By now, you’ve probably grown accustomed to some of my outer worldly MS symptoms like the ice-picking in my eye, the bees in my ears or the whole-body buzzing when lying down. Some girls just want to have fun. I just want to stop being so blatantly weird.Read More
Thank you for listening to whispers of fear and despair when life seemed all but lost in translation.Read More
Neurological tests are entertaining. They’re telling. Mind-boggling. Enigmatic. In brief, neuro checkups sometimes border on the gloomy, darkly lit twilight zone of your existence, especially when you get up close and personal with the MRI scans of your central nervous system – your brain and spinal cord. Both are the cause of what makes you the […]Read More
Life with MS is an is an ever-changing intimate tale of loss and redemption and of love and forgiveness within your relationship with yourself. Not one day should be the same, and not one minute can go lost to idle words or feelings.Read More
You can channel your inner delightfully, dazzling diva while wearing pyjamas, dog-shaped winter socks, leg warmers and your turban hair towel.
You can drag your duvet to the living room, watch Romeo + Juliet and cry for an hour afterward because Leo died when he shouldn’t have (Damn you William Shakespeare!)Read More
“I must work towards a new set of ears,” I thought, blissfully unaware that getting these would be a herculean feat of biomechanical engineering. No matter how much I wished to exchange one of my senses because of bouts of noise intolerance, I had to retort to the usual, “Ah, the joys of life with MS” when laughing about another one of my MS-induced naps the following day.Read More
2018 Winner Best Blog Post with ‘3443 Needles’, Blog Awards Ireland, Ashville Media Group, Dublin, Ireland ◾ Ireland Blog Awards Finalist 2014, 2015, 2017 ◾ MyTherapyApp Best MS Blog for Simplicity 2018 ◾ Everyday Health Top 10 MS Blog of 2018 ◾ Feedspot Top 50 MS Blog 2017, 2018Read More
Those who willingly and therefore as blindly as I was, kept walking beside me are the heroes in this fourteen year long tale of chronic illness, daily wretched pain and forgiveness, of daily adaptation and understanding.Read More
As you move on in life, you will find that perhaps your diagnosis was something that needed to happen to see what is really important in life.
It is not an expensive new car, clothes, jewelry.
It’s health and acceptance, though flawed the best of times.
Like Roy Keane’s dog Triggs, I also ponder the undeniable finiteness of life and how best to get through it unscathed.Read More