Single life?
"However, I am not MS and MS is not me. It may reside inside my brain but that is where the relationship ends. I accept it is there, but it will not make me long for a relationship just to be in a relationship, or to have someone present to care for me day in, day out. Quite independent, indeed."
Being active
Last week I received an invitation to take part in the 2013 National Meeting Day panel discussion on September 28th by the MS Society of Ireland. Needlessly, I accepted straight away as ‘Being Active and Interactive’ is something that lies close to my heart. If you’ve been part of my blogging community for a while, you already know my online involvement in regards to writing about life with multiple sclerosis as an unwelcome passenger. Because of this, adding something worthwhile to a panel discussion about how staying active and being part of an online community can lead to a very fulfilling pastime – no matter how dull or uninviting it sounds – is something I absolutely want to be part of. As a child and teen, being involved and fighting…
Every leaf speaks bliss to me
As the days grow shorter and temperatures colder, it is time to welcome autumn, and indeed, what should be a small new lease of life. There is nothing more comforting and relaxing than seeing daylight fade early in the evening. Darkness captures me, telling me that time has come to cuddle up on the couch, book in hand, comfy blanket to warm my feet and a hot cup of tea to warm my hands. Candlelight shadows perform magic dances on the wall, and I slowly feel energy being restored inside my body. My Doc boots have been standing idle in a corner of my bedroom, waiting to be walked in again. My winter coat never left the clothes rail in the hallway, covered by a light canvas to keep it…
My precious boots!
WordPress Daily Prompt: These Boots Were Made for Walking Tell us about your favorite pair of shoes, and where they’ve taken you. Photographers, artists, poets: show us WALK. Already blogged about my favourite boots on April 1st, 2013, so for those who want to read it, here’s the link: Iconic and Princesses and Docs I’m one day late replying to this Daily Prompt but just wanted to showcase my Dr Martens boots again. I know… just can’t get enough of them!
Debunking CCSVI, or not?
Last night I had the bright idea to write something about the frequently talked about, always fought over treatment for CCSVI, Chronic Cerebrospinal Venous Insufficiency, named so by Dr. Paolo Zamboni in 2008. According to Zamboni, he “cured” his wife of her own MS because he found a compromised flow of blood in her neck veins, draining her central nervous system and that a cure was reached by having simple angioplasty surgery.
It’s OK not to be OK
Chronic pain. Those who have it, can’t wait to get rid of it. Those who don’t, often do not understand what is going on in people’s bodies filled with chronic pain 24/7. Not to reminiscence too much about the good old days – those where the pain was not a constant, unwanted house guest – but I cannot remember what living without pain was like. Waking up feeling jolly, not a single bout of pain stabbing my face, being able to keep my balance on my way to my bathroom, high energy levels… All this was abandoned long ago, and even after 8 hours of sleep, I just can’t remember what life felt like. Healthy people often take their fitness for granted; they don’t question their bodies underperforming for a…
The worst snoring secret is out!
So yes… I snore. Considering how much weight I gained after too many MS steroid treatments, one side effect was completely overlooked. I am now the owner of a good habit of sounding like Miss Piggy at night. Steroid treatments should lift energy levels, not snoring. But I do… Like Miss Piggy.