MS, a cognitive kerfuffle of sorts
Q: "Mmm… where did I hear that before because I know that I know it, only I don't know in which part of my brain I dumped it?" A: "I can't recall, so do forgive the cognitive malpractice of millions of fiery neural explosions lost on pathways made of concrete-coloured brain matter. It's not their fault." Footnote: While I make light of said idiocy in the upstairs chamber, I find it best to address it with a sense of musical humour. Hence, I sing 'Do I know or do I not?' sung on the song 'Should I stay or should I go' by the Clash.
Moving, MS relapses, and that corona-thing!
17 Boxes with books, 8 with shoes, 4 with handbags. And then... BOOM! The novel coronavirus. And an unfortunate but quite predictable multiple sclerosis exacerbation.
The beauty and cruelty of words
What we hold dear about putting pen to paper is the urge to create something out of nothing, quite often to slow down a fast-paced society where the purity of words have become chaotic and yearn to become meaningful and treasured again.
What happened when you weren’t looking!
We often become too focused on the serious moments in life, yet we can learn as much about the funnier side of life with a chronic illness, or from those that show us grace in defeat. I was therefore incredibly surprised to find out that my blog was among the 10 Best Blogs of 2018 as chosen by Everyday Health while also being awarded another Top 50 place on Feedspot’s Best MS Blogs of 2018. And, as the proverbial cherry on top of the cake, I am now a contributor to The Mighty. There’s a certain amount of pride and vindication when you realise that you haven’t given up on life despite those who would love nothing more than seeing you defeated. I cannot be any happier with friends and…
Why I love advocacy!
No matter when you were diagnosed, there might be moments when you feel like screaming at the top of your lungs when symptoms take a little too long to disappear, or because people are just getting on your nerves.
The story in all of us
MS is a mere aspect, label or classification. My story is therefore not one of heroism or tragedy, satire or drama, cheap thrills or grandeur. Showing up for myself in my own life means taking responsibility for the good and the bad while also trying to achieve goals I set myself for 2018.
Do I have stupid written on my forehead?
Can you recall what life was like before this craziness started? Nope? Neither can I. There is a bit of mental derailing going on right now. Fatigue is back with a vengeance. I am so excellent in not sleeping well, that when I do, it’s a reason to organise a party, or rather, a pyjama gala. Sponsored by MS. And it’s undoubtedly impacting my thinking. No, seriously, having MS is not a simple task, job or status. It’s always there, in the background. Or in the limelight. In the shower. In bed.
