johns Hopkins Partner on MS Research Projects into Disease Progression Study of Immune System Response to Viral Infection Revives Possibility of Link Between MS and Viruses Gut Bacteria Affects Myelin Content and Induces MS-Like Depression in Mice, Study Reports Modern Medicine’s Promising Future for MS Treatment: Stem Cell Therapy Fluorosamine…
Health Organisations – Ireland
Overview of health organisations for people with disabilities Health Service Executive (HSE) Department of Social Protection Press Office of the Department of Health, Ireland Disability Federation of Ireland National Disability Authority Neurological Alliance of Ireland (NAI) Health Information and Quality Authority (HIQA) Irish Medicines Board (IMB) Revenue Commissioners Information on Rights and Entitlements Medical Cards Private Health Insurance Housing Adaptation Grant for People with a Disability Mobility Aids Grant Scheme Seniors Alert Scheme Other support from the HSE Education Schemes to Support People with Disabilities in the Workplace Transport and Mobility VAT Refunds Tax Credits Relevant Legislation Useful Organisations Citizens Information Board Money Advice and Budgeting Service (MABS) Health Services in Ireland Arthritis Ireland Association for Higher Education Access and Disability (AHEAD) Association of Occupational Therapists in Ireland (AOTI) Central Remedial…
World MS Day 2016
As each day passes with life with MS, it’s worth noting that quite often, there is still a large information gap to be filled on a medical, emotional, societal and political level. Like many other disease groups, the MS community wants to enhance “Life with…” once a year in a bid to give more insight in what people without MS may otherwise take for granted. In the past, I’ve written about World MS Day on my blog, as well as on the Irish MS Society’s blog and on Novartis’s MS blog. As a person living with the illness day in, day out, highlighting it has become a moral obligation.