Tag: Writing

Multiple Sclerosis Ireland & Novartis Blog awards!

I believe it’s fair to say so that the ‘Living Like You’ as well as the ‘MS & Me’ writers share the same gratitude. Being nominated by the public means you are owed a big thank you for not just having our back, but also for sharing our words with hundreds of people. Your voice – though often unheard – means that MS isn’t a lonely illness, but a shared concern.

Back soon!

Writing has been a bit slow lately. New content will find its way to IMSM soon!

Paper dreams

Have you ever wondered, “What exactly is my purpose on our little shining blue ball floating around in our vast universe?” Have you? Congratulations, so have I! It took me the better part of my teenage years – if not very young adult life – to get to the stage where I thought, “Yes! Eureka! Yes, I found out what I am doing here!” … Read More Paper dreams

[Throwback Thursday] Balancing life and a chronic illness

Oh, you can bet I am willing, I am usually more than willing. When physical restraints curb your potential, you realise that you want so more from your own life, and out of your own reality. Life is moving forward outside your medically induced world, and you feel annoyed when healthy people don’t realise the worth of their bodies, their unused potential. It simply reminds you that being chronically ill sucks.

UNCRPD in Ireland – begging for change

Over the years, many extraordinary, inspiring people with disabilities have shown how they have rocked the world in their unique way. What the likes of Trump might regard as incompetence, I have seen extremely able, courageous people who have raised the bar not only for themselves but for others as well. They are living proof that having a disability is not the end of the road. There is, in fact, a whole world ahead of you. It might be good to remember these strong words from Michelle Obama, “When they go low, we go high.”

Then & now

“Following that, I hit writer’s block faster than you can say ‘ABC’. That writer’s block has reached the ‘XYZ’ stage, so I’m nearing a muse that sounds, tastes and smells like coffee.

Starbucks.

Where I am funnily always full of ideas.

Away from notebooks and pens, I scrapped another item from my bucket list in September.”

Books? Great medicine!

All joking aside, I cannot even begin to count the number of books I have read since childhood or how many I handled while working in a library. Books become part of life, a friend I will remember forever, a gateway or hiding place where distraction reigns. Just holding them, turning page after page, waiting to be explored, conquered, talked about and put on a shelf waiting to be taken out again. And so the cycle begins again.

Raw

Social media often finds me catching my breath because of its reach, its intent and its questioning behaviour towards the mindset of the people they follow. After tweeting about the content of my blog, I received a rather ignorant private message from someone asking how raw my content, or I, can get and if I wanted to elaborate. On my blog, ‘raw’ is A … Read More Raw

World MS Day 2016

As each day passes with life with MS, it’s worth noting that quite often, there is still a large information gap to be filled on a medical, emotional, societal and political level. Like many other disease groups, the MS community wants to enhance “Life with…” once a year in a bid to give more insight in what people without MS may otherwise take for … Read More World MS Day 2016

Balancing life and a chronic illness

Reality. It’s what’s for breakfast. After some feeble attempts trying to write a few paragraphs the past few weeks, it was back to the drawing board each time. Not good enough. Already done this. Needs more research. Too tired. Not fit enough. You know moments like these, you sit down, determination almost physically squeezing ink out of your pen. Cup of coffee at the … Read More Balancing life and a chronic illness

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