Too warm for you? Heat sensitivity explained!

Uhthoff’s phenomenon is when changes in body temperature make a person’s existing MS symptoms worse, even a rise of 0.25°C to 0.5°C in the core body temperature is enough to cause upsetting symptoms in those living with MS.

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Happy World MS Day!

Header doctor hallway hospital

Let’s do our bit to advance research until we find a cure. and be part of the solution instead of the problem!

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What happened when you weren’t looking!

We often become too focused on the serious moments in life, yet we can learn as much about the funnier side of life with a chronic illness, or from those that show us grace in defeat. I was therefore incredibly surprised to find out that my blog was among the 10 Best Blogs of 2018 […]

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Home About IMSM History of MS 19th century 1900-1940 1950s 1960-1980 1990-2010 MS Explained What is MS? How MS Affects Brain Cells What causes MS? Types of MS Early signs of MS MS Symptoms Do I Have Multiple Sclerosis or Another Disease? Updated McDonald Criteria (2017) What is an MS relapse? Central Nervous System Central […]

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🎀 3443 Needles 🎀

Girl smiling road

🎀 3443 Needles 🎀 2018 Best Blog Post @ Ireland Blog Awards by Ashville Media Group October 26th, 2018 This is my favourite pose. Stretched out, in an apparent hug with what could be the floor or a bed. But, do not be confused, for I am not that hung up about yoga. I wasn’t on that […]

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I am not my brain

Brain MRI

“What’s wrong with my brain?” doesn’t automatically mean, “Is my mind, my soul therefore broken as well?”

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What singing taught me about life with MS

Black & white image singlng

It is hard to explain the following depth of reality. One morning shortly after my diagnosis, I woke up and thought, “From now on, I will wake up sick every day, and I need to accept that I will never get better again – unless a cure is found.”

That level of new normals isn’t easy. Then again, finding something black to wear while standing in front of a wardrobe filled with black clothes only, isn’t either. The same goes for the many pairs of black shoes, black rings, and necklaces.

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The day I stopped being weak

Tired person running

You never know how strong you are until being strong is the only option you have. How true is this? You lose a parent, a brother or sister, or someone else you dearly loved and yet, time goes on. Time has to go on. For your family, for yourself. Years later you realise you went […]

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Why I love advocacy!

No talking girl

No matter when you were diagnosed, there might be moments when you feel like screaming at the top of your lungs when symptoms take a little too long to disappear, or because people are just getting on your nerves.

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Why I should be a brainiac, but I’m not

OMG shock and awe

It happened again. Just when I attempted to maximise my brain, it decided to take over and run the show. It’ll be fun, it said. But, it was so not pretty. Not even by a long mile. With so much physical pain and hence collected a fair amount of neurology-related knowledge due to life with MS, […]

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You will survive!

To this day, 13 years post-diagnosis, I am still prone to having conscious/unconscious battles. I am past the “woe is me” period that tried to knock me sideways at first, but I still have pacing issues that lay bare any ineffectiveness I attribute to myself.

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MS News: January 2018

MRI brain scan

Your monthly MS news is back after spending a few months in the cooler. It will continue as before, with highlights, news on research and clinical trials as well as lifestyle, diet and mental and emotional health. If you found an article you want to add to this post, please let me know. Highlight! 5 […]

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The story in all of us

book data document education

MS is a mere aspect, label or classification. My story is therefore not one of heroism or tragedy, satire or drama, cheap thrills or grandeur. Showing up for myself in my own life means taking responsibility for the good and the bad while also trying to achieve goals I set myself for 2018.

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The paradox of our time

Is that we have taller buildings, but shorter tempers. Wider freeways, but narrower viewpoints. We spend more, but we have less. We buy more but enjoy it less. We have bigger houses, but smaller families. More conveniences, but less time. We have more degrees, but less sense. More knowledge, but less judgement. More experts, yet […]

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Where is my left cheek?!

Fatigued girl hands on her face

Trigeminal neuralgia feels like a vicious affair, and it is still hard to know who came first, TN or MS. Being a lover of Shakespearean drama, they would tell you they arrived around the same time.

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MS, Inc.

Perhaps losing my only sibling over a decade ago recreated the perspective on life I once held. It poured resilience into a mind that required to be strengthened for the many years ahead. Hope became the antidote to being tired of always being sick and tired.

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Understanding clinical trials

A clinical trial is a research study in which volunteers receive investigational treatments under the supervision of a physician and other research professionals. These treatments are developed by pharmaceutical and biotechnology companies who select qualified physicians, also known as investigators, to conduct clinical trials to determine the benefits of investigational drugs. Clinical trials are usually […]

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United

What do you think about this Tuesday thought, “Life has too many twists and turns?” When MS is your sidekick, you certainly understand the concept of the ‘before-MS’ and ‘since-MS’ time in your life. In that brief moment between both, life as you once knew it had all but disappeared. Many wondered how to bridge […]

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The truth about Cinderella

Some days I go through life like a half-baked version of Cinderella. There’s promise at 8 AM, but by 11 AM my fairytale book is closed until further notice. In the background, that all-important clock keeps ticking forward, but my body is in a rut: sleeping, eating, exercising, resting, more eating, more sleeping and back again. And […]

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Do I have stupid written on my forehead?

Can you recall what life was like before this craziness started? Nope? Neither can I. There is a bit of mental derailing going on right now. Fatigue is back with a vengeance. I am so excellent in not sleeping well, that when I do, it’s a reason to organise a party, or rather, a pyjama […]

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Something’s on the way!

When you’re standing in the shower and you get a fab idea to write about, but can’t remember what it was 3 minutes later… Something’s in the works, and it’ll be posted here by the end of tomorrow! In the meantime, why not catch up with these… The five-second MS rant Magnetic voices MS Anxiety The […]

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The five-second MS rant

pexels-photo-48566

When physical restraints curb your potential, you realise that you want so more from your life. Life is moving forward outside your medically induced world, and you feel annoyed when healthy people don’t realise the worth of their bodies, their unused potential.

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Magnetic voices

Life with MS is about adaptation. What you can do, however, is listen to the voice of reason, no matter how hard it might seem. It might say that you will need time, rest, medicines, a decent medical team and a seriously good dose of positivity to go through life.

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15 Essential MS Websites

Laptop pen and paper

Barts MS Blog Multiple Sclerosis on Neurology Times MS Trust Shift MS National Multiple Sclerosis Society (US) Multiple Sclerosis Association of America Multiple Sclerosis Research News Multiple Sclerosis News Today Healthline, Understanding Multiple Sclerosis Multiple Sclerosis Society (UK) The MS Society of Ireland MultipleSclerosis.net Medscape Multiple Sclerosis Very well: Multiple Sclerosis Non-existent link © Willeke […]

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20 Best Personal Blogs about MS

Writing image

Personal blogs are a great way to get to see what is hiding behind the mask of life with MS. While each person with MS is different, writers often connect with readers on a shared human level, away from hospitals, neurologists and other physicians. These are some of the best personal blogs in 2017, written […]

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MS Anxiety

Research shows that MS-related anxiety usually happens shortly after being diagnosed, while some doubt it does not result from the physical process of MS itself.

Not so fast, buster!

I begged to differ.

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The MS blame game

Tempus fugit

Earlier this year, my right eye behaved erratically because of a significant amount of stress that led to ongoing optic neuritis. My eye doctor recommended several times that reducing stress levels as well as cutting back on laptop, smartphone and TV use would be beneficial.

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Multiple Sclerosis Ireland & Novartis Blog awards!

I believe it’s fair to say so that the ‘Living Like You’ as well as the ‘MS & Me’ writers share the same gratitude. Being nominated by the public means you are owed a big thank you for not just having our back, but also for sharing our words with hundreds of people. Your voice – though often unheard – means that MS isn’t a lonely illness, but a shared concern.

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Back soon!

Writing has been a bit slow lately. New content will find its way to IMSM soon!

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MS Treatments (July 2017)

 First-line treatment Interferon beta-1b Extavia (Novartis) Betaferon (Bayer) The first drug that was approved for treatment of MS, interferon beta-1b inflammation in the central nervous system. Injectable The most common side effects include injection site reactions and GI symptoms, such as stomach pain, constipation, and diarrhoea Interferon beta-1a Avonex (Biogen) Rebif (Serono) An injectable medication, interferon beta-1a reduces inflammation, […]

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MS News: May 2017

Research worker

2017 Meeting American Academy of Neurology (AAN) Aubagio in people at risk of MS Cladribine Gilenya Lemtrada long-term data Lemtrada and black people Opicinumab Siponimod Importance of early effective treatment NEDA challenged Measuring disease activity in progressive MS Predicting risk of conversion to SPMS Risk factors for MS in children and teenagers

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Humans Multiple Sclerosis

When it comes down to awareness-raising and thought-provoking initiatives in the health charity sector, fresh ideas are often hard to find. Not so for Joan, a dear friend of mine. After her original Selfie Book idea created by her regional MS branch for World MS Day in 2015, Joan wanted to expand this Facebook idea and create a book […]

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Oh my god, I am (so not) dying!

Life with MS can be awkward. It can be puzzling. It is unquestionably easier said than done. It’s the little things that are happening inside your central nervous system that can make you stumble as if your body reinvents and transforms itself without your consent as if the ‘old’ you is suddenly not good enough anymore.

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