World MS Day 2014
For more on World MS Day, please visit http://www.worldmsday.org/ This year’s tag-line is “One day…” where people with MS can add access-related mottos, questions and ideas to. Access is still a very important issue that needs more research, adaptation, laws, understanding, support and elimination of barriers before people with multiple sclerosis can lead a totally free, happy and healthy life. If you’re in Ireland, this is the place to be for more on life with MS: http://www.ms-society.ie/ ©Willeke Van Eeckhoutte and Ireland, MS and Me, 2011-2014. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, MS and Me…
Injecting object
"A whole new dictionary was instantly added to my daily vocabulary. Injection needles became syringes. MS relapses, exacerbations. Under the skin, subcutaneous. Daily self-injecting in those early days, often a war with my head, a battle of the wills."
Fierce Friday
Ah yes, sometimes my nerves – not nervous system – sometimes my nerves get on my nerves as it were. I happen to coexist with a messed up central nervous system, overly active heartbeat, breathing problems and every now and then I find myself covered with a nice infection or two. If that wasn’t enough, I have a few pet peeves, which on occasion drive me crazy. Ψ Screeching kids in shopping centers. On buses, in cinemas, in my ear. Ψ Said kids kicking my seat in the cinema. How to solve this? ♫♫ Sitting in the back row of the movies ♫♫
MS news: February 2014
The positives so far… Relapsing-Remitting Multiple Sclerosis Drug Copaxone Gets FDA Approval For Bigger Dose, Fewer Injections BioNews Texas – Copaxone injection for relapsing-remitting multiple sclerosis There is new news regarding a widely-used treatment for Relapsing-Remitting Multiple Sclerosis. According to the latest reports released by Teva Pharmaceutical Industries, the FDA has approved the company’s concentrated 3-times-per-week formulations of Copaxone, and that the formulation will now be available in 40 mg dosages. Secondary Progressive MS Trial of Lamotrigine Tested For Neuroprotection Benefits BioNews Texas – The research team proposed that delaying nerve cell destruction can limit the rate of disability in secondary progressive MS patients. The supporting study, which was completed after two years of testing, was aimed at employing nerve cell blockers like lamotrigine to monitor the rate of worsening disability…
MS News: January 2014
Primary Progressive, Relapse-Free Secondary Progressive Multiple … BioNews Texas – secondary progressive multiple sclerosis nerve While there have been a number of success stories for MS research in 2013, last year saw yet another … Gov candidates cool to more marijuana legalization Kansas City Star – Most Republicans said it was too early to decide, but a Republican candidate for lieutenant governor who suffers from multiple sclerosis said it should …
Now what?!
Life with MS. You never wake up alone. In the first five minutes of waking up, facial pain pulls my left cheek west, while my eye wants to move north, and my scalp just seems oblivious to any sensation at all. Fantastic! Just the way I want to feel on any given day! NOT. Today, however, I want to feel as bad as I possibly could.
A powerful letter to my MS
"I thought you were just another Monday morning case when you walked in," my consultant said, followed by lots of apologies and the promise that I would be very well taken care of."
