MS News: January 2017

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Go red to Kiss Goodbye to MS campaign!

  1. Supporters in County Donegal asked to Help Kiss Goodbye to MS
  2. Supporters in county Longford asked to Help Kiss Goodbye to MS
  3. Co Leitrim people are being asked to help ‘Kiss Goodbye to MS’

Highlight!

  1. The top 10 drug launches of 2017
  2. The year in new drugs

Continue reading

💋 Kiss Goodbye to MS 2017 💋

s3dmvsjpwzpbtbpf2yepqgcsovic3hfh_gblfgsfq4m-300x252I agree it has been fairly quiet here. A lot has happened the past few months which required the usual RRS, the almighty Rest, Relaxation, and Sleep. New things are still taking shape, so do hang around or drop me an email.

💋💋💋 Pucker up in the meantime in February! Go RED to KISS GOODBYE TO MS, the global fundraising campaign, supported by MS Ireland also. Donate €4 to MS research when you text Smooch to 50300 💋💋💋

New posts will appear soon, though, so keep an eye on your email or WordPress account!

Talk soon!

Willeke

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©WVE and Ireland, Multiple Sclerosis & Me, 2011-2017. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner are strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

Hell is other people

da11fbf1c3e131f6b8f0649409bf6001To write is to have a third eye on the world. You watch the world spin day after day, and in your mind, you write social commentary to give it a place in your life. Quite often, though, after reading your perceptions a few weeks later, you realise that what you witnessed has completely lost its meaning.

Like this, I have seen the best and the worst of what mankind had to offer the past six months.

There are people in today’s society who have the purest and most thoughtful minds you can wish for. They add serenity and integrity to your life, and they always bring out the best in you.

On the other hand, there are toxic people who have never learned what altruism and dignity is, and who lack insight into what makes people – including themselves – tick. They go on the attack without working out a game plan first and have a habit of calling you “oversensitive” or “you are just misinterpreting me” when you try to verbally counter their attack. Continue reading

Happy 2017!

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New posts will appear here soon!

In the meantime, happy new year!

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©WVE and Ireland, Multiple Sclerosis & Me, 2011-2016. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner are strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to WVE and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

MS News: November 2016

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Because of #DonaldTrump’s shock election in the US and his insistence on scrapping Obamacare once in office, I’ve added some sites and articles dealing with insurance etc.

Highlight!

  1. Health Insurance and Medicare
  2. Dumping Obamacare without a better plan is cruel
  3. How Trump Plan To Gut Obamacare Will Take Down Medicare
  4. ‘Trumpcare’ Proposals Could Cripple the Healthcare System
  5. Even If Donald Trump Changed The FDA Drug Approval Process, Patients Wouldn’t Benefit
  6. Repealing Obamacare Would Give A Tax Cut To Millionaires, Like Donald Trump
  7. President Trump Could Derail Obamacare By Dropping Legal Appeal
  8. Insurers use high drug costs to deter some Obamacare patients, economist says
  9. Americans are freaking out about losing Obamacare

Continue reading

200 days

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200 days.

Being a perfectionist, of course, it had to be precisely 200 days.

Six months and nineteen days between my first multiple sclerosis symptoms and its very diagnosis.

Little did I know that it would eventually transform my life.

It was September 2004, and I had just dropped off my mother at Dublin Airport for her return to Belgium. On the way home, a strange sensation took hold of the left side of my face, as if it had been injected with thick rubber. Thinking nothing of it, I went back to bed to catch up on lost ZZZs.

I slept for hours.

And hours. Continue reading

Then & now

While events on the political world stage the last few months weren’t exactly vivacious or dignified, a lot has happened in and outside my own colourful, little Irish bubble also. I didn’t have a foul-mouthed Donald Trump breaking down my every word, but I equally didn’t have an eloquent Obama and Air Force One to drag me away from crime-ridden, questionable places. “Life,” in a way was, just like Einstein once said, “like riding a bicycle. To keep your balance, you must keep moving.”

Even while moving, however, at times I felt the pedals slip from under my feet, resulting in losing balance mid-air. Ungracefully, so. Continue reading

MS News: October 2016

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Highlight!

  1. Influenza, Vaccinations, MS
  2. Brain cognitive exhaustion is real for people with Multiple Sclerosis

Continue reading

Trigeminal Neuralgia Awareness Symposium, Dublin

xzsf_vs1504October has finally arrived, which means that the 4th International Trigeminal Neuralgia Awareness Day is almost upon us. On October 7th the Light Up Teal campaign will see buildings across the world light up in a teal hue, with many buildings in Ireland joining the awareness campaign.

So far, confirmation of 34 structures has been received, including the 3 Arena, Convention Center, Mansion House, Cork City Council, National Concert Hall, Christ Church Cathedral, Shannon Airport, NUI Maynooth and Galway Cathedral. Elsewhere, Niagara Falls, the Canada Peace Bridge, Perth Concert Hall, the Trafalgar Sq Fountains, Taipei Tower and The Sichuan Tower to name just a few, will don the same colour also. Continue reading

MS News: September 2016

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Below are some MS-related topics that made the headlines this month. Do come back to check again, though, as the list will be updated every three to five days.

Highlight!

  1. #ECTRIMS2016 – Congress on Latest in MS Research and Treatment Opens Sept. 14
  2. #ECTRIMS2016 – Stay Up to Date with My Pick of Congress Highlights
  3. 25 American Athletes To Watch At The Paralympics
  4. MRI key to distinguishing multiple sclerosis from its many mimics
  5. Trending Topics in Multiple Sclerosis

Pediatric MS

  1. Pediatric multiple sclerosis: meeting the needs of the young patient and the family
  2. Pediatric multiple sclerosis: observational trials show promise for interferon-beta and glatiramer
  3. Pediatric multiple sclerosis associated with cognitive impairment in approximately a third of patients
  4. Legal Planning & Care Planning For Young Multiple Sclerosis Patients Video

Continue reading

Being real!

beingrealImagine, you’re stuck with me in an utterly crazy, hilarious episode of The Big Bang Theory. Let your imagination run riot, especially since this post has some gender reversal role playing added to it.

There is the ditzy Penny-type of person who thinks along the lines of “Not seeing = questioning = perhaps, possibly, maybe believing”. She thinks it’s hard to value the worth of something when it’s not visible, but given time to learn, she might just try and see things your way.

And then there is Leonard, who knows that he’s not on the same score card as some of his contemporaries. He knows that there is truth in the world, and more importantly, inside him. He says, “Stop questioning me. It exists, I have tangible proof, and I will demonstrate it to you until you let go.”

Continue reading

Conversations with myself

14222347_1101763419917442_6482430576462991914_nNot that long ago I was caught talking to my MS medication – all 28 tablets a day – in the hope they’d finally get their act together and start doing what they’re supposed to. Work. Things. Out.

I believe the phrase was, “If you are my Ross, I will be your Rachel.”

Sure, I’ve thought crazier things than that. If people would know what I’m thinking half the time, they’d take me straight to emergency and say I tore all the ligaments in my head.

Two of the biggest life lessons MS taught me, is that you can just as well have fun, and what you think, you become. A bit of semantics here and there. A touch of rhetoric too. And a tiny bit of Ubuntu if you like. Rather like, “I’m medically fascinating.”

I’m chronically fabulous too.

(Or so I am told)

I step on my own toes and hurt my own ego for the sake of applying a bit of black humour to the conversation to stop the person in front of me worrying about my physical state. So, I’ll be damned before I start taking myself too seriously. Stepping outside the box doesn’t work because I was never in the box, to begin with, and I never will be. Continue reading

Difference between fibromyalgia and MS

Note: I am not a medical professional nor do I intend to provide any medical advice to anyone. Please see your physician or neurologist if you have any health care concerns. My intention is to provide accurate information from the perspective of an informed patient.

Sometimes it’s hard to pin down which illness you have, as symptoms can look and feel alike. This is the case with MS and fibromyalgia. However, they are very different illnesses.

Despite the overlap in symptoms, diagnostic methods and profile risks, having one doesn’t put you at a higher risk of having the other illness.

If you suspect you have MS or fibromyalgia, please seek medical advice. A rheumatologist will be able to tell you if you have fibromyalgia, and a neurologist if indeed you have MS.

Continue reading

Books? Great medicine!

10420388_896873597031395_6750446769718581885_nWhen I look back on life, books have always played a pivotal role while growing up, through the good days and the bad, and in sickness and in health. If it were not for the many hours spent with my nose tucked deep in books in the downstairs library in our apartment, my life would not be the same today. It would similarly not be the same if my mum had not let me ‘read’ our atlas so many times, its spine became battered and bruised, and all pages near the maps of Great Britain and Ireland were falling out as if Boudica herself had rampaged through them.

Years later and by now living in Ireland, books continued to be my backbone and often saved me from emotional distress before or after surgeries, diagnoses and retiring from work. Some were a hard rock to hold on to while trying to stand firm against unwanted medical test results that would change the course of my life. Some were a ‘do not disturb’ sign while others the perfect antidote to something called ‘uncertain days’. Continue reading

disABILITY

Disable Inequality

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© Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me, 2011-2016. Unauthorised use and/or duplication of this material without express and written permission from this blog’s author and/or owner are strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis & Me with appropriate and specific direction to the original content.

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